I am so far so pleased with the results from starting Savella for my fibromyalgia! I was exhausted days 1 and 2, but woke up day 3 with no pain! I couldn't believe it! However, I also started experiencing hot flashes through the day with hyperhidrosis. I was sweating so badly that my hair was soaked and all my makeup had run off at work. I remembered the patient info on my Levsin for IBS warned that it decreased sweating, so after checking for drug interactions, I tried taking Levsin with it the next day. Made me very sleepy, but really helped with the sweating. Are there any other suggestions? I have also read about weight side effects of Savells. I am eating when I take the Savella so I don't risk the chance of getting nauseated, but am worried about the weight gain. Have been so tired and lazy feeling for years that it's been impossible to stick to any diet or exercise program. Does anyone have comments on the weight issues as well? If day 5 is any indication of the future, I can definitely see myself getting back into being more active and having a better quality of life!
Starting day 5 on Savella for fibromyalgia with great pain relief but crazy sweating side effect?
- Posted:
- 28 Oct 2011 by Mamamimi
- Topics:
- hyperhidrosis, pain, fibromyalgia, side effect, savella
Responses (10)
28 Oct 2011
Hi Mimi,
I didn't take Savella very long, so I can't help with that. But maybe you can help me. What is this Levsin you take for IBS? This must be something new. It's not an exaggeration to say IBS has all but ruined my life. I also sweat the way you do. And Levsin can control that too? What is this stuff, can you explain it to me?
Thank You.
28 Oct 2011
Dear Mama,
I don't have any personal experience with this, but I would like to add you as a friend so I can follow up with your experience. I was supposed to see my Fibro doctor yesterday, but they had to move my appointment. I was going to ask about changing from my Cymbalta to either Lyrica or Savella. I asked here about peoples experiences with these meds as I, too, am concerned about weight gain and how well the mediation works.
Do you mind keeping us updated on your experience? I want to take as much info as I can into my doctor next week. I understand that each person is different and therefore will experience different side effects, but hey, you can never be too prepared, right? (Unless too much info throws you into a tizzy..which I have done before, too!) lol
My very best to you,
~Jillynnie
I will be happy to keep you updated, just as you said, remember that everyone's experiences are different and reactions to meds are different. I was on Cymbalta and it helped my fibro better than anything I had tried before, but never gave me the relief that I have found with the Sevella, so far anyway. I became afraid of the Cymbalta when I ran out on a Friday and didn't realize I didn't have a refill left. Had to work the following Monday on the 3rd day off Cymbalta. I became shakey, nauseous, dizzy... scared me! I got my doc to refill my prescription but talked him into weaning me off. He wanted me to stay on it and I would have if it worked great, but just good wasn't enough to keep me on it. I read all I could find on Savella before asking my doc to try it. I know there can be some bad side effects, but so far the sweating all I have had to deal with. Good luck on finding what works for you!
he was originally going to put me on Savella, but I was already on Cymbalta so he kept me on it, but tapered me down and added Amitriptyline also. I think that I could get better relief than I am getting and therefore I think I WILL try the Savella. My knees, hands and ankles have begun hurting every night and waking me for about 3 1/2 weeks now.
Thank you for this and do please keep us posted.
~Jillynnie
28 Oct 2011
Hi there
Took savella for 2 weeks and stopped,love to hear why that could be related to physc.problem..but I had and up until recently,about 5years taken lyrica I did gain weight and since I like skinny I was surprised that this did not bother me.I would say eating carefully you could gain upwards of 7 lbs. But it does seem to go away at least for me after the first year.everyone is dif. But if it gives you relief who cares! Yes?you will be moving around more and happier... good luck !c
Thanks! So why did you stop the Savella?
It did not help with pain and lyrica did.peace
29 Oct 2011
After learning about the major side effects and the FDA's warning about Savella, I did not consider taking this medication for fibromyalgia, chronic pain, major depressive disorder, or RA . Since I was taking150 mg. Effexor XR/day (i.e.,75 mg./ 2x/day) and Cymbalta is essentially the same medication, I took my doctor's advice to try Lyrica.
