Help, I am in a lot of pain.
30 Mar 2010
I just hope that everone suffering from this painful affliction is aware that artificial sweetners with aspartame have thrown many people into a bought of fibromyalgia. If you drinks diet drinks, STOP, if you eat (sugar free) products with a sugar sub. STOP. Try to eat as healthy and natural as possible. I have seen direct results from this change with a family member. Aspartame chemically changes and turns into formaldehyde after reaching a certain temp. I am no expert but I know this to be true. I hope it helps someone somewhere.
26 Mar 2010
I have had fibro for almost 15 years and by far the one best medication for me has been a relatively new one called Savella, which controls the pain but also has the effects of an SSIR (antidepressant - giving us the seratonin we need). It has been a lifechanging medication for me in regards to pain and being able to live a more normal life. The amount that works for me is 100 mg morning and 100 mg at night.
9 Mar 2011
Well! I have had fibromyalgia for a long time myself I am only 25 so probably for about 12 years or so. It took a very long time for doctors to figure out what was wrong with me probably thought it was in my head but pain like that can not be in your head. I hate it! I have it all over my entire body not just in certain spots. I have been on many, many medications. From anti-depressants, narcotics, NSAIDS, tramadol, numbing patches trust me I have tried it all. So, far I am now in the process of using oxycontin 20mg. 2x's a day supposed to be 3 but my insurance won't cover it but 2 times a day. plus tramadol, norco 7.5mg 1-2 at a time up to 6 times a day. I also, have a thyroid problem. Lyrica did not work for me at all. My grandfather and my mom both used it as well and it made my papaw start forgetting things really bad and have balance problems and dizziness and etc etc. it was bad. my mom takes celebrex and hydrocodone. she says it works for her pretty good.
and when she has a flair up she takes prednisone until she is finished with the prescription. I am still having problems. I just got done trying fentanyl patches 75mg. but I didn't find relief from them at all. I have tried methadone before and it did work pretty good but for some reason it made my skin breakout really really bad. I mean i wouldn't even leave my house I was so embarrassed. But, I think it was because just after I started taking it I found out I was pregnant so that probably have a lot to do with it. I think I would like to try it again. I will say I am also taking xanax .25 mg its a very low dose but the combination with the oxycontin isnt to bad and it actually works great together for the most relief so far. xanax and valium actually do work as pain relievers as well as help with anxiety and depression which go right along with fibro. try talking to your doctor about that especially if you have a problem with agitation and anxiety that will help. just don't abuse it. it does happen. ive seen it with others. be careful with any medication like these. I am actually going to a doctor shortly for the first time who specializes in fibro. he is a chiropractor but also an m.d. if you get time look up Dr. Ryan Lewis. He sent me a video after I emailed him from a pop-up I had on my computer out of the blue one day when I wasn't even looking for fibro information. Its called Breakthrough treatments for fibromyalgia by dr. ryan lewis. he is a chiropratic physician to be exact. he is in troy, IL. you can email him at www.metroeastfibro.com or try looking that up. It gave a lot of information I was very interested in hearing. He knew more than any other doctor I have actually seen. It might teach ya a thing or two on your condition whether you can actually visit him or not. try it out and let me know what you think.
19 Jan 2010
I have seen patients really suffering with Fibro. and the doctor gave them Subutex with great results.
Please note this is Subutex not Suboxone which the word sound simular. Infact Suboxone has some chemicals of Subutex in it.
Only some doctors can prescribe this medication as it takes a special dea lic. to prescribe it. If you can not find a doctor go to NAABT.org and those doctors have that license.
Hope you get relief soon
19 Jan 2010
I've tried many many many different types of medications for fibromyalgia. I was first put on a few medications threw my primary doctor. The first drug was a NSAID (Celecoxib) which was a total joke. Did nothing, and on top of that, it's not all that great for your system. Then she tried a muscle relaxer called Flexeril (Cyclobenzaprine). All it did and felt like was taking 20 Benidryl. It was totally irrelevant to the fibro pain. I was then put on Norco (Hydrocodone) until I was able to see an Rheumatologist (that can take up to a month) who knew a bit more about the condition. He put me on Lyrica (an anti-convulsant that helps kill pain and is approved by the FDA for fibromyalgia) which helped a little. We then decided to up the dosage from 150 mg to 300 mg. The increase just made me blunt out dizzy and sick.
