The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Review by Insurance Agent Girl (taken for 6 months to 1 year):
Intuniv (guanfacine) for ADHD: 25 year old female taking 3mg of Intuniv.
I started Intuniv while I was unemployed. It does really help with my focus, keeps me from being super hyper and helped my blood pressure. During this time I would take a lot of naps during the day or even just sleep in till noon. I thought it was just me liking naps and having not much to do during the day. Well I started a new job a month ago and have been falling asleep at my desk. I thought it was another medicine but it did turn out to be my Intuniv.
So my doctor is having me go down and see if lower doses will help or not. If not he will be putting me on another medicine. I also tried not taking it for a couple of days, but it caused withdrawal symptoms at the end of day 2.
Intuniv (guanfacine) for ADHD: My 7-year-old son has ADHD/ODD. His doctor has him on 10mg Prozac and 30mg of Yyvanse in the morning, and 3mg of Intuniv before bedtime (she just upped from 1mg). Unfortunately for the two days he's been on the increased Intuniv, each day he's gone to the nurses office twice because he can't stay awake in class. Getting it reduced to 2mg today and hoping he becomes less zombie-like.
12 users found this comment helpful.
Intuniv (guanfacine) for ADHD: I'm ADD, no H included. My 11 year old daughter is also ADD. Ritalin has always worked just fine for me however, I decided to try intuniv after my Dr. prescribed it for my daughter, saying that it was better because it wasn't habit forming and that it wasn't a stimulant. After 2 weeks of feeling extremely tired I then began to have headaches, feel like I was going to collapse at any given moment, and couldn't even drive due to the extreme comatose state I felt I was in. My vision also became blurred and I was very dizzy. I can see how this medication might benefit someone with ADHD as it lowers blood pressure and seems to slow the person down but I don't recommend it for ADD. It was a miserable nightmare! I took my daughter off it as well.
24 users found this comment helpful.
Review by kaykay0987-2311 (taken for less than 1 month):
Intuniv (guanfacine) for ADHD: My 7 year old grandson has been on Intuniv for 16 days. He had been on 40 mg Vyvanse alone with it wearing totally off after 5 hours. We were reevaluated because of this and Dx changed from ADD to ADHD. Intuniv was added to his regiment. We started out at 1 mg and upped to 2 mg after 7 days. We give it to him about 7 pm and by his 8 pm bedtime, he is calming down and is able to fall asleep within 5-10 minutes. I have seen a tremendous improvement in his attitude, ability to focus and coping skills. He was unable to sleep well while on the Vyvanse alone. This is allowing him the ability to get the much needed deep sleep and this also is helping him out.
One good thing: Medicaid started covering it 10/1/12
33 users found this comment helpful.
Intuniv (guanfacine): I have just started my 6yr old on the 1mg Intuniv and I am happy with her behavior but the life in her that I love about her is gone. I feel so confused. Why should I have to change her?
Intuniv (guanfacine) for ADHD: My daughter (11 years old) had been on Vyvanse, but was still struggling and experiencing excellerated heart rate. She was not eatting, not sleeping, and losing weight. Greatful for the medication, but side effects were starting to be a problem. Doctor added Intuniv 2mg on top of Vyvanse and it was great. Seemed to offset all the negative caused by Vyvanse.
11 users found this comment helpful.
Intuniv (guanfacine) for ADHD: The first few days on 1 mg in the morning, he was so tired in the afternoon, but by the 5th day he was doing better. At 2 mg, it started over but never faded.
After 3 weeks, the Dr. suggested taking it at night, but it was no better. He would fall asleep on his desk after lunch, in the car or on the cough after school, and just completely lost his personality. He was calm, and could focus better, but he never laughed, was never silly, barely played, it was awful.
We tried going back to 1 mg but had more trouble focusing again, so we tried 1mg in the morning and 1 in the evening. But he was still a little zombie. SO we gave up. I'd rather have him bouncing off the walls than too tired to laugh and play.
37 users found this comment helpful.
Review by oxcjsommmyxo (taken for less than 1 month):
Intuniv (guanfacine) for ADHD: My son is 7 and just started Intuniv about a month ago. He has ADHD, BiPolar and Intermittent Explosive Disorder. He is currently on a lot of medicines. They started in on Intuniv because he was unable to focus at school and extremely hyper. With him being bipolar it is very hard for them to treat his ADHD because the stimulant medicines make him go crazy. He tries to hurt himself and others while on those. He is on 1mg on the Intuniv and we've yet to see any good effects from it. He has never been able to sleep well, they told me this would help with that. But sadly it hasn't. He is on a sleeping pill as well. He still tends to wake up very early in the morning. Some mornings it's 2am some it's 4. They told us to go ahead and add another sleep aid.
