WHAT YOU SHOULD KNOW:
Sarcoidosis is a condition in which inflammatory cells collect in tissues and organs. These cells form granulomas (lumps) in the lungs, skin, lymph nodes, or eyes.
You have the right to help plan your care. Learn about your health condition and how it may be treated. Discuss treatment options with your caregivers to decide what care you want to receive. You always have the right to refuse treatment.
Surgery may cause bleeding or an infection. If not treated, granulomas may cause further damage to your lungs. You may have trouble breathing and feel very tired most of the time. Granulomas in your brain may cause problems thinking, remembering things, and controlling your actions and feelings. You may have loss of vision or hearing, or seizures. Your heart may be affected and this can be life-threatening.
WHILE YOU ARE HERE:
is a legal document that explains the tests, treatments, or procedures that you may need. Informed consent means you understand what will be done and can make decisions about what you want. You give your permission when you sign the consent form. You can have someone sign this form for you if you are not able to sign it. You have the right to understand your medical care in words you know. Before you sign the consent form, understand the risks and benefits of what will be done. Make sure all your questions are answered.
- Steroids: This medicine helps slow down your immune system and reduce the symptoms of sarcoidosis.
- Cytotoxic medicines: These decrease redness, pain, and swelling and help slow down your immune system. .
- Pain medicines: You may be given a prescription medicine to decrease pain and swelling. Do not wait until the pain is severe before you ask for more medicine.
- Blood tests: These are done to look for signs of inflammation. They may also check for liver and kidney function.
- Urine test: These are done to check for blood in your urine. This is a sign of the condition affecting your kidneys.
- Chest x-ray: This is a picture of your lungs and heart. It may show granulomas, fluid, and other problems.
- CT scan: This test is also called a CAT scan. An x-ray machine uses a computer to take pictures of your brain, lungs, muscles, and bones. You may be given a dye before the pictures are taken to help caregivers see the pictures better. Tell the caregiver if you have ever had an allergic reaction to contrast dye
- MRI: This scan uses powerful magnets and a computer to take pictures of your brain, lungs, muscles, and bones. You may be given dye to help the pictures show up better. Tell the caregiver if you have ever had an allergic reaction to contrast dye. Do not enter the MRI room with anything metal. Metal can cause serious injury. Tell the caregiver if you have any metal in or on your body.
You may need to have surgery to remove granulomas that cause severe signs and symptoms. Caregivers may use lasers (light beams) or dermabrasion to remove or smooth skin lesions.
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The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.