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Reviews for Nuvigil to treat Chronic Fatigue Syndrome
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8.0
I began suffering from Chronic Fatigue Syndrome about a year ago. Didn't know I had it, just knew I was sleeping more than I was awake. Just diagnosed in January and have been taking Nuvigil since then. Started at 150 mg a day, but it wore off by mid afternoon. Have since increased the dosage to two pills a day. I take the second pill in the afternoon and it keeps me going for another 6 hours or so. I haven't had to take a nap since I started taking the medication and I am able to concentrate more. I feel more alert and can get much more accomplished during the day. I don't have trouble sleeping or staying asleep. This medication has been a miracle that has given me back my life.
108 users found this comment helpful.
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Got a trial prescription for Nuvigil 150mg tablets, first day was incredible, but after a few days the effectiveness was greatly diminished. Still worked but did not have the same effect as day one. Worried about using it regularly since it is not covered by insurance and without that the cost is outrageous ($330/30 tablets). Does not leave you nervous like Ritalin, and lasts longer than Provigil. Worth trying if your health care plan covers it.
84 users found this comment helpful.
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So far I love Nuvigil. I can actually go all day without needing to lay down in the afternoon. I suffer from Fibromyalgia and Chronic Fatigue. I may need to bump it up as 150 mgs. does not seem to make me as awake as it did the first week. I like the way it makes me feel awake but not nervous and jittery like Ritalin did. I can now work a shift and actually come home and do chores around the house instead of lay down. I have had no side effects so far and have been on it a month.
73 users found this comment helpful.
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I am on Nuvigil now and have been for several months. I take the 250mg tabs. Before Nuvigil, I took Provigil for over a year and my doctor told me that Nuvigil was a new refined version of Provigil. They work great for a while, then your body gets used to it; I will go a day or two without it and it seems to work better that way. My insurance did not want to pay for Provigil, so my doctor wrote a letter that it was imperative for my quality of life, so they started paying. When I switched to Nuvigil, nothing was ever said about it. It does make me more alert, but I can still lay down and take a nap while taking it. It is sure better than nothing, Or I would be in bed 24/7 as before.
48 users found this comment helpful.
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Have been on Nuvigil 150 for about a week for MS related fatigue. It gives me energy to stay awake but after 7 or 8 in the evening, I am beat. Only problem is I don't sleep well and my appetite is nonexistent.
43 users found this comment helpful.
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I suffer from SAD and dealing with people and students (yes, I understand the irony of the career choice) on a daily basis leaves me burned out most days from the stress of teaching to 300 students and dealing with people, in general, but a simple combination of Xanax (0.25 mg) before a class and daily Nuvigil (75 mg) completely erased the problem. I work all day, I'm calm and focused in classes, and with a Xanax (0.5mg) before bed I sleep a full night without problems.
36 users found this comment helpful.
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I never have side effects from medicines so I foolishly took Nuvigil without reading the literature. Couldn't figure out where the headaches, fever and general feeling of 'being sick' came from. Palpitations, the tingling in extremities, feeling as though my mind was always two steps ahead of my reactions...just too much. I feel fortunate nothing worse happened.
31 users found this comment helpful.
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I have Chronic Fatigue Syndrome and was prescribed Provigil, insurance denied coverage. Doctor then gave me samples of Nuvigil 150mg. WOW! what a difference, first couple of days a few heart racing minutes but then after that, it was great. Ran out so asked doctor to order at pharmacy, insurance denied again. When I take Nuvigil I can work all day and sleep just fine at night, instead of taking a 3 hour nap after school and then back to bed at 8PM. I have so much energy, I take it at lunch time, this way it won't wear off too soon. I have skipped days to make samples last and there is definitely a difference in my quality of life. Actually I HAVE A LIFE when I take Nuvigil.
30 users found this comment helpful.
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I have been on Nuvigil for about year and although my body is used to it, it still works and is crucial for my quality of life. I have had numerous surgeries on my spine, plus a lot of my tendons have torn (both rotator cuffs) plus both my Achilles have tiny ruptures, leaving knots on the back of my heels. My body is falling apart, but at least the Nuvigil keeps me at a pace I can handle. Two weeks ago my insurance failed to pay and my doctor gave me sample of 150mg (I had been on 250mg before). Now I am out of it all and I have crashed. My nurse called and said that it had been approved for 6 more months, so I actually get to pick it up tomorrow. Maybe I will be able to get out of the bed now and get things done.
28 users found this comment helpful.
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After being in the Military many years, I have been through a lot. I have severe fatigue. I pushed myself in the past to the point of falling asleep while standing. Just pushing myself because it's not fun being fatigued, and on the couch, sleeping tired, etc. I also deal with a lot of pain, Blown disc: back, neck and past surgeries on top of it all, and more. And that alone will wear on ones mind to fight it off. This is only my second day taking Nuvigil, so far I have noticed more mental concentration, and sensory perception: eye-sight, hearing, smell, and taste. I am sure more is still to come. Right now I can not fully rate Nuvigil because of my short duration of taking this medicine.
As of now I am basically still fatigued physically.
24 users found this comment helpful.
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I have chronic fatigue with my MS. I tried Provigil several months ago but it gave me a severe headache and I felt spaced out. Tried Nuvigil just today and felt jittery in the early part of the day and a bit light headed but I think I'll stick with it and see if I get the benefits others describe. I didn't take a nap as usual today and I hope to feel more focused and energetic with my job soon.
19 users found this comment helpful.
