Cleft Lip And Cleft Palate
GENERAL INFORMATION:
What is it?
- Cleft lip and palate (PAL-hut) are common birth defects (problems). Your child's lip and the roof of his mouth did not grow together normally. Cleft lips may look different from one child to another. Some clefts may only be a small notch in the pink part of the lip. Other clefts may have an opening into the floor (bottom) of the nose. With cleft palate, there is a hole in the roof (palate) of your child's mouth. The palate has a bony part (hard palate) in front and a soft part (soft palate) in back. The cleft (opening) may be in the hard palate, soft palate, or both.
- The cleft (opening) may be on one or both sides of your child's lip and palate. If it is on one side, it is called a unilateral (u-nih-LAH-ter-al) cleft. If it is on both sides, it is called a bilateral (bi-LAH-ter-al) cleft. The uvula (U-vew-luh) may also be split. The uvula is the tissue hanging down in the back of your child's throat
What causes cleft lip and palate? In many cases, caregivers do not know why cleft lip and palate happens. Your child may be more likely to have a cleft if a family member had one. Medicines taken during pregnancy may cause clefts. The clefts happen early in pregnancy, often before the mother knows she is pregnant. Medications, infections, smoking or alcohol taken during pregnancy may cause clefts.
What care will my child need?
- Your child may have problems sucking and gaining weight because of the cleft lip and palate. Caregivers will teach you how to use special bottles, nipples, or other supplies to feed your child. Clefts can be fixed with surgery. Talk with caregivers to find out when your child can have surgery. Surgery is done as early as possible. This may decrease your child's chance of having problems eating, growing, and talking. When surgery is done depends on your child's health, weight, and the kind of cleft he has. Your child may need more than one surgery as he grows.
- Feeding problems may allow liquids to back up into your child's ear canals. This increases the chance of ear infections, which may cause long-term hearing problems. The cleft may also cause your child to have problems speaking normally. Your child may need speech therapy as he grows.
- Your child may need special dental care as he grows. This may help his teeth grow in the right way.
Support: You may feel sad, ashamed, or angry because your child has a cleft lip and palate. You may blame yourself and think you have done something wrong. These feelings are normal. There is nothing you could have done to prevent your child's cleft lip and palate. Talk about your feelings with a caregiver or with someone close to you. Ask caregivers about support groups for parents of children with clefts. Such groups may help give you support and teach you more about your child's condition. You can contact the following organizations for more information:
- Cleft Palate Foundation
1504 E. Franklin St, Ste. 102
Chapel Hill, North Carolina 27514-2820
Phone: 1-919-933-9044
Web Address: http://www.cleftline.org
CARE AGREEMENT:
You have the right to help plan your child's care. To help with this plan, you must learn about your child's health condition and how it may be treated. You can then discuss treatment options with your child's caregivers. Work with them to decide what care may be used to treat your child.
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