Pulmonary Fibrosis Questions

I read that people with ankylosing spondilitis often have pulmonary fibrosis. Is this true?

I have AS and have become a little alarmed at some of the other problems this horrible disease can cause. Does anyone have an answer for me?

Posted 18 Apr 2012 • 1 answer • 1 star

How many people with idiopathic pulmonary fibrosis are on lipitor (or related anti-cholesterol?

... drugs)? The hypothesis is that surfactant (which keeps the alveoli in your lungs inflated) needs cholesterol, so if it is inhibited the alveoli collapse and you get fibrosis

Posted 6 Mar 2012 • 1 answer • 1 star

I am on Remicade since Aug. I have had four infusionns and now I find that my musles ache. My neck?

... hurt bad enough that I needed to take Vicadin and heat. Is this a common side effect? I have RA and pulmonary fibrosis so methatrexate is out of the question for me. I also have this ache in my ...

Posted 26 Dec 2011 • 1 answer •

Pulmonary Fibrosis - Has anyone had to arrange for oxygen out of the US?

Our son lives in Japan and we want to go. How did you make arrangements for a concentrator and oxygen bottles? We at 50% capacity w/out the oxygen. Thanks

Posted 9 Jul 2011 • 0 answers •

Idiopathic Pulmonary Fibrosis - Anyone take part in the IPF study M.U.S.I.C?

It's a study using the drug macitentan

Posted 30 Apr 2011 • 0 answers •

Idiopathic Pulmonary Fibrosis - is a lung biopsy a good idea at 30% capacity?

I have a good friend who has been diagnosed with Pulmonary Fibrosis... I'm trying to inform myself as much as possible about it... Should he have a lung biopsy at 30% lung capacity... I ...

Posted 13 Mar 2011 • 1 answer •

Idiopathic Pulmonary Fibrosis - what is the most important activity my husband should be doing?

He has just been diagnosed.

Posted 21 Feb 2011 • 2 answers •

How does prednisone help, (if at all) with pulmonary Fibrosis?

Posted 18 Feb 2011 • 1 answer •

Idiopathic Pulmonary Fibrosis - I have been recently diagnosed with pulmonary fibrosis, and have?

... been told that the drug pirespa has shown positve signs. This drug, as I understand it has only been approved in Japan. I have a prescription from my french specialist in france, but have been ...

Posted 3 Oct 2010 • 1 answer • 1 star

Has anyone developed Pulmonary Fibrosis while taking Methotrexate?

I was diagnosed with Psoriatic Arthritis in June last year, and have been on Methotrexate and Prednisolone for a year now. I had a cold earlier this year and that turned into a chest infection, and ...

Posted 25 Sep 2010 • 3 answers • 1 star

Chronic Obstructive Pulmonary Disease - does anyone have Pulmonary Fibrosis and what meds do they?

... take for it, I am told there is no cure and no meds for it. is this correct Pulmonary Fibrosis is there any meds for it as I have been told I have it and theres no cure.

Posted 26 Aug 2010 • 1 answer •

Pulmonary Fibrosis Treatment - what is the best one to try?

I have been researching Pulmonary Fibrosis and I have found a number of treatments available. My question to you is what treatment is the best one to give a try ? I'm not putting my hope in the ...

Posted 29 Jul 2010 • 1 answer • 1 star

I have pulmonary fibrosis and the doc prescribed acetylcysteine. What does this do for me?

Posted 26 Jun 2010 • 1 answer •

My mother has pulmonary fibrosis - she was prescribed Revatio?

the cost of this medication is &1,400.00 - medicare will not cover the medication. My mother is now at home, leaving with my dad who is also deaf, can get anyone to help me get her medicaid ...

Posted 16 Jun 2010 • 1 answer •