Intuniv (guanfacine) for ADHD: Intuniv has made a huge change in my sons attitude. After being on Strattera for 1.5 years, it stopped working. It may have been due to a growth spurt, but the sudden change was awful. Intuniv has made a tremendous change and is working. Intuniv is time released and 1 mg/day does the trick. I am having to play the insurance game to get it approved and currently have a discount card that sells it for $63. It works great for my son and is worth every dollar it cost.
20 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My son is 9 years old and was "officially diagnosed" a year ago. He was on Focalin for 2 months, than started Concerta 18mg for 6 months. The Concerta was going great however, he developed odd behaviors like making noises and zoning out. He started Intuniv a month ago. His blood pressure dropped really low which attributed to him being very tired. We gave it to him at night and he still woke up groggy and very sleepy. Throughout school he was dazed and tired. He didn't find anything to laugh about and seemed out of it. During the third week (the 3mg dosage) his therapist took him off. Within 3 days he was laughing and having getting back to normal. I heard great things about Intuniv and wish all of you the best of luck.
18 users found this comment helpful.
Intuniv (guanfacine) for ADHD: Our son was diagnosed with ADHD at age 5. He just turned 9 and has been on every stimulant medication, sometimes at the highest dose. We know him as bright, funny and very loving. Without medication, however, he can be a mean little bugger and cannot stay focused on a task. Because stimulant medications suppressed his appetite, he weighs only 60 pounds. We recently switched him from Vyvanse to Intuniv with great results, except...he has starting having the worst gas issue and is afraid that his friends will tease him.
14 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My 12 year old son has been on 3 mg Intuniv for a year and it works great for him. He weighs about 120 lbs. It hasn't changed his personality at all, he's still funny and social. He's had no side effects. His focus has been great but might be getting a little off. But he's gained a lot of weight since going to 3 mg and I think he needs to be upped to 4 mg. going to the Dr next week and we'll get the prescription then. But Intuniv has been great!
22 users found this comment helpful.
Intuniv (guanfacine) for ADHD: Our son is 15 now. He was never really hyper, but very easily distracted. Drs. diagnosed him with ADD. We never had him on any meds since his only problems were his lack of attention. But it was hard on us as we had to sit with him constantly to get his homework done and basically had to reteach everything he had "learned" in school. We took him out of the pulic schoool and put him into a private school for kids with learning disabilites. We still had to reteach and sit with him. We put him on INTUNIV as it is clearly non stimulant. What a differnce! He can do his work on his own, his grades are good and the side effects have been non-existent. I read that at his dose, 2mg, side effects are almost zero.
38 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My son is 6 years old and has sensory processing disorder adhd and maybe Aspergers . He has been on it 2 months now and recently has been very sleepy and more awake at night, I got a call from his school saying he fell asleep cold on the computer and went to the nurse where he slept for an hour. He is now home today and sleeping again. I am very concerned about this and made him an appt. He is starting 2mg instead of 3 tonight. I have seen a behavior improvement in him and my 9 year old who has no side effects. Good luck to all you parents out there. Hope this was helpful.
16 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My 13-year old son is ADHD and has oppositional defiance disorder. He takes Adderall for his ADHD and 4 months ago we added Intuniv. He complains of being tired and he is only on 1 mg of the Intuniv. I have concerns because he is becoming increasingly aggressive and emotional. I do not know if this is a side effect of Intuniv. I'll be taking him back to the doctor and I don't think we'll be continuing the Intuniv.
10 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My 9 years old is now taking Intuniv for three weeks. At the begining he was very sleepy and tired. So I decided to give him the pill at bedtime, he's been much better. This medication was a miracle for my son, his mood is better, he is happier, less emotional, and finishing his school task. Before he was on Concerta for 6 months it made his personality change. He started to bite his clothes and picking on his nose. It was bad. He could focus but the side effects worthless. I also try Strattera with similar side effects. My son it doing great on Intuniv. I hope it will continue to work for him.
