I have been dealing with what I feel is a severe neuropathy for quite some time. I can't sleep because anything touching me feet (i.e. sheets or blankets) burns, I can't walk by the time I get off of work and the pain is so bad at nights when I get home I have to excuse myself so my girls don't see me crying. I've been tested for diabetes and Vitamin B deficiency and they both came back negative. Mayo has declined to take me on as a patient as they don't feel there is anything futher they can do for me. I'm trying to get in to a few additional health facilities but until that time I'm barely making it through work without crying. If I have to run an errand after work, I would love to have a handicap sticker so I don't have to walk as far. I just need some hope - is there any way that a neuropathy is cause to get this type of help? Thanks to anyone who can provide any kind of insight!
7 May 2013
You can probably get a handicapped sticker. That will certainly help if you don't have to walk the extra distance. Has no one tried Lyrica or gabapentin for you? I worked for 45 years with severe burning pain in my back feet and legs. Disability is pretty hard to get if you can't show x-rays of structural damage.
8 May 2013
What is causing your neuropathy? Mine was from chemo. I, also, suffered from severe depression. I got disability, but, when I turned 65 yrs old, they sent me a letter saying I was no longer eligible for disability benefits, but, of course, I get SS. Have you looked in your local newspaper for a social security disability representative? They talk to you and if they know you are disabled from the info you give them, they will help you get the disability and will not charge you unless you win. They will give you good advice.
Good luck. I know what it is like to try and work and hurt all over. You do have to have documentation from your doctor that you have neuropathy.
8 May 2013
It is fairly simple to get a handicapped parking placard. As long as your doctor will sign the form saying you need one because you cannot walk more than 200 feet without assistance, your county will give you one. SSDI is very hard to get. Usually, you have to have a chronic/catastrophic illness like cancer or heart condition, or have multiple less serious chronic conditions. Even then, it can take years to get approval of SSDI. I get SSDI, but I have incurable cancer, cardiac arrhythmia with pacemaker, hypogammaglobulinemia, peripheral neuropathy and migraines.
8 May 2013
In our state the state provides the handicapped swing tag. Letter from the doctor on the state form does it.
Disability can be automatic for specific diseases. Call your local social security office and ask them about your condition. They are the best guideline as to the possibility of receiving benefits and they will tell you what is needed. You have neuropathy, uncontrolled pain, underlying conditions causing the neuropathy and so on. See what they require to save yourself time in application. Be sure you have specific diagnosis terminology.
It is essential that you have tried everything before you can get disability if your condition is not automatically approved. (mine was) Have you used a pain clinic or specialist? Are you seeing a Neurologist or other specialist? All of this would be important.
Happy to answer more questions if you have them. Karen
9 May 2013
You DO have a few medical issues going on so far, severe neuropathy (oh SO painful and so hard to treat!!) and depression. As kaismama has indicated you need several chronic illnesses or as Kathy and Karen have said, one catastrophic illness to acquire disability. (These women are sharp and they know their stuff)!!
It is probably a good idea if you hire an attorney, as was already said, I'm just reiterating and being redundant. : ) I had DDD, herniated/bulging discs, fibromyalgia, chronic muscle spasms, neuropathy, panic attacks with a side of depression, just to make things fun, and I was denied, even WITH all my medical records! I had a shrink, a neurologist, a rheumatologist and my GP pulling for me, with letters confirming the fact that I could NOT work, to no avail. So, my long-winded point is, you NEED an attorney who specializes in disability cases to fight for you!
There is one bit of advice (unsolicited : ) that I have for you, MepoMom, when you quit working you may find yourself a bit more depressed, I certainly did! If you could work part-time it may keep you in touch with the outside world, help your self esteem and just make you feel good... IF you are a social woman who enjoys people, do NOT quit that job, if at all possible, just go part-time. (Working also keeps your mind off of your neuropathy.) I don't know the laws regarding a disabled person working part-time, yet the word 'disabled' sort of says it all, you probably can't work at all if you want to be granted disability monies.
I hope what I've written makes sense, as I've had several interruptions and gabapentin makes me SO very goofy! But it IS actually helping (FINALLY!!) with my neuropathy @ 900mgs 3 times a day.
I wish you the best in your endeavor to be diagnosed and treated properly AND to get the help you need with disability!
4 Nov 2013
MepoMom, you may have what I have? Have you had a Punch Biospy done to test for small fiber neuropathy? I was found to have small fiber neuropathy and fibro. too. My pain and numbness is throughout my body and unlike many people mine has not been able to be treated by any medications tried and we have tried them all (that are out right now). I just found this site and read your comments. I wish you well, I do know how hard it is. ToriOr
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