21 Nov 2011
I have IC with pelvic floor spasms and yes I did go into kidney failure, but it was only because I became unable to urinate and my body began to shut down. I have been diagnosed with IC but my dr's say my real problem is pelvic floor muscle dysfunction. The lining of my bladder is in perfect condition so IC is not really an accurate diagnosis, but the docs say if I change my diagnosis to PFD I won't get treatment because it's not recognized as a legitamate illness like IC finally is. I think many other "IC" patients are really PFD patients but they get grouped in w/IC because there's nothing else legitmately recognized by dr's. I have urinary retention rather than incontinence like most IC patients. My bladder does not function at all, so I have used the surrounding muscles in order to press on the bladder to urinate. After 24 yrs of using the muscles this way they became very tense & that causes them to spasm, which is extremely painful.
I self cathedered for about a year and eventually learned to relax the muscles enough to urinte. The dr's say the risk to the kidneys comes into play when the bladder doesn't empty completely. My kidneys are perfectly fine now, so I would say as long as you are able to urinate your kidneys should function fine. The risk of kidney damage comes into play if your body begins to shut down as mime did because I was unable to urinate. Hope this helps
16 Feb 2015
I recently completed six weeks of Pelvic Floor physical therapy. This included biofeedback to strengthen pelvic muscles and to learn also to relax pelvic muscles. I was placed on a yeast and sugar free diet and told to take a probiotic three times a day on an empty stomach. I am allowed no citrus plus some other acidic foods. I keep a food journal and a urination journal. This might help your problem.
13 Aug 2011
The prognosis for interstitial cystitis is variable. Many patients find that their symptoms come and go. In some patients, symptoms continue to get worse. Talk with your doctor about any potential complications specific to you.
For more information see the link below.
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