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Compare all 15 medications used in the treatment of Narcolepsy.
Reviews for Nuvigil to treat Narcolepsy
Review by Justme (taken for 2 to 5 years):
Was diagnosed with depression, then bi-polar, then bipolar narcolepsy. Cocktail I was on for well over a year was 5mg Abilify, 60mg Cymbalta and 250mg NuVigil. Recently came off the Abilify and I can't even explain how good I felt, not high, not mania, just that "finally, just me" feeling. I was content with life, at peace and for the first time in YEARS I was even happy! After a week of no Abilify we decided to begin weaning off the NuVigil. Been taking 150mg Nuvigil 60mg Cymbalta for a week now and feel horrible. Don't care about a thing, no motivation, tired, etc. Doc said give it a month. Hope I can last that long. I just want ME back, as does my wife and kids.
I took Nuvigil for a little over a year. It changed my life. I have had chronic fatigue for 13 years and the Nuvigil gave me the energy to live a normal life. I had a few side effects, but being awake was more important to me. Occasionally I would sleep lightly or stay up until 2 am. The more noticeable side effect was the fogginess. I would often forget what I was doing, why I walked into the other room and I couldn%u2019t get words out quick enough. I always had the %u201Cit%u2019s stuck at the tip of my tongue%u201D feeling when talking because I couldn%u2019t remember certain words.
Overall, I was very satisfied with this medicine and it was effective. Once I lost my insurance I couldn%u2019t afford to take it anymore. $565 a month is a bit much.
I have taken 250mg daily of Nuvigil for two years now. Without/before it I couldn't think straight, I dropped stuff, couldn't perform the simplest daily functions. Nuvigil has given me my life back! I couldn't drive for a year, I can now. My narcolepsy is pretty bad and if I miss one day of the Nuvigil I can't function. By the afternoon I can't stay awake or hold on to anything. The other medicine I was on didn't even compare to Nuvigil!
I have been taking Nuvigil about 8 mos now 250 mg in morning and 150mg in afternoon. At first I had a lot of jaw pain but went away after a week or two. I had a lot of energy at first and really felt like I was able to focus again. I don't fall asleep any more on rides in the car, nor do I get sleepy when driving like I used to. I have noticed that my memory is really failing me and I asked my doctor but he says that is not a side effect of Nuvigil so I don't know what to think. Anyone else have this problem? I'm going through menopause also but I think it is more than that. I always had a basically a photogenic memory and now it feels like like is speeding by. Thanks
I'm a 21 year old college student. I was diagnosed with Narcolepsy without Cataplexy recently, even though it's been there basically my whole life. I'm currently on 250mg Nuvigil in the morning, and he's going to add another medication soon to help my brain sleep at night. Since I have such anxiety levels and it affects my sleep. It has helped me stay awake in class, but I still can't focus. I really don't feel much difference. I still take naps a few times a day, and I feel like the medication wears off by around 2:00PM and then I'm falling asleep again. The side effects I'm feeling are daily migraines, extreme cotton mouth, and sometimes an upset stomach.
13 users found this comment helpful.
I'm 25 years old and have had narcolepsy since I was around 10. I've never been on any medication before and have lived my life around constant daytime sleepiness and having to take regular naps. My Dr prescribed me Nuvigil. Day one was the greatest I have ever felt in 15 some odd years! I have energy to do things, can eat without having to sleep afterwards, can stay awake at work. Still randomly after being up for a excessive period of time I get the urge to take a nap and if I do so, I have no issues. Bad side effects are mild headaches, slight tightening of the chest. Bad thing is my insurance only covers a small portion of it and most likely wont be able to afford it.
I have EDS and found Nuvigil (250 mg) very effective for remaining awake for the first couple of weeks then my alertness diminished. I did find that while taking Nuvigil if I took a 20 minute nap in the afternoon, I awoke feeling refreshhed, not groggy and needing more sleep. The major side effect I experience is nearly severe jaw clenching/teeth grinding during the day when I was awake. My jaw is sore by 2 or 3 pm every day. Also, I found it difficult to sleep at night if I took it too late in the morning. I tried getting up at 5 am and taking my dose then sleeping for another hour. This helped me get to bed earlier at night. I noticed that I felt more anxious also.
I have had narcolepsy since at least age 15 but was not diagnosed until around age 27. I started with 200mg of Provigil, then when that didn't work 400mg Provigil. That didn't work so we tried 200mg Provigil with 15mg Adderall. That helped some for a while. Then when adderall was affecting my blood pressure we moved to Nuvigil and away from the combination. I have been on 250 Nuvigil for about 2 yrs. It has done well but now within recent weeks, it is not holding it's own. I just wonder, at this point what hope is there? If Provigil and Nuvigil do not work, how can I continue working? I can't drive like this, I can't focus, I can't stay awake.
I've been taking Nuvigil 250mg for about 1 month now. At first it was amazing and helped me stay alert and kept me from needing naps every day. About 2 weeks after starting I discovered a major decline in it's effectiveness and had to stop using it for a while to see if my tolerance would go back to normal. I still cannot go a full day without being tired so am considering doubling my dose or trying something else.
