Christie00... a blood test today. Wont get results till Monday or Tuesday. It was an ANA test, are there any other more in depth tests or or is that pretty much it? They suspected M.S. cause of brain MRI and symptoms but now thinking Lupus. Anyone with a story to help me figure this out. I have a lot of the symptoms and always a false positive for rpr BUT confirmatory test is always negative for the last 3 years. Lady even asked... 'do you have lupus or something?'... I said 'I don't know I'm checking into it'... lol. Help!
Systemic Lupus Erythematosus - Does anyone mind telling me how they were diagnosed. I just went for?
- Posted:
- 1 Oct 2011 by Christie00
- Topics:
- lupus erythematosus, systemic lupus erythematosus, blood disorders
Details:
Added 1 Oct 2011:
And I have had protein in my urine since 1999. Had a kidney biopsy and they said they don't know why it was spilling protein, just keep an eye on it....OK. And I'm a vegetarian! Some doctors, I swear.
Answers (3)
Beepoo1 Oct 2011
Hey Christine... sorry it took me so long to get back to ya babe but I had to do a lil reseach on both dieases. They are extremely alike..both autoimmune diseases and different too. Lupis triggers the immune system whereas, M.S attacks the fatty protective layers of the nerves. They are so much alike and only differnt in a few ways! But they definately have something in common the younger girls the come after. Screening for both is intense, lupis is screened by questions doc ask you and a ANA blood test, this uncovers the autobodiessuch as the anti-dna and the anti-rna. M .S.is caued be viral and bacterial infections. In reviewing M.S. the dr has to review medical history, as well as, famiily history. Then a physical exam and an a MRI as for the M.S. patient as well as the lupis patient. All you can do is hopeand pray for the best and take it one day at at time. My prayers are w you!! I felt honored to get that message... if you need any one to chat with im here!!! ;) sincerely, beepoo
Mary6320091 Oct 2011
The only problem is if you are in remission from a disease which can happen, you will show on the low end of the scale is how my doctor explained it to me. I am having symptoms now & would probably be on the higher end. I can't remember the values, but 3 of my tests were only 150 so that is a low end. I believe it can to to the thousands.The ANA titer is the best test there is for deciding about autoimmune disease.Just my thoughts...
16 Apr 2012
Hi Christie, I was just Dx with Lupus , 6 months ago.. none of my Drs. were able to find this, and because I do have R.A, Fibro/cfs.. and Hep-C, all auto-immune disorders, I had / have thyroid problems.. my hair falling out. been getting cold sores around mouth,,I went to a dermatologist ,,She found the Lupus,, but I can remember about 12-yrs ago I broke out in a butterfly rash..OMG the 2cd flare up was just horrible painful..back then all the Dr gave me antibiotic and a topical.. Now I look back ? I had Lupus then.. BTW..the dermatologist ..said she found it through my THYROID test.. something to bring up to your Doctor... Good Luck :)
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Similar questions
Lupus Erythematosus - Is there anything that will minimize the scaring and disfiguerment of my face?
Discoid Lupus has made me a shut in, because I can't stand anyone to look at me. My face, both cheeks and accross my nose is so scalely and ...
2 answers • 14 Feb 2010 • 
1 star
Systemic Lupus Erythematosus - When I was diagnosed with sle I studied to understand more about the?
... disease. When I saw basically it is an inflammatory,histamine producing disease i came up with a simple med dose that does help me. I take ...
3 answers • 26 Apr 2011 •
Systemic Lupus Erythematosus - Anyone have menstruation issues on Plaquenil?
Sine I've started taking Plaquenil I have had iregular periods. Sometimes twice a month. I'm also on C-Quinicrine as well. Could either ...
1 answer • 1 Mar 2012 •
CellCept - I have a serve case of Lupus. I have been off all mediations for 2 years now. I had some?
... blood work
1 answer • 19 days ago •
Systemic Lupus Erythematosus - my 15yo girl has been diagnosed 16mths with lupus sle-RA-raynards.?
... Any advice? It's all a bit overwhelming. We live in New Zealand.She is under the care of a rheumatologist & takes ...
1 answer • 16 days ago •
My father is also suffering from SLE...
ANA Profile will show some positive results for antibodies...
then doctor will decide that u are suffering from SLE or MCTD... or SJOGREN Syndrome..
all these are auto immune diseases.
on basis of ana profile doctors will decide your auto immune disease..
e.g sle , MCTD... Sjogren syndrome etc..
SLE symptoms are
DRY MOUTH
frequent swelling of parotid gland [BELOW EARS]
cannot eat dry things like bread
protein in urine.
my father has this symptoms..
in SLE ... wbc count become more than normal
and WBC loss thier ability to identify FOREIGN BODIES and Body CELLS
hence they start attacking BODY CELLS thinking that they are foreign bodies..
hence problem occurs...
So I should have gotten an ana profile does that have more info? The code was (ANA IFA W/RFL IFA)
I was told at AnyLabTestNow! that the $49 test for Antinuclear Antibody was the same... and its negative. I gotta talk to my doctor Wednesday to see if its the same test. Ugh, more questions than answers! :(
Thanks doll. My ANA came back negative... what the crap? But I see my doctor Wednesday. I'm clueless now and feel like I have more questions than answers. :(
Wow! I can feel your frustation. I am also goin thru something like this..I was dx with ms in july and undiagnose in august :( know iam seen another dr and he is doing all test again, they found 11 lesions in my brain, they also did an ANA test came bck positive abnormal... My mom had lupus for 47yrs, so know they dont know if is lupus or ms... I have not had that butterfly shape in my face... Good Luck! hope everything works out for you, Im here if you need an ear or 2...
Awww thanks. I dont have the rash either, but tests show I don't have lupus. So back to the Neuro in November. Fun stuff eh? That's crazy you were diagnosed then undiagnosed! Message me anytime you need to vent as well. It is very frustrating! :)