Lyrica works well for me. I suffer from chronic pain due to 6 ruptured 6... 4 in my neck and 2 huge ones in my lower bato from an auto accident where I got rear ended. I believe I got fibromyalgia due to the accident. My pain is terrible to the point where I take Zofran for nausea. My pcp did blood ak my ANA came back positive possibly meaning I have Lupus. Im so nervous my moms cousin passed away @ an early age due to the disease. Im only 30 I have 3 kids. I can't work I filed for disability and go to my hearing in July... I pray I get it. Im on methadone xanax Lyrica norco robaxin lidoderm patches dyazide b/c lately my bp has been 160's/100's im not sure why and I've gained 30lbs since on Lyrica which is not good for my back. Also im anemic and take prescription strength iron. Im so depressed I wish I could be the same person I was before the accident in Sept 2010. Anyone with any comments to share... I would love to talk to someone who can relate to what im going thru :(
16 Jun 2012
Drink lots of water, add lemon or lime slices and you have a diuretic. Most people that take Lyrica tend to swell up from water weight. If you google "natural diruetics" you will see a list of foods from beef to water that naturally deplete excess water from the system. Some people believe that the more water you drink, the more water weight you will have, it's not true, just the opposite.
I've fibro as well, and I avoid all refind carbs, and drink gallons of water (ok that was an exaggeration) a day, and it seems to help. But I couldn't take Lyrica, too many side effects, but I'm glad it's working for you! I also find yoga to be helpful with fibro pain, walking, IF you are able to do so, will help greatly. But don't do these activities unless your doctor says it is OK.
As far as Lupus goes, I just don't know about that part. But there are members here that have Lupus, and I'm sure you will be hearing from them.
Please don't get yourself whipped into a frenzy over the lupus 'DX' unless your doctor is absolutely positive you have it. I have a friend (in her 60's!!) with lupus and it is NOT killing her. So, don't disparage over lupus, yet.
Lupus is not the death knell it used to be, there are meds for it now.
If Lyrica works well, you just may want to get rid of some of your meds. I'm not judging you, not at all, just concerned that you may be over medicated and that can be almost as unpleasant as under medicated.
Are you a surgical candidate, due to your discs? You may want to consult a surgeon if you have not already. Yet, surgery is no guarantee that you will feel better. Just sayin'...
Best of luck to you, and never lose hope!!
1 Apr 2016
I'm so sorry you're suffering so much. I had an accident in 2000 and it turned my world upside down, too. I take a laundry list of drugs as well, and gained 30+ lbs from lyrica. It works too well to stop, and I'm currently working my weight down. 10 lbs so far, my doc was happy.
Water is a great way, lemon water is wonderful. There are all kinds of great-tasting, sugar free flavors. I've cut out sweets except on rare occasions, and eat more fruits and vegetables. Controlling the munchies is more than my willpower will allow, so I've changed snacks. Pickles, olives, jarred sweet beets and things like that will handle any craving from sweet to salty with few calories. I'm also practicing what little yoga my body will allow (I was crushed, then basically rebuilt) Walking is difficult, but doable. I'm also able to use a stationary bike. Even when you feel like heck try to do at least a little something. It gets easier, and losing the weight makes it easier as you go along.
Best of luck to you, and I hope your depression eases. Once you see just a little progress it may lift your spirits. Take care :)
29 Oct 2014
I tried Lyrica when it first came out and gained 35 pounds in 3 months. It didn't help me with my fibromyalgia or headaches so I stopped taking it. The added weight made my knees and ankles hurt too bad to go on walks and I decided to never ever take any med that causes me to gain weight. The problems associated with being too heavy are many and you all probably know what I mean, but nothing is worth it too me. How I lost the weight it to STOP taking Lyrica. I took 4 months to lose the weight. I don't remember doing anything special either. Losing the pounds made me feel better and better making me want to do more physically and that was the trick.
I'm remembering now how when I was on it and started eating, I would never feel the "full" feeling, so I would keep eating. But I also remember that after I stopped taking it, all was back to normal.
The fact that you are feeling better with taking it would make it difficult to stop for weight loss. That's a tough one.
I have read a ton of Lyrica stories on social media and have found that more people have had negative results than positive. It has been out for what about 7 years?? Good luck to you.
