Also known as: Carbatrol, Epitol, Equetro, Tegretol, Tegretol XR
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Reviews for Carbamazepine to treat Trigeminal Neuralgia
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Review by tabeloe:
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9.0
Tegretol (carbamazepine): I started Tegretol a week ago for Trigeminal Neuralgia. I was having more and more episodes of TN, and was miserable. Since starting the medicine, I have only had one brief episode of pain. I have had terrible itching since I started taking it. I saw a different Doctor today about the itching, and he said the dose was too high. Hopefully the 100 mg twice a day will relieve the TN pain and not cause itching. I am happy to try the Tegretol, because TN pain is unbearable. Worse than any pain I've ever had (including labor, c-section pain, and oral surgery pain.
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Tegretol (carbamazepine): I have been suffering from Trigeminal Neuralgia for almost 8 years thinking that I was having tooth problems. Since my symptoms would come and go, I never did any further research and accepted my dentist's explanation that it was just sensitive teeth. This time, I couldn't accept that and decided to research further. Thank goodness I did and thank goodness for Tegretol! After being on it for only 2 days I am experiencing almost total relief! TN was the most painful experience of my life. The only down side to the medicine so far has been some light-headedness, which I am hoping will diminish or go away completely.
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Tegretol XR (carbamazepine): Although the side effects can be very difficult to deal with but the pain of Trigeminal neuralgia is far far worse. This last attack that I had with the disorder put me to my knees begging to die so I started my Tegretol once again and now 6 days into it no pain at all. I am very nauseated and extremely dizzy but I will take the side effects over the pain any day of the week.
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Tegretol (carbamazepine): I have been on Tegretol for only 2 weeks and it gave me much relief. Neurontin and Topomax did not work for me. Only side effect of Tegretol is sleepiness. I sleep very well at night. I was prescribed 200mg twice a day, but only take it once a day. Sometime I take it twice a day if pain in morning is constant.
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Tegretol (carbamazepine): I was having severe attacks several times a day and within two days on tegretol they stopped. I still get very minor twinges at times from trigger areas. It has been two weeks plus now and I can still recall beginning to brush my teeth and ending up on the floor, so I would be happy if I retain this level of control forever.
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Tegretol (carbamazepine): I have trigeminal neuralgia and have been suffering from it for quite some time. I was put on 300 mgs twice a day and it didn't help at all and the attacks were just getting more severe and frequent, so the neurologist upped it to 900mgs a day. Still no relief! I have been on two other kinds and pretty much have to rely on pain medication which doesn't even relieve all the pain.
Tegretol XR (carbamazepine): Worked wonders for me for 25 years and slowly stopped being so effective. It is AMAZING for face pain. I took 600 mg for 24 years and then upped to 1000 daily until it became time to change. Still looking for something new.
Tegretol (carbamazepine): I've been using CARBAMAZEPINE 200mg twice a day for about two years. It does a good job in limiting the amount of pain I have with Trigeminal Neuralgia. I found it best to take the medication regularly. If I skip days when I am not having problems the pain will be right back and it will take several days to get it back under control. I've tried GABAPENTIN 300mg and OXCARBAZEPINE 150mg but they did not help. The CARBAMAZEPINE makes me tired and sleepy but that is a lot better than the pain.
Tegretol (carbamazepine): I was put on Tegretol 2 weeks ago, and boy or boy the build up felt like forever but now that it is at 800mgs, I am feeling so much better. I believe I will be going up yet again this week another 200mg and then again if need be, before Doctor tapers me down where it is maintainable. I am still having just a bit of breakthrough pain a few times a day, which is nothing compared to where I was 2 weeks ago. I would gladly take the tired, stumbles and slurs over where I had been. This medicine works, and works well! I pray it doesn't stop working for me, ever!
Tegretol XR (carbamazepine): I have constant pain in my neck, scalp, left thumb. Tegretol helped but compromised my bone marrow. Be sure to have to have CBC blood work regularly.
Tegretol (carbamazepine): I have had TN for about 10 years, but was switched from Trileptal to carbamazepine, 100 mg 3x/day, about a month ago. The first week I felt almost pain-free, but since have been in constant pain. It does not seem to work for me at all now!
carbamazepine: I went to several doctors and wasted 5 months and a lot of dollars before I was diagnosed with Trigeminal Neuralgia. I was originally diagnosed with TMJ disorder. My excruciating pain was right in the middle of my ear and it was the worst stabbing, electric-like pain anyone could imagine. It would just paralyze you. No indications on when it would happen. I have been on carbamazepine for about two months and it has work fantastically. It did make me a bit sleepy and unsteady in the beginning, but that has waned and now I really do not have any side effects. I do sleep better at night than I did before I took it. I take 2 chewable tablets, 100 mg, 2x a day and that has taken care of the pain. I have not had any episodes since I started taking it.
Carbatrol (carbamazepine): Like a previous commenter, I have been suffering from Trigeminal neuralgia for years but thought I had dental issues. I even had a root canal that I didn't need. Then my pain moved into my face and I've been miserable since. I found tremendous relief on Carbatrol, but developed a severe allergic reaction to it and had to be taken off it. Now I take Gabapentin, and today my doctor added Lyrica and I can't seem to get any relief. Has anyone tried any of the surgical options to get rid of this horrible, painful disorder?
carbamazepine: 8 years ago I had laser surgery for the nerve pain in my face and it worked great. About 3 years ago it started coming back off and on. It just recently got so bad I had to see a doctor. He put me on 200mg of Carbamazepine and it's working great. I hope it works for many years.
Tegretol XR (carbamazepine): After being on regular Tegretol for about a year in combination with Neurontin, my Neuro changed it to the Tegretol XR with fantastic results. I have been taking this for about 2 years now and other than the annoying side effects and occasional breakthrough pain I am very happy. Be warned though that the new generic of Tegretol XR may not be as effective as the name brand. When the generic came out my insurance automatically switched me and they didn't work near as well and I was having a lot of breakthrough pain. My Dr had to make a request to my insurance for the name brand and thankfully they approved it.
carbamazepine: The Trigeminal Neuralgia is very painful. My Neurologist prescribed my medicine over the phone and it relieved my pain within hours. I am very thankful for it. Only side effect is that it makes me drowsy.
carbamazepine: I was prescribed this drug to alleviate the pain of Trigeminal Neuralgia. What a terrible experience. Only 4 days into it and I became overly down on the world and virtually everything in it. I was so saddened by everything around me. I was unable to simply look at photos of my children that I had easily done in the many years prior to this week, without any sort of difficulty whatsoever. Not really sure why it affected me in this manner so I went back to the Dr. He said that this medication is sometimes prescribed to help other people deal and cope with bipolar disorder, mania, and he mentioned a couple of other things too. I hope that this medication is more helpful to others that may try it for this purpose or the others too.
Tegretol XR (carbamazepine): After first two years of trigeminal neuralgia without drugs I finally gave in and began Tegretol XR at only 200MG a day. It halved my pain and made "life livable" again... dragging my feet on asking for an upped dosage since I fear it may lose its effectiveness.
carbamazepine: For about a year I experienced a lot of my teeth needing root canals so about 6 months ago 4 teeth needed root canals the dentist couldn't understand. They looked further the nerves were dying so they root canal all 4 I started to experience pain that you can not describe. Was put on carbamazepine 400mg a day which was helping.
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