Golimumab User Reviews & Ratings

Brand names: Simponi, Simponi Aria

Golimumab has an average rating of 6.2 out of 10 from a total of 149 reviews on Drugs.com. 53% of reviewers reported a positive experience, while 31% reported a negative experience.

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Reviews for Golimumab

George
Taken for 1 to 6 months
August 22, 2018

Simponi (golimumab) for Rheumatoid Arthritis "My wife was administered simponi infusions Prior to the infusions she was a healthy active lady. She suffered from RA which was addressed with methatraxe and predozon.. The she was switched to Simponi. She started exhibited all the side effects of this drug. She detetiorated very fast. Today she's laying in an ICU fighting for her life. Doctors claim the major contributor to her ailing health was the Simponi. It's effects etc are irreversible. So. If you intend to go on this drug. Please research it and be very carefully monitored. It creeps on you and could kill you. It has turned my wife from a healthy active working woman to a physically and mentally incapacitated. Even if she pulls through this ICU nightmare. We have years of recovery. If any. It is a shame these kind of drugs are allowed. Even if it effects/kills/handicaps on person it should be removed from the shelf"

1 / 10

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106 Report

Careg...
July 7, 2016

Simponi (golimumab) for Rheumatoid Arthritis "After my wife was taking Simponi for about a year under the direction of her arthritis doctor, she came down with a rare neurological condition called CIDP (chronic inflamatory dimylating polyneurothapy) where she became almost totally paralized . I think that the drug Simponi is very dangerous to take and she still can't walk after 2 years after stopping the drug. She has to take infusions of IVIG gamma globulin every third week to rebuild her nerves after the erosion of the myelin of the nerves took place. This is a very serious side effect that no one has addressed. I am sure that others have had this side effect hit them from taking Simponi. We have spent over $200,000 in medical expenses toward my wife's recovery and will take at lease 1 to 2 more years for her to recover."

2 / 10

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112 Report

Andyg...
Taken for 6 months to 1 year
March 17, 2016

Simponi (golimumab) for Rheumatoid Arthritis "I am a male age 28 with RA. I was diagnosed with RA at age 23. I suffer pain primarily in my toes. For a newly married athlete at age 23, the pain from RA and the thought of living the rest of my life crippled with pain - took a huge toll on me. I felt ashamed as a man and as a husband/potential father. Fortunately, I have had great Docs work hard to help me get well. I have been on plaquenil, sulfazalazine, methotrexate, enbrel, cimzia, and simponi. Each med had some positive results but some had harsh negative side effects too. Like many of us- I want to be on as little medicine as possible - but still manage my pain. Simponi has solved my riddle. I am so pleased to be pain free and on only 1 med now - Simponi. Thank you!"

10 / 10

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99 Report

Frequently asked questions

What are the new drugs for rheumatoid arthritis (RA)?

Rosie...
July 30, 2017

Simponi (golimumab) for Rheumatoid Arthritis "I started Simponi Approx 1 year ago. I was first on methotrexate for about a year but developed a really bad cough and scarring on lungs. I then was put on Remicade which took away every pain I had but on third infusion, I had an allergic reaction so I had to be taken off. Now I am on Simponi and by the third infusion, I have had no pain at all and no side effects. I am on Medicare which pays for 80% and my UHC which pays the 20%...so I feel really lucky."

10 / 10

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76 Report

Ifeel...
August 7, 2016

Simponi Aria (golimumab) for Rheumatoid Arthritis "I just had my 2nd infusion and I feel so much better. I can do my everyday chores around the house without pain and fatigue. I feel like I am getting more oxygen, I know that sounds crazy but it is true. I can breath better.No stiffness in the mornings. I walk like a normal person again. My hair is falling out more that normal, I don't know if its the simponi , methatrate, or plaquenil. Going to call my doctor about my hair.I am on the drug company's assistance plan. I pay $ 5.00 for the simponi and $55.00 to the infusion center. ( thank god!) Simponi infusion costs $6500.00 with out insurance for 1 infusion. (August 2016, USA) I am 53, I feel better now than I have in 6 years. I have RA. Hope this helps someone decide to try simponi aire."

10 / 10

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84 Report

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Piglet
August 17, 2016

Simponi (golimumab) for Rheumatoid Arthritis "Was on Humira for 11 years, which stopped working. Enbrel, horrible reaction. Started Simponi in April. It took about 2 months to kick in, but now working great! Sleeping better than ever, have only had 2 days of minor pain. Only thing that is still challenging is the fatigue. Very happy with results and love the once a month injection."