1 Apr 2016
You sound like me, I was in a bad car accident, the woman was putting on lipstick and hadn't realised I had stopped, her car was a write off when she went into the back of me. I had my head turned as now my neck is terrible with pains in my arms, plus 4 prolapsed discs and one starting to deteriorate. The impact was so bad that I had a large swelling at the base of my spine with fluid in it, took ages to stop hurting and is still there.
I have Lupus and Fibromyalgia. Due to terrific nerve pains 24/7 my Lyrica was tripled. I put on 2.5 stones in 3 months which put a strain on my back and also diabetic. Of course the Lyrica helped but I stopped it and have lost 1.5 stone, still another one to go.
My GP still says it is not a common side affect but it really is. I would have stayed on steroids but for the weight gain and my hair falling out.
I am also sick a lot, I vomit if I get ill or too hot and have to take a special tablet or have an injection to stop me. Lots of food make me sick so I have tablets to take, I don't take them every day as fed up with so many tablets to take each day.
My company were just awful, I had so many emergency admittances to hospital as the Lupus affects my kidneys and my liver has always been a problem. I had to give up work on Drs orders.
I also have high blood pressure and take tablets.
I take methotrexate for my Lupus as other tablets I've been allergic too and affects my kidneys.
I did have pernicious anemia but now it is a bit better.
It is depressing, I will never be the same person, but life does go on.
Come off the Lyrica, putting on weight is depressing and makes it harder to do things. See what else you can take. I've just had 6 injections into my spine, doesn't last for ever but really helps.
1 Jan 2016
Hi, am on 600mg of Lyrica a day for hypomobility and arthritis in my back, knees and hands, unfortunately it's now starting on my shoulder and am only 34 had it for 2 years now. I started taking Lyrica 5 months ago and already i have gained over 4 stone in weight :-( i was i nice size 12 now am up to a size 20, and as you can imagine this is doing no good to the strain on my back and knees. Physios helps a little so does the injections to my back and knees but am just on a cocktail of drugs and on a strict diet but the weight still keeps piling on and there is nothing i can do about it, i wish there was another drug out there that worked without the side effects of Lyrica.
23 Feb 2014
I have searched extensively The effects of Lyrica & anticonvulsant drugs that contain Lyrica ( Pregabalin for example), I believe that the following may explain the weight gain caused by Lyrica.
Lyrica commonly causes severe vitamin b6 deficiency (which is very dangerous) One of the most dominant vitamin B6 deficiency symptoms in adults is weight gain (due to water retention in the body), search B6 deficiency + weight gain.
Also search the internet for Lyrica + B6 deficiency to be sure that I am right, ironically B6 deficiency can also cause seizures or fits which is exactly what anticonvulsant drugs like Lyrica are designed to prevent, check this yourself search B6 deficiency + seizures. Your medical doctor will not tell you this.
I believe that my wife"s myelodysplastic syndrome (pre Leukemia) was caused by severe & chronic B6 deficiency caused by Lyrica, some of the effects of B6 deficiency are irreversible so check this info now.
B6 deficiency causes bone marrow suppression & interrupts the correct formation of blood cells, can cause Anemia, & neutropenia ( a white cell for immune system) this is common in B6 deficient alcoholics, if the the suppression is prolonged the damage can become irreversible & could develop into Leukemia.
Lyrica commonly causes Severe B6 deficiency, please search the internet to verify this, it is not difficult to find.
22 Jan 2015
Hi, I have Lupus and Fibomyalgia also, and problems with my eyes. After 2 car accidents I have 3 prolapsed discs and one disintegrating. Despite having fluid loss which culminated in the bottom part of my spine swelling it has been hard to get the proper painkillers with my new GP's.
I have nerve pain 24/7 and the Pregabalin (Lyrica) does from my GP was a joke, just 25mg per day. So I was sleeping just 2.5 hours per night and only when I was exhausted. I found a way around this by seeing other Drs although I am on an at risk list due to my emergency trips to hosptial. I've now been give 150mg per day which helps with the nerve pain but nothing for my back. I have a cortisone injection app. at the local hospital in just over a week's time.
I'm worried about my weight as I have put on half a stone already.
I was on steroids for a year which really make me bloated and it was horrible to try to get off them, which I did. Now don't know what to do.