He slowly increased the dosage up from 50 to 75 to 150 and finally, to 225 mg/day of Lyrica. On the morning of the first day of taking 50 mg.the prior evening, I awakened to having NO PAIN! Yet, when my dosage reached 225 mg./day, I slept for two months and had extreme lethargy.
Shortly thereafter, I met a woman who told me that taking 25 mg. of Lyrica made her pain disappear! Research revealed the average dosage is around 300 mg./day; yet, for me, taking a TOTAL of 50 mg./day (i.e. 25 mg./2x/day) is an adequate dosage for my body. THAT is a huge difference from 225 mg./day!
Thanks for your comment. I so agree that we must investigate all that we can on our own. I was a bit afraid of Lyrica due to a friend's side effects from it. I am so hoping that one day there will be a cure and I won't need any meds. And I so agree with you about being happier out of pain instead of worrying about outside appearance. Glad you have found what works for you!
I agree... everyone should do research prior to just taking a pill. I like to get a full rounded intake on the medications. In other words, I look them up, read about them, I come on here and ask peoples personal experiences pertaining to them, and I talk with my doctor about them. It is important to remember that this is our body and the doctor is working WITH us to help. If he hasn't experienced the pain first hand, he is going by what he has learned. Good stuff, but actually living a life with Fibro is different than just reading about it, wouldn't you agree? My doc is good, but we are going to try a different approach as my pain has increased and I have been on Cymbalta long enough for it to do it's job if it were going to. Just like depression... it can take several medications before you find the right combo.
best to you,
Jill
31 Oct 2011
For those of you interested in my Savella journey, I am Starting day 8 on Savella and still hanging in there! Almost pain-free the entire time after the 1st two days, except for some occassional neck or headache pain which is taken care of with something like tylenol and/or some good ol stretches. My skin feels kind of different, softer in a way. Wondering if it's just that my "perception" to the sensory response feels differently. I have studied fibromyalgia and since they don't have enough information to tell me a definite cause for getting it or exactly why I hurt so badly, I am always trying to solve the mystery.
Mama,
What a GREAT post!! Thank you SO much!! I am SO glad you are getting the fantastic relief you are..this gives me much hope!
I get the ongoing questions due to our low tolerance of pain. That is truly a factor in trying to determine exactly where we are on the scale of 'addressed symptoms'. But, all in all, you actually 'sound' better, too! Like you have been able to sleep better and get through your days better. Loved the comment about rattling when you walk! LOL Boy, can I relate to THAT!!
I started some simple yoga yesterday to try and loosen up my body. I woke in the middle of the night in terrible pain in my elbows ankles and knees. And, of course my hands always feel like they have a catchers glove on them both. The don't LOOK huge but they FEEL like they should look big. Does that make sense?
Hey! "Mama",
When I was diagnosed with FM around 1985, there was no such condition named Fibromyalgia... The doctors called it myocytis, fibrocytis, etc... yet, fortunately, my PCP interned with a doctor specializing in trying to figure out the pain and debilitation relating to widespread, inexplicable pain (mostly in women).
According to my doctor, my symptoms were "textbook": 1) 22 "tender points" (they had a chart to show where the tender points were located); 2) "subjective" swelling of both hands (i.e. they felt swollen but did not look so); 3) Dropping things; 4) running into things; 5) short-term memory loss, 6) severe weakness from chronic pain, and 7) a minimal immune system.
1 Nov 2011
Hi Mamamimi! Nice to make your acquaintance! :)
I can't believe my day! This is the 2nd post (in 30") that must be floating in Drugs.com's cyberspace. gggrrr!!! (I wish I was capable of remembering everything that I just wrote. HA HA HA
Mama, I have chronic pain & use Cymbalta 120 mg every day to ease my pain. I don't believe I have FibroMyalgia (FM) even though some of my symptoms are somewhat similar.
I'm extremely interested, like Jilly & others, in your continued postings about Savella, Mama. I'm considering a prescription change soon since it appears as if I have maxxed out now.
All the best to you, Mama! I'll be watching (reading, actually LOL)
from Wendy :)
Hi LiverLips! love the name, by the way! Ha ha! Nice to meet ya! Hope you find what works for you!