9 / 10

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72 Report

jdrebe
August 24, 2010

Simponi (golimumab) for Rheumatoid Arthritis "I have been on Simponi since 11/09. Took a couple of months to kick-in, and seems to wear off about the 3 1/2 weeks. Best results I have ever had. Did not use with Methotrexate due to had neuropathy symptoms when I take Methotrexate. I have had rheumatoid arthritis for 18 years and I am 55 years old, been on every RA medicine, Simponi is the best for me."

8 / 10

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108 Report

Anthony...
May 1, 2014

Simponi (golimumab) for Rheumatoid Arthritis "My rheumatoid arthritis developed about three years ago and was very severe .. very debilitating. Walked at tortoise-pace, couldn't do anything around the house. I've now been on Simponi golimumab prefilled syringes for almost that long, in conjunction with weekly injections of methotrexate and 4 tablets of Pyralin and one Plaquenil daily and really feel back to my old (now nearly 70) self. Can walk, chop wood, even play nine holes of golf again. "

10 / 10

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81 Report

RA user
November 20, 2013

Simponi (golimumab) for Rheumatoid Arthritis "I was also hit hard with rheumatoid arthritis in 2011. Tried prednisone, followed by methotrexate pills, Arava and others, nothing helped. In 2012 I was put on Humira which helped a lot for a few months, but not enough. Since January 2013 I use Simponi along with 0.8 ml methotrexate injections, and it has given me back my quality of life. After 1 1/2 years I could bend my pinky finger again, wow! For me the change was subtle, but very effective. I tried alternative meds etc. after being diagnosed and didn't want to take this route, but honestly I cannot live without it. For me it works, it's a miracle."

10 / 10

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82 Report

Karlh
March 11, 2017

Simponi (golimumab) for Rheumatoid Arthritis "Simponi had been the first biologic that has worked for my very active JRA (diagnosed 48 years ago) I tried every biological available, Simponi was the first medication to work within hours for my severe symptoms at the time, with no side effects. I have been using Simponi for 8 months. I pray it continues working."

10 / 10

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60 Report

treeod
Taken for 1 to 2 years
May 16, 2017

Simponi (golimumab) for Rheumatoid Arthritis "I have had RA since 1987 and tried pretty much every drug and biologic out there. After a few weeks on Simponi (2011) I swore that I was completely cured of my RA. Unfortunately the manufacturer does not give financial assistance to people on Medicare so I had to get off the best drug that ever worked and have been deteriorating ever since. Shame on Johnson & Johnson for not having compassion on patients who can't afford their drug. BIG DRUG COMPANIES!!!"

10 / 10

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56 Report

Frode...
Taken for 2 to 5 years
December 7, 2014

Simponi (golimumab) for Rheumatoid Arthritis "I have been on Simponi since five years ago. The medicine has been a miracle. I did notice the effect only after one or two weeks. After five years I have started to have increased pain and I think the effect of the medicine is loosing. However, Simponi has changed my life completely. From hard attacked by Bekterew, I have now been running and cycling (100 km) competition for many years."

9 / 10

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68 Report

myke
Taken for 2 to 5 years
August 24, 2012

Simponi (golimumab) for Psoriatic Arthritis "I was almost wheelchair bound, every joint in my body inflamed and lots of pain walking. Psoriasis was flaring too all over. The day I took my first shot I could feel the joints loosening and pain lessening. Within 6 months I was virtually pain free and completely mobile. 2 years now and I am riding my bike 25 miles a day and combined with light treatment my skin is 90% clear."

10 / 10

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79 Report

still...
Taken for 6 months to 1 year
June 22, 2014

Simponi (golimumab) for Rheumatoid Arthritis "Started taking Simponi in November of 2013. I got full use of one hand back and about 80% on the other in 4 days. I was diagnosed in 2002 and disabled by 2003. I've used Humira, Enbrel, and Remicade all with some success but I continued to get worse. The infusion wears off around 5 to 6 weeks. This last infusion of Simponi was my best yet. My next infusion is tomorrow 6/23/14. Really need it too."

8 / 10

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67 Report

Lynns...
Taken for 5 to 10 years
February 25, 2017

Simponi (golimumab) for Rheumatoid Arthritis "Was ready to retire from teaching from the pain and tiredness from difficulty walking from RA. Simponi gave me my life back. Reduced immune system from RA meds given as reason for Legionnaires disease but benefits far out way any negatives. At 7.00 am about to go on extended world trip."

9 / 10

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52 Report

Marti...
August 8, 2015

Simponi (golimumab) for Rheumatoid Arthritis "I started Simponi on November last year. I started noticing a rash on my face but I never relate it to the use of the med. Two weeks ago my dermatologist told me I have this weird reaction called mucinosis , which when not treated properly can lead to a lymphoma. I was feeling awesome with simponi so far cause the pain of my RA was gone but now I just don't want to use it anymore."