16 Jun 2012
Oh my goodness, I can see why you are so miserable! You poor dear... I feel for you. I want to add that we had a friend who was diagnosed with "lupus" and took all the medication she was prescribed for that. She started losing her hair... gaining weight... weak while still eating relatively well. She was also anemic.
I have to tell you that I couldn't take Lyrica or the headaches it caused. For some it has been a godsend... yet for others - a major disappointment (just like me).
She became involved with a doctor who specialized in diseases that mimic severe thyroid dysfunction. I want to happily report to you that 30 years later, my friend doesn't have lupus and never did. She had a severely low functioning thyroid and once she was properly supplemented with the right dose of thyroid medication (she does armour thyroid) and other medications as well... that she doesn't suffer from any of those things formerly reported. She has also gotten all of her hair back and then some. She has such a lush, thick head of hair that you would never know she ever was going bald.
I'm not saying this could be your issue but it sure wouldn't hurt to check out your symptoms by doing some research on your own. Just saying... information is key because her last doctor almost killed her with the wrong diagnosis and all the wrong drugs for that problem that never existed (except in his own mind). Too many doctors don't do enough for people as it is. My friend recommended an easy to ready book called: THYROID POWER... 10 STEPS TO TOTAL HEALTH... The amazing program to help million: conquer fatigue-depression-overweight-and other chronic conditions. The authors are a husband and wife team: Dr. Richard L. Shames, M.D. and Karilee Halo Shames, R.N., PhD.
I want to add that having read this book myself led me to be able to ask my endocrinologist more direct questions and actually receive answers that I understood. In the back of this book is a section specifically written for "doctors" and how to help their patients get better quicker. Just saying that information is power and key to making better choices when it comes to doctors and treatment plans. This helped me tremendously also when I switched from Synthroid and then Lyvoxiyl (sp) to having my thyroid medication compounded for me. After I made that change and documented how I was feeling... I also noticed that I dropped a bunch of water weight. Then after that I went on a program that allowed me to drop a total of 92 lbs. with nothing to change at the end of it. I still eat the same foods but now 3 times to 4 times a day instead of the 6 as I was losing weight. Just saying...
I firmly believe that the osteo+ stuff that I ended up with where a direct result of all the antibiotics and steroid regiments that I had been put on for too many years without considering what the long term effects were going to be. That is what my pm doctor tells me now about all that stuff affecting my joints, sciatica, spinal stenosis, muscle wasting stuff that has gone on for far too long and some cannot be fixed... just eased now. I am angry at myself for not taking better care of me before getting myself educated... I had never questioned a doctor's diagnosis before until recently (within the past 7-8 years).
My depression (RMD/wSI) has gotten much better and I don't think about that stuff any more. I also was on Cymbalta which is one of the best anti-depressants I was ever on besides Parnate (MAOI). Again, I highly recommend this book as an easy read and so helpful to me. It was and still is an "eye-opener" as far as illnesses that mimic thyroid dysfunction. I also refer back to this book if I am not feeling well. It gives me food for thought before I call a doctor to make an appointment. Sometimes I can correct the way I am eating or stop doing things that are aggravating conditions.
I know this response was really long but I hope you can grasp at what a life changing event this has been for me just because I got tired of being over prescribed with stuff that I had no idea of the consequences of those drugs. I hope you have found something useful or beneficial for you to consider while you are also on this journey of discovery because of your illnesses. Don't let your illnesses get the better of you. There is still a great life ahead of you when you put all things into perspective. I began telling myself that I was NOT a sickly person but a person dealing with issues the best way I knew how... like networking with people and reading up on things. If I go to one doctor who suggests I have some disease... I will go to someone else for another opinion and maybe a third doctor. I want as many facts as I can get before letting any one treat me any more. I got so screwed up by believing that a doctor had my best interests in mind. Once you are treated you end up as a number in their files instead of a human being with feelings seeking answers. I always want to know "why" I have something instead of a pill to take care of it.
I hope your journey is eye-opening as well and one that gives you power over "you" and who you choose to trust to let treat you as a person instead of a case number. I wish you well and I am also here if you would like to talk more about getting on a good path that helps you and informs you rather than leaving you with more questions than answers.
You did say you wanted a conversation so I hope I have given you that...
Many blessings and peace to you in your world. I would love to hear how your journey into more self-awareness and discovery about you and your health is going. There is lots that can be shared with many of our members here and many who have already given you good feedback. I hope you feel comfortable here and just know you are among friends... we all are dealing with struggles and share our efforts and challenges to better health.
