Ok all you brains out there! I have a new condition, & I want someanswers my doctor did not give me. You all know I have Lupus, failed back surgeries, Fibromyalgia, mitral valve leak, A-fib,osteoarthritis, osteoporosis, & the new one is tadah:high blood pressure! Has always been very low, was given my stress test in Dec. & echocardiogram=ok. BP was, and usually is low like 110/60. Haven't felt well & for some reason decided to check it. It was 190/100. That was yesterday & still today 190/100. Seen my doc yesterday & put on Furosimide which according to this site interreacts moderately with everything else I am on! What I haven't mentioned is I also have vasculitis of the brain. ok, no smart alec remarks about that! What I want to know is if anyone knows if that raises my chances of a stroke any sooner with the deep white matter vasculitis? If I'm not on tomorrow you'll know what happened!
Vasculitis of the brain - will it increase my chance of stroke ?
- 22 Feb 2012 by Anonymous
- high blood pressure, osteoarthritis, pain, fibromyalgia, systemic lupus erythematosus, blood pressure
Added 22 Feb 2012:
Yes, friends, I am still here this morning.Echo mention a list of my meds so here goes: furosimide 40mg, atenolol 25mg, omprazole, actifed, oxycodone 15mg, benadryl 25mg, Forteo 20mcg,alprzazolam 3mg, taken off Lyrica yesterday altho site shows no interreaction with furosimide. I have allergies to about everthing imaginable too is why the benadryl & actifed. The most noted interreaction was furosimide & Lupus erythematosus, as use of furosimde has been associated with exacerbation of activation of systemic erythematosus. Therapy with furosemide whould be administered cautiously in patients with a history of Lupus, Altho' I believe I have been in a flare as of recent anyway. I haven't done or added or taken away anything lately. thought the selling was Lyrica, but now 2 days off, no difference. Tought some might be allergies, but meds aren't helping with that either. Not the usually running nose & itchy eyes, just swollen & don't know how long the BP has been high, just checked it 2 days ago because as I said tis usually very low. Hopes this helps. Going to have to pick up a port a potty to take the dog to the groomer & have my jaw xrayed today! Oh, I talked to EliLilley for my monthly check up with the Forteo, & the nurse checked & 7% had an increase in BP in trials with Forteo & 6% in placebo. I'm on month 15 now. Wasn't there in Dec. at month 12.
Added 22 Feb 2012:
Went to the neurologist for memory probems (short term) so he did an MRI of my brain, here is what it said: Diffuse athropy, no mass, no hemorrhage. Mutiple foci or increased signal intensity seen in deep white matter of the brain. They are non-specific & could be related to microvascular ischemia or vasculitis. Next day I went deaf in a snap in left ear! Sudden Deaf Syndrome. so another MRI with dye (which I got hives from) No acustic neuroma. There is prominet subcortical & periventriular siganl abnormality, suggesting chrontic changes of small vessel ischemic change. Tttthhhaaat's it folks! (As Porky Pig would say!)
22 Feb 2012
Yes Mary, I am answering you!! Did they do a biopsy of your arteries in your head,or did your doctor merely make this diagnosis off the top of his head? They thought that I had vasculitis at one point, but to confirm I had to have biopsies of the arteries that lead to the brain. (Hurt like a bitch too, but the Dr. didn't believe in giving someone on pain meds, more meds UGH!!) Anyhow it was ruled out, but the treatment is high dosages of prednisone. If it is under control, it will get better and better, but takes a while... anywhere from nine months to several years if I remember correctly. BUT, don't just take a doctors word for it, unless they do a biopsy. Love you!!