We tried Tramadol, and it helped, but it only got rid of some of the pain, it was also risky taking it with my anxiety medications (I was (and am still) taking Pristiq (an SNRI) and Klonopin. Tramadol is also an SNRI and the two taken together sometimes can have negative effects such as seizures. He suggested some sort of steroid treatment that sounded terrible to me, so I ended up going to my new psychiatrist (it seemed like he was running out of ideas, and was totally unwilling to try any sort of controlled substance).
The psychiatrist looked at my chart and told me that there were a number of different more effective options that haven't been given a try. The fibromyalgia that I have is strictly nerve pain, so narcotics don't work for this sort of pain... except Methadone. Methadone relieves nerve pain vs. muscular pain. Norco worked only cause it made me not care about the pain, however, it didn't relive the pain. We gave the Meth a shot, and for the first time, I felt real relief - 5 mg 4 times a day. After a little while I started to experience break threw pains. The doctor didn't want to increase the Methadone cause higher dosages make it more likely to have random heart problems / failures) So... we tried Desipramine (a tricyclic antidepressant with pain relieving qualities). I experienced very bad side effects from it (my right arm would constantly go to sleep for no good reason. When I stopped the medication, I got my arm back). The drug worked, but I just couldn't take it. I suggested Tramadol, a risky combo with the Pristiq (it makes the likelihood of seizures much more likely along with serotonin syndrome), however, the Lyrica and Klonopin both also work as anticonvulsant medications, and I have no history of seizures or head trauma. I now am totally pain free with the 300 mg of Tramadol, 150 mg of Lyrica and 20 mg of Methadone - and totally free of anxiety / panic attacks to with the 3 mg of Klonopin and 100 mg of Pristiq. Everyone reacts differently to different medications, and it took a very very long time to figure out the correct combo. One medication at a time, trial and error, starting with the weakest, and moving up to stronger, more effective, and sometimes much more addictive solutions.
19 Jan 2010
That's hard to answer, as everyone responds differently to different drug therapies. I felt drugged on Lyrica. It worked to some degree, but after gaining 15 pounds after the first 4 weeks, I knew this was not the drug for me. Tramadol was the only thing that actually provided me with full symptom relief, but with long term usage, if you stop taking it, you will experience full on withdrawal, as I learned the hard way. I am still seeking another option. I see my doctor tomorrow.
10 Mar 2011
i would have to say soma's are the best ! but i can't get them any more my pm won't give them to their patients any more due to them be addictive !strongly addictive ! and they're not a controlled med yet in s.c. but she told me they were in other states !i was on them for 2 months and didn't get addicted to them! i believe it depends on the person! if you take ur meds right u shouldn't get addicted to them!and tramodol is following soma's on the addictive list ! but my pm let me keep tramodol it's great for fibr and arthritis pain!of course she gave me another muscle relaxer but the soma's were the best !
19 Jan 2010
i haven't tried anything but lyrica i'm up to 300mg a day don't know if that's a lot or a little but it's working for me i also take other meds but until my dr. started me on lyrica i thought i was going to loose my mind, i did have a breakdown in jan. 2009 from the stress of trying to work, keep house, manage life, you know what i talking about. oh yes there is some weight gain and i'll trade that anyday for a little relief. hope this has helped you missy
24 Jan 2010
20 year background in mental health -had a bout of shingles-then prostate
problems- now all with the fibro..it totally sucks... ready to suck a shotgun.
tramadol ,vistoril ,cymbalta, marijuana, booze..so what...
i'm going to try a skeletal muscle relaxant . throw jelly beans at the grizzly bear... lots of folks will tell you about living with it..
i'm set to find out about dying with it. screw this sort of "life".
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