6 / 10

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58 Report

Kdm
Taken for 1 to 6 months
October 31, 2016

Simponi (golimumab) for Rheumatoid Arthritis "I was on Methotrexate and Sulfasalazine for my RA for several years. I have now received 2 infusions of Simponi with my third one the end of 11/16. The only improvement I saw was after the first infusion which helped with my stiffness. I am still suffering with the pain and returning of stiffness. Also, my feet are really bad now. Does Simponi just not work for some people?"

1 / 10

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50 Report

romeo
January 30, 2010

Simponi (golimumab) for Rheumatoid Arthritis "I have been on Simponi for 4 months now. Just took my 4th dose. I love it. It just plain works. No swelling at all now. I work daily, on my feet, with my hands, bending, lifting etc. Pain free is the way to be. I switched from Humira to Simponi. Humira worked well, but had some minor side effects. The Humira "pen" just plain hurts. So I used the prefilled syringes of Humira. The Simponi "pen" works great!! Painless, fast and easier to use. It allows you to hold it in your fist and squeeze to activate. It is a light squeeze, so no difficulty in using it. At least for me. It took a couple days to notice any effects, but all were positive. Doctor visits have been very good...."

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79 Report

V V
Taken for 2 to 5 years
October 2, 2020

Simponi Aria (golimumab) for Rheumatoid Arthritis "I have been on this for about 5 years and have had RA for 40 years and tried lots of medications. But this one works for me the best. I also take Methotrexate with this and I have been free from illness over the past 3 years. I am only tired the week that I get the infusion and then I am fine after that. Glad to be able to move like I want to most of the time."

10 / 10

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27 Report

ColinF
July 8, 2017

Simponi (golimumab) for Rheumatoid Arthritis "I'm a mid to severe RA patient. I have RA for about 4.5 years. I was quickly diagnosed. Less then 6 months I was prescribed Simponi. In Canada my doctor got me lined up for Simponi and once I started they will give it to me free of charge. The drug company pays for it. I am very lucky. I have been in remission for since I started it 4 years ago. Colin"

10 / 10

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44 Report

Anonymous
Taken for 2 to 5 years
October 28, 2022

Simponi Aria (golimumab) for Rheumatoid Arthritis "It has helped me to move in a fast paced line if work for the last 3 years. But I was diagnosed with a tumor inside my kidney and now I may have to loose my kidney. This was caused apparently because of the use of this medication."

6 / 10

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14 Report

LisaI...
October 9, 2013

Simponi (golimumab) for Rheumatoid Arthritis "I was hit hard with rheumatoid arthritis in March 2012 and practically disabled by May. I couldn't tolerate methotrexate or Enbrel due to reactions. I started Simponi in October with 20mg Arava. It has given me my life back! I literally don't hurt at all most days! After nine months, I did develop a bad case of Palmer Planter Psoriasis as a side effect. Yet, I still want Simponi! That's how much it's improved my quality if life. The pens are easy to use and don't hurt compared to Enbrel. I've had no other reactions besides a shaky feeling on first month only."

10 / 10

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57 Report

Char
Taken for 2 to 5 years
March 14, 2023

Simponi Aria (golimumab) for Rheumatoid Arthritis "I have been on Simponi Aria for 2 years and counting. So far so good. I have no side effect related to the infusion. I am able to lift weight and run with no pain. The only things are I can feel when it almost time for my next infusion when my joint start feeling a little discomfort, but it has been random. One month I was able to skip an appointment for 4 weeks and felt fine overall."

9 / 10

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10 Report

Karl...
May 21, 2013

Simponi (golimumab) for Psoriatic Arthritis "I had been taking methotrexate for almost a year with moderate results. My skin cleared almost 80%, and my joints improved approximately 60%, however each time I took my medication I felt really ill for 48 hours afterwards. It was depressing. Anyway my Rheumatologist recommended Simponi. Having read the side effects, etc. I was a little apprehensive about taking Simponi, but after meeting with the Simponi nurse I decided to go with it. After two shots (2 months) I felt a big difference, my joints were no longer stiff and I was almost pain free. After the fourth shot my skin has cleared to 95% and I have no stiffness in my joints. It really is working for me."

9 / 10

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55 Report

Kar
February 7, 2018

Simponi (golimumab) for Rheumatoid Arthritis "I have had Juvenile rheumatoid arthritis (JRA) 49 years. I have tried every biologic there is and Simponi has been the first drug to work for me within a few hours. I take simpono and self inject every 2 weeks, I also take low dose prednisone. I was diagnosed at age 6, have many replaced joints and still some active joints with severe RA. I have been on Simponi for 18 months now, even though I have never had a remission, my symptoms have been the most controlled on this drug! :) Pray it keeps working this well."

10 / 10

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35 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.