22 Feb 2012
OK Mrs. Mary i have no idea what to say only that i will say a prayer for you. I know that both of my parents have HBP and most of the male men in my family as well. Being of hispanic origin they tend to drink tons of teas to help control HBP. I have on cousin who swears by it. I will get the name of it for you if you like. I really cant help with the other conditions, but i will give it to the good Lord above to help. oh and by the way the last comment - NOT FUNNY! LOL - have a great night & God Bless - Nena
22 Feb 2012
Dearest Mary of the Many Numbers - I'm guessing ur already asleep but wanted u 2 know I'm here too. Called my sis (she's a nurse practioner), emailed the doc I work w/, & dragged out all my neuro & med textbooks. Especially concerned cause you mentioned white matter vasculitus. Not a part of the brain anyone goes plundering around in although as has been mentioned, biopsy the safest artery. First thought - I'm guessing u have a rhuematologist 4 the Lupus? Lupus can do fun wacky morphing things like go from basic 2 adding different subsets like lupus vasculitus & head 2 the brain (was that a pun?). If u have halfway decent insurance and/or don't mind putting up a fight - somehow I think you'd be fine w/ that :) - PET scan should show more of what ur looking for. Hypertension increases risk of strokes & heart attacks all by itself but there's so many good meds around now.
Ur right about interactions - to varying degrees they interact w/ everything. Since I too am the chick w/ way 2 many diseases, disorders, & syndromes & am basically a walking pharmacy, I *hate* getting new meds tacked on. Without knowing what ur taking, I can only tell u what I do. Most of my meds have interactions w/ each other so I have the 3 prong approach - a good indie pharmacy (even the non-pharmacist has a B.A. in chemistry), a backup pharmacist/friend from the hospital I used 2 work at, and lots of research! Also don't want 2 leave out hubby - since so many drug interactions have 2 do w/ when u take what, he set up a spreadsheet that helps me keep track of when I can or can't take something. If u wanna send me a list of ur meds, I'll get my hospital pharm/friend 2 look it over. I take a drug similar 2 Furosimide & I did have 2 do some rearranging on when I could take what.
That's all I've got in the way of info 4 now. I was so excited cause I at least temporarily got my Soma back & actually slept. Woke up, saw this, & freaked. U know how great you've been 2 me. Desperately wanna give back, just want 2 make sure I don't get anything wrong! So 4 now, sending u lots of loving light. TTFN
22 Feb 2012
Hi Mary Sweetie,
I can't really answer your question either but I do know we need to get that bp down!! Oh and no more jokes about you not being here. What on earth would we do without you? Just wanted to let you know I'm sending prayers your way.
Love ya bunches -Terri-
22 Feb 2012
Sorry to hear about all your problems. I can't offer any good advice only to let you know that I'm praying that someone out there has the right info. It seems that lupus and all the different drugs tend to cause our bodies to go through hell and back sometimes. Wish we could find the right pill to make it all go away.
22 Feb 2012
Hey Mary, I really don't know much about your conditions except that hypertension does raise your risk with strokes. But it is usually easily controlled with meds. Just be sure to discuss the drug interactions with your doc. I wish you the best and I'm certainly sorry you are going through so much, I will pray for you! Lisa Z.
22 Feb 2012
Oh Mar, I so pray that it's the Lyrica and after a week or two your bp goes back to normal. You are scaring the tar out of me as well as Criss!!
Please take your BP several times a day to find out if there are spikes at certain times? Maybe this is stress related, God I pray it is!!
Don't blow this off either my dear friend!! I'm so glad you called your doc right away!! You-know-who wouldn't have done a damned thing, would he?
Keep taking your meds and try to relax. I know how busy you are, but you need a little time off to do nothing. Maybe it will come down slowly if you slow down a bit?
Love you lots n lots!!
22 Feb 2012
Drop the Actifed tooMary! Pseudoephedrine will shoot your pressure through the roof if you have high blood pressure! Actifed has pseudoephedrine as the decongestant I believe and that is a no no with HTN. I cant believe they didnt jump on that one first for you to d/c. All the water retention is probably what is driving your pressure up along with all of the stress you have had lately. Watch your caffeine intake too-cut out all you can! As you know, HTN or hypertension increases your risk of stroke. Whether or not the vasculitis raises that risk, I'm not sure. Let me do some research on that one and get back to you! I had to quit Lyrica myself because of water retention. The furosemide should help to pull off all that fluid, once you are diuresed, the constant peeing will stop.
