13 Aug 2011
The prognosis for interstitial cystitis is variable. Many patients find that their symptoms come and go. In some patients, symptoms continue to get worse. Talk with your doctor about any potential complications specific to you.
For more information see the link below.
21 Nov 2011
I have IC with pelvic floor spasms and yes I did go into kidney failure, but it was only because I became unable to urinate and my body began to shut down. I have been diagnosed with IC but my dr's say my real problem is pelvic floor muscle dysfunction. The lining of my bladder is in perfect condition so IC is not really an accurate diagnosis, but the docs say if I change my diagnosis to PFD I won't get treatment because it's not recognized as a legitamate illness like IC finally is. I think many other "IC" patients are really PFD patients but they get grouped in w/IC because there's nothing else legitmately recognized by dr's. I have urinary retention rather than incontinence like most IC patients. My bladder does not function at all, so I have used the surrounding muscles in order to press on the bladder to urinate. After 24 yrs of using the muscles this way they became very tense & that causes them to spasm, which is extremely painful.
I self cathedered for about a year and eventually learned to relax the muscles enough to urinte. The dr's say the risk to the kidneys comes into play when the bladder doesn't empty completely. My kidneys are perfectly fine now, so I would say as long as you are able to urinate your kidneys should function fine. The risk of kidney damage comes into play if your body begins to shut down as mime did because I was unable to urinate. Hope this helps
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
There is a ruling with social security administration, acknowledging the complications of interstitial cystits. they actually know how bad it ...
3 answers • 26 May 2011
I have interstitial cystitis in remission but got back the vaginal pain that went with it. A NP asked me if I'd taken it. I said no and asked my ...
2 answers • 10 Mar 2012
Interstitial Cystitis - Any advice about IC and keeping a sex life going?! Loosing the battle in my?
... marriage! Help! Plz
2 answers • 27 Jun 2012
I had surgery to reverse an ostomy that I had for 1 year due to emergency colostomy June 2011 It failed and the surgeon put in an illioptmy. My ...
1 answer • 21 Apr 2013
... anybody else had it done and does it help at all? Like I've already had to other treatments where to put blood thinner inside my bladder to ...
1 answer • 14 Aug 2013