19 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My 8 year old son was diagnosed 2 years ago with ADHD. We knew in preschool something wasn't right. I refused to medicate him until after his first report card in second grade. I could not let his esteem fall from poor grades when we all know how bright he is. He started off with Vyvanse 20 mg. It worked well for him for the rest of that school year. The next year we had to up it to 30 mg but we felt it wasn't effective. This winter break we started Intuniv. He is on his 3rd week. He has increased appetite, focuses well, but is too sleepy in the evenings. He normally would have a hard time falling asleep. Now he falls asleep at the table reading by 8. I will continue the Intuniv but hoping it gets better.
11 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My son was diagnosed ADHD in 4th grade, he's now in 7th. Since that time we've tried many medications. We finally settled on Metadate, and it worked great, but we kept having to up the dosage, until he's now on 60mg. The doctor recommended adding Intuniv to the Metadate. He was cranky and irritable the first week, but now at week 3 and 2mg dosage, the crankiness seems to be getting better. What I have seen with Intuniv is that he's very difficult to get up in the mornings. But on a good note, if I miss the Metadate medication, his behavior is still pretty good. He's not bouncing all over the house. When he's on both the medications, he's doing really good. I do have hopes to eventually get him off the stimulant all together.
Intuniv (guanfacine) for ADHD: My daughter did well at the 2mg dose of Intuniv for about 2 months, then they upped her to 3 mg and shortly after she went for a weekend visit and the medicines were not given to her. Monday morning she was dosed and around 9am she fell asleep at school, the staff was unable to wake her - she was rushed to the ER where they found that her blood pressure was extremely low. She was taken off Intuniv. POINT OF STORY = if you miss doses don't start back at top dosage. Gradually reintroduce it to their systems from a lower dose.
42 users found this comment helpful.
Intuniv (guanfacine) for ADHD: I have to say, I am ALL FOR INTUNIV. My husband and I tried EVERYTHING for my step-son's ADHD. He had a history of seizures, but we still tried the medicines that cause them. This is how desperate we were. My step-son is 7 years old, and was suspended from school. He hit, kicked, screamed, cried, etc. My husband was called to get him from school countless times. It was exhausting. His school finally told us, in no uncertain terms, he was not welcome at the school unless we got his behavior under control. We switched his schools, and his new school rated a child's behavior with colors every day. Green, purple, yellow, and red. Obviously, my step-son brought home yellow and red every day. One day my husband got a call to come get him from school. He had thrown a fit and run in front of a car trying o escape his teacher. My husband finally said enough was enough and brought him back to the doctor. He was put on Intuniv. Here comes the miracle! Within two weeks he was like a different child! Green card EVERY day! Helpful, polite, CONTENT! I can%u2019t believe it. He is, granted, still a 7 year old boy. But his ADHD is FINALLY under control!
41 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My 7 year old son was put on Intuniv for about a month. At first he was having trouble sleeping and moody. He was getting worse in school never smiled, roller coaster mood swings and would cry easily. He even got to a point where he was suicidal. We stopped giving it to him and he is having withdrawal issues. He was only taking 1 mg of Intuniv. He was a lot better on the Focalin.
13 users found this comment helpful.
Intuniv (guanfacine) for ADHD: My 7yr old son has ADHD and has been on medicines since 3.5 yrs old. Right now he's got two days left on his first week of 1mg Intuniv before we go up a dose. First few days he was tired a bit and all seemed to be improving on his defiance and irritation. We are on day 5 and at this point I'm anxious to get going on the 2mg dose as he seems to have simply gotten "used to" the 1mg dose.
Update....started the 2mg a few days ago and did not seem to have many issues. A bit sluggish but nothing concerning. School called today and he had THREE seizures. My son has no medical issues other than ADHD. Seizures are a very rare side effect of this medicine. Intuniv is definitely NOT for my son. Obviously.
19 users found this comment helpful.
Intuniv (guanfacine) for ADHD: I am currently taking Vyvanse and Intuniv. I am 16 years old and I have ADD. I am on week 2 of the Intuniv. I have noticed that every time I get up from sitting down or laying down, I get very dizzy. I haven't felt sleepy or tired, but I think that's just because I am taking the Vyvanse too. I am taking Intuniv to try to cancel out the anxiety side effect of the Vyvanse. I haven't noticed a difference at all. I am just very frustrated at this point. I have tried almost every ADD medicine out there. I still have impulses and still am a perfectionist. I am still hoping that it will improve over time.
23 users found this comment helpful.
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