5 Nov 2011
Day 13 for anyone who cares, haha! Haven't been on here lately because my job is long hours and I don't have a life the days I work. Even with long, stressful days as a NICU nurse, my pain has been minimal! Whoohoo! Have had only some pain in upper neck and headache, which is common for me due to my body positions and posture depending on the area at work. Tylenol, Motrin, or Aleve have been all that I have needed. Haven't even popped the top of Flexerill, Skelaxin, Mobic, or the sort! This is exciting for me! The sweating and hot flashes have really decreased, though I am still taking the Levsin twice a day and I keep a small personal sized electric fan by my computer desk at work.
17 Nov 2011
Hi Mamamimi, I am new to this group/blog/Q and A thing so I am not sure when u posted your question.? I am 61, female, found out I had Celiac a year ago FINALLY, and Fibro about 6 weeks ago. I had been on Celexa for 10years as I was misdiagnosed with IBS and put on it. Alsp went through menopause during all these years sooooooooo what I am getting at is I have this sweating issue really bad last 10 years, never sweated at all before that. Went on estradiol hormones about 9 months ago and they helped about 75%. Six weeks ago went on Savella as I weaned off Celexa and the sweats are back
big time. They are different than flashes... The Savella is really working for the pain, not so much for fatigue, but the sweats are driving me crazy. I don't know how long it takes to get the Celexa out of my system, and I read other blogs of folks taking Savella having the sweats. ANYONE know if it goes away??? any info greatly appreciated, mindy
minda,
I am sorry I don't have an answer for you, I am going to my Fibro doc in the morning and asking to be switched to Savella, as the Cymbalta doesn't do a thing for me. :(
I am sure Mama will answer your question.
Mama, how are you doing? Do you still find the Savella is helping? I am SO anxious to get started on it! I have read WAY more good things than negative about this drug and want to feel better soon!
Best to you all,
Jillynnie
Hi Ladies, Wishing you well with Savella, I am astrounded how well it is working on pain!! ride through the side affects, they will subside, it's really worth seeing it through to the other side, stay in touch, mindy
9 Dec 2011
Mama,
I've been taking savella for a few months now and I've also experienced the massive sweating attacks. I feel like I have been having a vaso-vagal reaction to the medication. I have periods of cold sweats, low blood pressure, intense nausea, & lightheadedness. However, since my pain has decreased considerably, I decided to continue taking savella. The good news is that the side effects have also decreased. It took me about 2 months for the side effects to stabilize. I hope this helps you out some! :)
12 Sep 2012
I am new to this site and have been on Savella 12 day. On the third day of taking this drug, I was pain free. I have had dizziness, nausea & bad hot flashes. I make sure that I eat when taking it now. The dizziness has gone but still having hot flashes but not as bad. I can put up with them if I can stay pain free. I have more energy and feel so much better. I lost 5 lbs the first 4 day on this. Most was fluid. But I am still losing. I am watching what I eat and I am much more active. So far so good.
But I amy concerned what my doctor keeps saying. She keeps saying that the medicine times out and quits working so I need to loose weight and get in good shape while it is working.
Have any of you been told that this happens? I am wondering if she is just say this to give me incentive to lose weight. I am worried that the pain will return because I feel sooooooo much better. I have research and so far I have not found anywhere that this happens. Hope some of you can tell me something.
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Levsin is an antispasmodic/anticholenergic med. It slows down the gut, sort of dries things up, so helps the diarrhea part of IBS and helps cut down on sweating. It also helps sort of relax muscles of gut so helps with IBS cramps. However, the Savella is helping the IBS symptoms so far too! Just the sweating side effect is a bother. However, the Levsin does seem to be helping ! Hope this helps you. But of course, discuss it with your doc!
Hi Momamimi,
It may help me. You're right, I do have to discuss this with my doc. I'm currently on Buprenorphine for pain and depression. The Bupe does wonders for the IBS. But there are still days i must use Imodium. Maybe with Levsin I won't need the Imodium . Thank you for a prompt a answer. I will discuss this with my doc next month.
In reguard to the IBS, my daughter is 12 yrsd old and began having gut problems last March. The anti-spasm meds made her sleepy and nauseous. She is now on Elavil and Periactin and Dulcolax 5mg. I truely feel its the Periactin that has made the biggest difference. Hope this is helpful. I suffer as well, and the way they treat it today is different from how it was treated ages ago..