Blessings and gentle hugs,
16 Jun 2012
I know exactly what your going through. I too am on alot of medications. 6 different ones. I have fibro too and cfd. Along with a few other things. I was on lyrica for a while though it did nothing for me it did make me gain 70 lbs. Now I can't lose it. I try to go out for small walks daily, but my back and hips start hurting to the point I can barely make it home. And not to mention the next day I can't even get out of bed. I think are varying degree's of fibro. Some have it worse than other's. My mom has it and she is bad. I also like you have it bad. I can barely take care of my house, let alone walk everyday. I would talk with your DR. Hope fully they can help. I wish you the best, with your SSD. And with your health. :)
17 Jun 2012
I was also on Lyrica for my fibromyalgia, & let me tell you my experience too. I had quit smoking about the same time they had started me on Lyrica. I started to gain weight, & thought for over 8 years that it was from quitting smoking. One day this past February, I hadn't felt well for about 2 days & had this really weird sort of headache. Since we keep a BP cuff around the house for my husband I decided to check my blood pressure. It was 190/100. I called my doctor right away because normally I have very low blood pressure. He saw me the same day & put me on furosemide & had me stop the Lyrica immediately. No tapering, just stop! I have deep white matter vasculistis of the brain, & could have very easily have had a stroke. The weirdest part is I lost 8 pounds of nothing but water in two days.
Over a months time I lost a total of 25 pounds of water weight. I wasn't even trying to lose weight either. In fact my appetite was ferocious & I was actually eating more than I was before. I had water weight from the lyrica all over my body, not just in my ankles as I thought. Everything shrunk. I thought I would really be miserable without the Lyrica becasue I too thought it was a miracle drug for fibro pain. Well, getting my BP down & getting rid of all that water weight helped a lot & I don't miss the Lyrica at all. Please be very careful with this drug. I am not the only one this has happened to. Just my thoughts...
8 Dec 2015
Hi I have a prolapse c6 c7 disc, degenerate disc disease and arthritis in my neck. I also have been on lyrica for 5 months now and gained nearly 20kg. It's not helping with pain even though I'm on 600mg a day plus 200mg tramadol Sr. I'm a small frame person so going from 53kg to 70kg is really uncomfortable I feel your anguish.
8 Sep 2012
Oh boy do I know how you feel. I was rear ended too. You need to pray real hard that the lupus can be controlled with all the new meds they have. I have been on lyrica for four years worked great, gained 80 lbs. I went off last month I am trying to figuire out which is worse the pain or the weight. The weight does not help the back or leg pain, but what can you do? I am taking higher doses of narcotics. I am hot all the time and sick to my stomach. At one point I was so depressed I just laid around and cried. At 43 and five years since my wreck, I still get depressed. When this happens and it will allot, leave the house, go to a friends, or just go walk through a store. Please do not feel bad about finding a mental specialist to help you, we have all been there. I wish I could hold your hand and tell you it gets better, sorry. You have learn to cope. You have to reach deep in your soul sometimes.
Honestly, I think they blame our pain on fibmyalgia because they do not really knows were it comes from. My grandmother use to say God only gives you what you can handle. I know that is hard to believe sometimes, hang in there, you have children that need you. Good luck
28 Jan 2015
You are so young to have to deal with all the pain and care for your children
while enduring it
I would encourage you to Definitely drink lots of water (like 8 glasses a day) Try to get a friend to walk with you, start slowly and increasing time as you can. If you were getting outpatient therapy, they would have you walking. It really helps. Being inactive increases pain and discomfort. Good luck to you in your quest for better health and comfort.
26 Mar 2015
I can relate 100%. I have about the same health problems, take the same MED's and I have gained 35 pounds in a little over 2 years from lyrica. Trust me, the weight gain does not slow down or stop until you can stop taking lyrica. As u start to take less & less u will start to lose weight. The lower the dose the more weight u will lose. I know its scarey to stop a medication that helps the pain so much but I can tell u first hand u won't feel worse once u are off lyrics because the combination of MED's u r taking pretty much help the same way. In the mean time, lots of water & No sweets! God bless u! I wish u the best.:)
- Lyrica Information for Consumers
- Lyrica Information for Healthcare Professionals (includes dosage details)
- Side Effects of Lyrica (detailed)
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