... anyone else out there that my be taking it for this condition and any problems they may have encountered? It seems like one has to stay on this for an undetermined amount of time to resolve it?
I have just been started on prednisone for Polymyalgia Rheumatica. I'm looking for any input from?
- Posted:
- 6 Jul 2012 by K-Love Listener
- Topics:
- polymyalgia rheumatica, prednisone
Responses (3)
6 Jul 2012
I have been on Prednisone for Polymyalgia for almost 3 yrs now. My doctor told me when I first started taking it that if I take it right before going to bed that I may have problems going to sleep so I take it first thing of the morning. I can't say I have had any problems with taking the pred so far. But I was told to make sure I take a calcium vitamin daily because pred may make your bones brittle.
7 Jul 2012
Been on prednisone for over seven years now. Just went back to twenty today because of pain. Much less pain at twenty and above. Vicodin helps but makes me anxious. I have polymyositis and interstitial lung disease. Long periods of pred above forty up to sixty and for a while eighty. So I know the ins and outs a bit. At thirty and above split the dose. Half in am and half in pm. Easier on the system and told by my Rhuemy to do so. Therapeutic level is constant.
My disease will,have me on prednisone indefinitely. However, my Rhuemy also prescribes prednisone reducing meds to go with it. You need to also be on Fosamax or one of the bone strengthening meds. Essential. 1200mg calcium, I use chewables, and the Vit D. Get tested again to be sure you are taking enough. It varies over time.
Thanks again for everyone's input. Fortunately, my symptoms seem to be gone after 3 days. I am going to split the dose in half. Made me to jittery today. I have been living on 80 mg. of Pepcid for many years so I hope that takes care of any possible stomach issues. I need to find and learn the best approaches to handle this condition. I have a daughter who is critically ill and on dialysis, a couple grandsons to worry about along with my 83 year old mom who all depend on me. Can't afford not to be mobile. Appreciate all tips and suggestions. Take Care.
Hi. Pepcid is not the answer. Go back to your doc and get something like ranitidine. Many OTC are not to be used with prednisone. Talk with a pharmacist for something better. They have your meds on file and can help you with something until you see the doc. Hang in there. You won't be able to help them all if you don't take good care of yourself.
9 Feb 2013
I have been on prednisone since september and have had allot of side affects. First my eyesight went, I could no longer see far and I never needed glasses to read email and then I did, I have lost 30 pounds since september and my blood sugar went from normal to reading in the high 350 level. The good news is the prednsone did help with the polymyalgia rheumatica until I started going off it. I have not gained the weight back which is not good because I have lost all my muscle , but my eye sight is back to normal and I have gone on metformin to correct the blood sugar and is working fine. I got down to 7mg of prednisone but some of the pain has returned so my Dr, has me back up to 10mg for a while. Hope this helps
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Don't forget vit D too
Thank you for your response. It is much appreciated. I guess I am hoping to not have to take the prednisone for a long period of time becauseof so many possible side effects, however, without it, it seems like you can hardly move without pain. My Vitamin D was already low with the initial blood tests so I was started on a weekly Vitamin D capsule and I have to have a bone density test done in the near future. I'm taking 40 mg. of predisone daily and I know he would like t see that reduced. I had never heard of this condition before, but it seems there are many folks with it. Thanks again for your response. Take Care
Its not all that unusual, its just not a name that's talked about a lot.
You don't state how much Prednisone you are taking. That may make a difference on how you feel. The stronger the dose, the more side effects you may experience. Good luck to you and your success in sending this muscle disease into remission.