... Sjogren's. Was experiencing elbow and wrist pain, tiredness and my hair started falling out (thinning). Was put on hydroxychloroquine two months ago and all seemed to go well until I broke out in an itchy rash on arms, legs and stomache. I've stopped the meds for about two weeks now but the rash is still present. I'm guessing it takes time for the meds to leave your system? I am worried that the symptoms I was having will recur within time. (Mainly the hair loss) Any suggestions? I'm trying to do the herbal thing for now.
Sjogren's Syndrome - I was diagnosted with RA four years ago. Turns out I don't have RA I have?
- Posted:
- 1 Oct 2011 by Christine2860
- Topics:
- rheumatoid arthritis, pain, sjogren's syndrome, muscle pain, hydroxychloroquine
Responses (2)
1 Oct 2011
Hi Christine. I was just wondering if you had 2 different doctors or what treating you I just briefly read up on this syndrome & it states that many people with RA also have Sjogrens. I have given you the reference:
http://www.drugs.com/health-guide/sjogren-s-syndrome.html
Good luck , God bless...
Good sunday morning to you Mary. I heard from Billy early this morning and hes doing well. Might be afternoon by the time you read this, but theres still coffee and danish along with assorted pasteries, so lets give it a go and pig out! see you
Good morning Pledge, that is great news! :o)
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Thanks for the input Beepoo. My Dr. has ruled out lupus. (I hope she's right). Since taking the meds my hair has definately got much thicker and has grown in some. My rheumatologist and dermatologist have agreed on the Sjogren's. All they have to go on is my bloodwork and my symptoms. I'm just really concerned because I have had an allergic reaction to the meds so without them I'm not sure what's going to happen. I've been off the meds for two weeks now and still have the itchy rash break outs. :( Really not fun !!
Good Christine I am gonna keep you in my prayers I hope they can find out whats going on w you. Hope to God you hairs is just thinning if so niacin works for that!!! Been thinking about ya! *beepoo