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Wow, since taking Nuvigil I am able to task busily all day without afternoon nap and general fatigue. It also has increased my adult cardio activity beautifully (if you know what I mean). I was a little jittery the first day and waited a week for 2nd try. Now 4 days into it and awesome. Hope it stays working like this.
18 users found this comment helpful.
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I have had chronic fatigue syndrome for over 20 years and it controlled and stole my life. Nuvigil has given it back to me. Prior to Nuvigil, I would collapse at around 1 pm and have to sleep around 2-3 hours, then I would have to go to bed by 9 every night. Now I am living an almost normal life. I don't need naps and go to bed at 9-10pm and find that my mental alertness is greatly increased (i.e. it seems to counteract "figrofog"). Drawbacks are increased blood pressure and insurance won't cover it.
18 users found this comment helpful.
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I have struggled significantly with fibromyalgia and chronic fatigue syndrome since 2007. I am mid 30s. The CFS is much more debilitating than the fibromyalgia. Nuvigil has been the only treatment making a significant difference. I can now function much more than 3 hours a day. Nuvigil is changing my life.
16 users found this comment helpful.
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My nervous system is extremely sensitive to this medicine. However I take a fourth of a 150mg tablet every 5 hrs or so. This keeps my nervous system in check and my POTS symptoms subside. Sometimes it gives me cold hands and feet and anxiety however it is worth that compared to the brain fog with POTS.
11 users found this comment helpful.
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Since starting on Nuvigil, I have yet to take my afternoon nap. I take Nuvigil each afternoon around 12:30 which will last until 9 pm, right when I'm about to hit the bed. Works like a magic. But I still need something to give me extra boost. However, I feel 90% recovery. It also helps with concentration but not much. Does make you feel good.
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I have been on Temodar 315 mg for 5 days once a month maximum dose of Avastin every other week for 8 months and will continue 4 more months before going on just Avastin. I had a cancerous brain tumor removed then radiation. All of these treatments cause "profound fatigue," yet no relief for this is covered by insurance. Physically I can function fine except for the fatigue. My condition is not really curable at this point in time, but I want to at least be able to do something with the time I have left, even if it's nothing more than take a walk with my wife. 150 mg daily of Nuvigil has allowed me to do this. Medicare nor supplement cover it. Ritalin shot my blood pressure up to 200/100 and a trip to the ER.
10 users found this comment helpful.
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I have CFS/Fibromyalgia as a result of a TTP episode that almost killed me. Ever since the TTP episode I have never been the same. I had to leave my job that I loved dearly. The Fibromyalgia has destroyed my quality of life as I knew it before my illness. I started seeing a Fibro Specialist who worked with me and came up with the idea to try Provigil to increase my quality of life. That worked great but the problem was the cost and insurance not willing to cover it. So, we decided to try Nuvigil because it was half the cost of the Provigil (over $600 for 30 pills), Nuvigil I could get for about $311.00 for 30 250mg tablets but insurance still won't cover it for my conditions. This gave me my life back to some degree.
Nuvigil works so well that I am now able to function in most aspects of my day. Before Nuvigil, I was hardly able to perform activities of daily living. Now, I am able to do grocery shopping, run errands, etc. I am much, much more alert. I had tried Ritalin before Nuvigil and Ritalin made me a nervous wreck whereas Nuvigil is easy and without the shaking. The cost of Nuvigil is outrageous.
In my opinion, there are a lot of pros and cons for this medication. I took it for a while with no ill effect, but something must have changed, and it made me feel extremely ill (dizziness, heart palpitations, nausea, headache.) I stopped taking it because of this and definitely noticed a difference. I think that taking a half a pill every few hours has eliminated my problems with the medication and works to keep me awake and focused for longer.
I have a very rare autoimmune neuromuscular disorder that causes many symptoms, including weakness. I find that taking Nuvigil 150mg daily helps me with having a little bit of more energy and also improves my mood. My cravings for carbs has decreased, which is good as I now eat foods that are better for me. Luckily, my insurance has paid for it.
I had to fight with insurance to cover my Nuvigil but finally got them too. I have battled to get my hypothyroidism optimized for years and even when I had it at a pretty good level, I was always tired. The Doc labeled it chronic fatigue and the Nuvigil has made a hug difference. I feel like I can finally keep up with everybody else and don't have to stand up at the back of meetings at work to stay awake. Nuvigil did have some strong side effects at first (headache, nauseous, lack of appetite) but they were pretty much gone after a week or so.
Started taking this for extreme tiredness a week ago after my exhaustion level rose to unacceptable levels. In previous Multiple Sclerosis episodes I had been on Provigil, but stopped taking it due to severe headaches, and found I didn't need them anymore anyway. So far I haven't had any headaches and my mental alertness is significantly higher. My physical energy is still low, but has improved some. I can make it through a quick shopping trip without having to sit down and rest. I'm hoping that continued use of the medicine will build up my endurance level over time.
Have been taking Provigil for several years, after a head injury, to help with fatigue and focus. Lost my job, and no health insurance, so decided to try a 14-day free sample of Nuvigil while waiting for prescription assistance. Was taking 100mg Provigil 1-2 times a day and it helped a lot when I needed it (I went through phases of taking and then not taking it as needed).
On Nuvigil, I was severely manic yesterday (2nd day at 150mg) to the point where my friends were concerned about me. Felt jittery, and my friends said it looked like I was high. Felt a little like the couple of days when my doctor tried me on Adderal.
I think I will wait until I get the Provigil approved.
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