If it wasn't for the cost I would give it a ten. I've been taking 150mgs a day for almost a year. With a card from drug co. I only pay $20, but when that card expires I cant afford $50 per month. My doctor just prescribed me Ritalin 10mgs 3 times a day (also probably have ADD).
I am a student. Was having sudden sleep blackouts when reading, or sitting in lecture. Also "brownouts" where, for example, listening to someone talk, I suddenly shut down and "sleep" but they think I am wide awake. Brownouts not good for driving! So, first day I took it, I read 3 chapters for a test that was two hours away. I stayed alert, and RETAINED every bit. No more blackouts or brownouts. Headache for the first week or so. Also, for the first few days, I hardly slept. Even stayed up all night a few times. I have learned to tweak it a bit, break the tablets, take a small amount at first and more later if I need it, but not overdo it. No changes in personality, other than being more competent at life.
12 users found this comment helpful.
I have been taking Nuvigil for a little over a month now. At first I took 150mg. It worked for 3 days and then I went back to being exhausted. My doctor bumped the dosage to 250mg and it has been working a lot better. Thing is I can still feel episodes of sleepiness coming on later in the afternoon and have been adding caffeine but I think its bringing on the side effects like jitteryness, nausea, fogginess, extreme dry mouth and an uncomfortable feeling in my jaw and the back of my neck. I do not like the side effects and I am now trying to cut back on the caffiene hoping it will help. Going to add Xyrem to my treatment to see if it will fix me.
I was diagnosed with narcolepsy several years ago, but probably suffered from it for 12 years or so. I never stayed awake in classes. Once I started full time work, I had to get it under control. I used Provigil for a while first, but it was harsh: came on strong, I felt buggy, severe migraines, and I crashed hard after about 8 hours. I switched to Nuvigil (150mg) though it's more dollars was told it had a slower release which may help with the migraines and bugginess. I like the Nuvigil a lot better. It comes on a little more gently, I crash less at the end of the day. I do self-moderate, often don't take it on the weekends, I'll only take a half pill some days.
I was diagnosed by a sleep specialist a month ago with narcolepsy. I started with 150mg dose but saw no improvement with wakefulness or ability to sleep, which was my main concern. After discussion I was put onto a 250mg dose which as of yet still hasn't anything.
Nuvigil worked great at 150 mg for a few months, then I needed to supplement with a quart of coffee in the mornings to keep me going until 1 pm. Bumped up to 225 mg. Not much better. Very expensive, $90 per month ($3 per pill). Aggressiveness, headaches, and thirst until I got used to it. No side effects now.
I was diagnosed with narcolepsy a little over a year ago. As I was just about to start my senior year of college, I knew I needed to start a medication in order to get through classes and homework so I started on Nuvigil 150mg. I immediately noticed a huge difference in my quality of life. I had forgotten what it was like to be focused and alert throughout the day and would suddenly realize it was 9pm and I was totally exhausted. However, side effects started to take over the benefits for me and I started to experience problems with jitters, a sort of lingering morning sickness feeling, and anxiety. I stopped taking it due to these side effects, but sometimes now I feel the exhaustion is worse than dealing with the side effects.
I have been taking 250 mg of Nuvigil every morning for a year. I could not stay awake at all before starting this medication. After taking Nuvigil I felt much better. I have had a lot going on lately and stress does affect how this medication works for me. If my sleep pattern is disturbed (have to get up extra early or go to bed really late) it also has a huge impact on how this medication works for me. Overall this medicine has given my quality of life back.
13 users found this comment helpful.
I've known something was wrong with me for several years now, but only recently did I "push the point" and get some face time with a specialist. The pulmonologist put me on a CPAP machine and dismissed my MSLT results, whereas the neurologist paid attention to my MSLT results and diagnosed me with narcolepsy. He put me on 250mg Nuvigil, broken in half, 1 in AM and 1 at noon. The first day it worked *great*, the rest of the first week or two it worked so-so (still had "the nods" at my desk, driving, etc, but usually didn't fall completely asleep), but it really hasn't helped since then. I, too, will "stick it out" for a month.
It was recommended by my doctor that I try Nuvigil because I have a tendency to become sleepy while driving, either short or long distances. I was concerned that the drug may be habit forming but he reassured me that I would not have a problem with it. This medicine appears to be working well with no noticeable side effects thus far, 2 weeks.
As a working mom, I literally do not have time to nap during the day. It finally became enough of an annoyance that I saw a doctor for the first time in 7 years. Moral of the story, I was diagnosed with narcolepsy and prescribed Nugivil (250mg). I am not thrilled to be taking a (possibly addictive) medication the rest of my life, but I want to explore my other options (rather than consume 3 energy drinks/day). So far, I have only been on it a week and after the headaches and no sleep wore off, I now get only a short time where I feel like I am ALL there. To say I gave it a fair shot, I am going to stick it out for a month.
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