... am on Cymbalta and Amitriptyline but this past month I have been in pretty bad pain in my knees, hands, ankles and elbows. Do any of you use Savella (sp?) or Lyrica, and how do you like it? Side effects?
I appreciate your input.
Best,
~Jillynnie
Added 27 Oct 2011:
DC Family,
My doctor had to cancel my appointment because he was called away out of the country on emergency. I am now scheduled for next Wednesday.
Thank you for your helpful input. I got good feedback from everyone and now still unsure about which way to go! lol
Heard good things about Lyrica and then also Savella. Guess it boils down to what works best for me. Which means I will have to do trial and error over the next few months. I wish it were easier as my doctor is not close by and I feel I am wasting time with meds that are not working. 'le sigh'
Best to you all!
~Jillynnie
27 Oct 2011
Hey Jillynnie,
I have a friend who has fibro and she takes Savella with great success, though if you have any psychiatric issues it may not be the best choice. Lyrica is also a good option, it must be titrated up properly and may cause weight gain. Such a trial or error sort of ordeal. If you decide to discontinue the Cymbalta please taper off and not stop abruptly.
Good luck at the doctors and maybe do some reading on each of these meds by plugging them into the search window above. Then you can have your questions ready for the doc.
Best wishes,
Laurie
Jillynnie
27 Oct 2011
Thank you, pledge! Do you have anything sweet to go along?
I'll stop by on my way out.
Best to you,
~Jillynnie
pledge
27 Oct 2011
:-0) yes, why in fact Laurie brought some of her almost world famous danish (says its homemade).Its out of this world though! Have a safe trip Jillynne.
27 Oct 2011
Hi Jilly,
I've been wondering where you were all week? What ever happened with the out of town trip, did you win any ribbons for anything this year? I've been a wondering.
I was given Savella last year to try. But I only took it once. When I was given this med I was in heavy duty wds. It was right after my old doc left and I had been on a high dose of MsContin. All I will say is Savella and wds are not a good combination.
I can also tell you Lyrica is based on Neurotin. I asked for Lyrica once, but since I had also had a bad reaction to Neurotin my doc refused to give it to me. He said the chances are I would also have a bad reaction to Lyrica. I don't think it means that if Neurotin didn't work you shouldn't try Lyrica. It just means if you had a bad reaction, like I did to Neurotin, then don't take Lyrica.
But it is good to see you again on these boards, Jilly.
Jillynnie
27 Oct 2011
Thor,
You are so kind to remember my trip! Alas, my chili did not come out like usual. My daughter even commented on it. Lol. She asked what the heck happened, Mom? Not your usual. Ahh, well. Need to let someone else enjoy first for a change. ;)
Thank you very much for your feedback. Perhaps the best way to go would be to just increase the Cymbalta? I am on 30mg. Maybe ask about increasing to 60mg?
Thank you so much for asking about me, and answering.
Best to you,
~Jillynnie
Anonymous 27 Oct 2011
Hullo Jillynnie!!
I recommend massive amounts of OPIATES!! OK, JUST KIDDING!!
Actually, Lyrica in this gurlz opinion sux, too many side effects! But that was just my experience. You may do well on Lyrica, don't know until you try it, right?
Give that Savella a go? Let us know what your doc said/did when you get back please?
This opinion is sort of out there, but why not remain on Subs for pain? Is that a bad idea guys?
Good luck sistah!!!
Lara
xoxo
Jillynnie
27 Oct 2011
Lara,
Hey there, gurl! I am still on subs at the moment. I am seeking to use the Lyrica or Savella in addition to the subs. I am currently on Cymbalta 30mg.
Will let you know what he says.
~Jillynnie
btw - what happened with YOUR doc visit?
27 Oct 2011
My dear Jilly... Hello dawlin... where or where have u been?? I have really missed u!!! Just wanted to say that... I don't have much to add to your question..as I do not have fibromyalgia.
I can tell u that Lyrica is the kind of drug that u r either going love Or hate. U will just have to try it. There r some strange side effects. A certain %age of the population experiences them. I hope I hope that u r not one of those people becuz it can really work well if u r not n that population. Good luck with it and the other drugs to which u might change.
It was so good to see your name today.
Welcome back my friend!!! I hope that u soon start to feel better... Lv...
Jillynnie
27 Oct 2011
Hey pup,
I am getting info saying that Lyrica is good, and then some saying Savella is the way to go. I guess I will have to 'tinker' with them. I hate this, as it takes time, but I understand the process. Basically what I went through while trying to find the right mix of meds for my depression back in 1993.
Missed you too, sweet Di!
Big hugs,
~Jillynnie
Mary632009
27 Oct 2011
Should add the first 2 weeks on Lyrica I have lost 7 1/2 pounds! Yeah! I've, been sick too, but was eating good. Just another thought... Mary
pledge
27 Oct 2011
Ha! Late goodmorning Mary. ( doughnuts?) Theres still danish if you'd like one. see you later
27 Oct 2011
Hey, Jilly, I've been using Savella for over a year now. I tried all the others & the side effects were terrible for me. Savella had the least, if any, side effects, and has by far given me the best results with my fibro. My flares have really become minimal and it would be my first choice for fibromyalgia treatment. Good luck, let me know how things go.
Peace,
Teresa
Jillynnie
27 Oct 2011
Tee,
I sure hope you are feeling better today. Have you had some flareups with this weather?
Thank you for your information. I was concerned about gaining weight and was leaning toward Savella, then Mary mentioned she actually lost weight while on Lyrica. Guess I will talk it over with the doc.
Best to you,
~Jillynnie
Mary632009
27 Oct 2011
I think a lot of the weight people complain about with Lyrica is water weight becasue a side effect is swelling of the ankles, & a lot of people have this, I haven't yet. Up to 75 mg 2 times a day & actually tomorow is the 3 times a day.I don't like to misrepresent anyone here but Lyrica & neurontin are similar as both are actually seizure meds that they have found works for pain also, but everyone will react differently to each med. If Thor had a reaction to neurontin, his doctor is probably right about not trying another seizure drug. I tried neurontin, & all I did was be very sleepy, with no pain relief. My husband takes neurontin & finds it helps his pain. Everyone is different. Hope this helps with your decision. Its a kind of try it & see if it works for you or not. You may have to increase slowly & may not be able to tell the difference for awhile. My insurance refused to pay for mine in June, & I was never in so much pain being without Lyrica. Good luck Jilly...
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Thank you so much Laurie. I haven't been on DC in a while and was hoping you guys didn't forget who I was. ;)
I appreciate your help!
Hugs and love!
~Jillynnie