Is there a support group for paroxysmal hemicrania (headache)? This is a rare primary headache related to cluster headache and other trigeminal autonomic cephalagias.
8 Dec 2014
I am only 18 and suffered with headaches for 9 years. I really thought I was going to die at one stage, nobody knew what they was and they would take a guess at cluster headaches or migraines which run in the family. I was referred to a neurologist and then referred from him to a specialist in Stoke on Trent who diagnosed me with Paroxysmal Hemicrania. Indomethacin is the only medication that has helped me however they are worried that they are going to cause problems with my insides. Already I have had mouth ulcers for 6 months which are really taking their toll. If anyone has any other suggestions please tell me. I have tried everything I can and no luck, doctors are useless! I need an alternative for Indomethacin but what? Thank you for any future help!
2 Nov 2012
Hi Mom cat,
On this site there are support groups for Cluster Headaches & Migraines.
I have Hemicranial Headaches & I take Indomethacin. I am not sure what Paroxysmal Hemicranial Headaches are.
Yes I don't understand why they call Hemicranial Headaches ?? They are So Much more severe in pain than a Migraine.. I have had Severe Chronic Migraines for 30 yrs & they never caused this much pain.
This pain is so intense & gives you NO warning signs just straight Knives into your eye ball stabbing in & out clear into the brain..
Can you explain the type of Hemicranial headaches you have & what medication you take for them ?
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