Do be sure that you are still drinking plenty of water-this flushes and cleans everything out and speaking of that-did he put you on potassium? With furosemide you need a potassium supplement or you are going to get hypokalemic and be in more trouble so if you dont take potassium supplements then call him today and ask about it!! Dont rely on dietary intake-its not enough! I'm surprised he didnt give you more Atenolol too. 25mg isnt a very big dose-thats not new is it? Unless your heartrate is too low. What is the heart rate running? He may yet raise that if adding the lasix (furosemide) doesnt do the trick or add another antihypertensive. Watch the salt intake too because salt causes you to retain water as well.Let me check into the vasculitis and I'll see what I can find. Take better care of yourself Ms Mary!!! lol
22 Mar 2012
Hi, my name is Jerri, I sign in "Bookjerri".
After "All you brains out there", I read forward and noticed each of those wonderful abnormalities you have been diagnosed with, I was too. It would have shocked me a years ago to find this sameness, not now. I swear the strangest of these things sort of group up together. I thought I had cancer I had terrific bone pain, so I didn't care to hear a great deal about ithe brain new information from the MRI & made them make a "must have" case for the meds, I ended up taking some and 8 years later I am not taking steroids anymore. Not certain if related, might not be, but the headaches which were from hell are infrequent & generally if not often due to high stress, high activity related. I swear I am alive and will not have a stroke because i was so anxious over repeated bad news, I found a compassionate Dr. who put me on low level of Xanax.5 x3 (we worked up to that) and 1mg klonopin x2 a day. The dr. had known me for years & forme this was right, however thinking flexibly like this would bloww most MD's minds. Maybe mymed would give you a heart attack, I doubt it & I don't care if I'm medically addicted, I am alive. Stay away from teaching hospitals for this, not a good idea. A patient broad minded neurologist or even a shrink that will talk with your neuroogist might be helpful. Just don't give up . You aren't going to have a stroke or some disaster if you calm down. I also suggest lots of what makes you even a tiny bit happy,added to your life. I'm into projects and keeping my 74 year old husband alive. Remember, I'm just a retired English teacher, not a doctor. Good luck. Fill your mind with what you enjoy. Sorry if trite but it's what I did for me and I'm still here.
be well, Jerri
4 Apr 2012
my husband has vasculitis of the brain. It started 1y 1/2 ago only diagnosted in Feb. He went down hill very fast. Working on his house a year ago, now on his death bed. Hes been to OSU and Cleveland Clinic. This is so rare. The Drs. around here dont know how to deal with it. So get help ASP I hope you have some one that knows how to treat it. Good Luck
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Systemic Lupus Erythematosus - Does anyone mind telling me how they were diagnosed. I just went for?
... a blood test today. Wont get results till Monday or Tuesday. It was an ANA test, are there any other more in depth tests or or is that pretty ...
5 answers • 1 Oct 2011
I am a 30 yr. old mother recently diagnosed with Fibromyalgia & even more recently Lupus. Within 2 yrs. my life has flipped completly! From a MMA ...
2 answers • 17 Dec 2011
... disease to say the least. I got diagnosed at 17 yrs old so I have been through a lot. I'm in a flare up right now and have to postpone my ...
8 answers • 3 Aug 2012
... plaqunil & cellcept? Also, I understand lupus has over 100 different signs/symptoms, however I would like to reach out to other lupus ...
6 answers • 12 May 2013
I was diagnosed with fibromyalgia 11 yrs. ago and lupus 6 yrs. ago... dealing with both has been rough... some days I don't know which is ...
1 answer • 7 Nov 2013