I was diagnosed with RA in 2009. I was started on prednisone, methotrexate, plaquenil, azulfidine, and folic acid. The prednisone was the worst! I think I was on prednisone for about 6 months. I have noticed that almost everyone is on prednisone daily, and am wondering why? Although I don't like taking the meds, I now know that I will probably be taking them for the rest of my life. My goal is to stay off of prednisone, but I realize that I may need to take it for a severe exacerbation. For the people who take prednisone on a regular basis are you taking it because of the pain? I am glad I am off of it, and will do everything I can to stay off.
Why are people taking prednisone as a regular med to control RA? Thought is was temporary?
- Posted:
- 7 Jan 2011 by lricciuti
- Topics:
- azulfidine, plaquenil, rheumatoid arthritis, folic acid, methotrexate, prednisone
Answers (5)
8 Jan 2011
Hi I have been diagnosed with RA, in 2000 my symptoms started. I was better during pregnancy. Recently I was on Plaquenil, but taken off it and put on Prednisone 5mg per morning and night. Because it was thought safer when trying to fall preg. I used to use it just for flare up's but in much stronger doses25 - 50mg per dose. It's a miracle drug because it takes the imflamation down within 24hrs and so too the pain away. I had to get off it though daily as it caused me to bloat up terribly and gain 5-9 kg's very quickly. I don't want to take it so I'm on nothing at the moment and I had a flare up last night! Not nice.
But Dr's say I don't have much choice if I'm trying to get preg?
Hope this helps, with your understanding of why.
8 Jan 2011
Hi Irricciuti
Re the Prednisone, as I understand it, its often prescribed to reduce inflammatory markers in the blood, so in diseases like kidney inflammation and other inflammatory conditions such as RA or PMR the inflammation can be kept down by Prednisone. I've been on enteric coated Prednisone for a couple of years and was on it initially for kidney inflammation, then again for PMR which I was then diagnosed with. Fortunately I have had no side effects at all maybe because the dose is low 7.5 mg/5 mg daily, also taking stomach protecting and bone protecting medications so maybe that has helped avoid any side effects. I'm also on Methotrexate and folic acid. If you are not happy with Prednisone, and you are okay without it, then you have to do what is best for you and your health. Best wishes bacterial
I am no longer taking the prednisone, and understand that if I would have an exacerbation that I would more than likely be put back on it. I suppose that if no relief is obtained or symptoms persist people will have to be on it as a maintenance medication. I am surprised you have been on prednisone for a few years, but as you say, you must do what is best for you. Thanks for your response, it was very helpful.
10 Jan 2011
I'm on prednisone until my MTX / Folic acid starts to take effect... about 6 - 8 weeks. I'm not taking a high dose 5mg (2) times a day because it irritates my stomach. I will wean myself when I'm ready because I do not want to be on the prednisone longer than needed.
11 Jan 2011
Iricciuti,
I was on and off predisone for years. When my pain (RA) would become intense, I would receive an injection. The round face was nothing considering the cumultive effect. I am in my late 50's and had to have a total hip replacement. The surgeon said it was one of the worst he had seen. Totally jelly from steriod, presidone, use. Be careful and do not always trust Dr. Do not stay on any drug more than 10 years unless you have investigated it. I now have lost a lot of my eyesight, and have no depth perspection, because of Placqunil toxiticy. Best luck.
So is the Plaquinel caused the eyesight problems and Predisone caused the level of decay in hip?? So what are you on now, may I ask?
I have been to the top retina specialists in LA. There is nothing to correct my vision except stem cell, which is 10 to 20 years away in the US. Germany and China are doing some trials. I had remicade for a few years. This ment going to the hospital and having an IV for 3 or more hours. I now am using cimua pfs 200. This in injected into your belly or thigh.I take 2 injections once a month. It is expensive but I do not have swelling or have to sit on my hands, It has been the coldest and rainyest year in LA. I was able to function without tears. I am going to China next month and hope to see a doctor. Will let you know. Best to you.
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Heidihoe,
Please do not take offense to this question I don't mean anything negative, but aren't you afraid that pregnancy will worsen your RA? Just wondering...
I was pregnant with my first child when I first had signs of pain in 2000.
I have gone onto have two more children and everytime I was preg I felt wonderful! No pain!!! I have been living with this for 10 years now so, not too worried. Why is there evidence it does?