Cataplexy Questions

Did provigil make cataplexy worse? It did for me?

Posted 23 Jan 2012 • 1 answer •

Why do they take yor driver license haveing cataplexy and why is ther no definet cure and what are?

... The stages I will go through in my life

Posted 9 Mar 2011 • 1 answer •

How soon xyrem works?

My 11 year old started Xyrem 2.5mg 2x a night two weeks ago. Where she is sleeping better, we still see no decrease in her cataplexy episodes/drops. Does xyrem take time (weeks/months) to show ...

Posted 1 Jan 2011 • 1 answer •

Has anyone taken Xyrem while pregnant?

I'm frustrated and concerned about the lack of information. I've been on Xyrem for Narcoplepsy with cataplexy for about 6 years (3.25 g 2x / night), and am now pregnant. I'd error on ...

Posted 30 Sep 2010 • 0 answers •

My Doctor wants me to try Xyrem for my narcholepsy but I can't afford 900.00 a month. any help?

Posted 26 Sep 2010 • 1 answer •

Anafranil and side effect of tremor - will this subside?

I am a narcoleptic whose cataplexy was treated with Xyrem until I began to develop a severe loss of muscular strength that seems to have been associated with the drug. My physician has switched me to ...

Posted 30 Aug 2010 • 1 answer •

I suffer from narcolepsy/cataplexy now for 4 yrs, have been on so many medications from specialists?

is there a bit more information on this drug? why are they saying its a date/rape drug, because your in such a deep sleep. i have an autistic son and i have to be able to care for him also during the ...

Posted 23 Mar 2010 • 3 answers • 1 star

Concerta dosage for a 10 year old with nocolepsy and cataplexy?

Our daughter is 10, has norcolepsy and cataplexy. Is put on Concerta 18mg a day. A lot less cataplexy, but she still complains of nightmares and bad night sleep, also does a lot of day time ...

Posted 11 Jan 2010 • 2 answers •

How do I know if I have lost too much weight from illness? I am SCARED?

In July I weighed 126 lbs. I was a 5'2" 38 yr. woman with a healthy muscular build with Narcolepsy, REM Sleep Disorder, and arthritis all in managed control since 2005. In April I was ...

Posted 2 Nov 2009 • 3 answers •

Cataplexy - ever since I had my daughter Chloe just shy of 10 yrs ago strange things have been?

... happening to me,I spoke to a few drs.and finally got one to listen to me and I have appt @1.40 tomorrow,but scared out of my mind??? I have experienced these attacks daily,4-5 times daily.Iam ...

Posted 21 Oct 2009 • 1 answer •

Narcolepsy - Does anyone here have experience with Xyrem?

currently on 300mg provigl a day and 2mg klonopin with one 5?500 vicodin at bed, I still can't sleep more then an hour and can't stay awake either, wrecked my car for the 5th time this ...

Posted 15 Sep 2009 • 2 answers •