jtxl... until a hurricane stopped my treatment for 6months. after returning to3rd treatment 6wks apart 7mg per kg I developed scleritis which seems to be under control for now. Hopefully. I am so close to the max dose, I am wondering if I can increase the positive reaction by having a theraputic phlebotomy and if possible, would 2 days prior to the remicade infusion be the best time. Have there been any studies in this area? can this be worth a try? is it dangerous to consider? I have psoriatic arthritis w/rheumatoid overlap
Rheumatoid Arthritis - I have been on remicade for 8 yrs with no side effects and amazing results?
- Posted:
- 17 Feb 2010 by jtxl
- Topics:
- remicade, rheumatoid arthritis, psoriatic arthritis, side effect
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Thank you for your time, however I am really looking for other patients that have been on Remicade for sometime and can give me their outlook on the infusions. I will be getting my next Remicade infusion next week and this will be my third infusion. Granted the doctors can help me with my questions however they are not receiving Remicade themselves.
to Sheila01 - I hope you have as good as an experience as I have. Ihave been on remicade 8yrs combined with methotrexate taken weekly.(you can NOT mix methotrexate with alcohol- not even one drink or you are asking for liver failure) I have had no side effects except some well appreciated weight loss at the beginning due to all the extra energy it gave me. I have live very close to a normal life on this medication. be proactive in protecting yourself from infections. I take a public transport bus to my treatments and am cooped up for hours with a group of sick people going to the hospital and did have some difficulty with respiratory infections so my doctor recomended a little neosporin on a qtip-rub it around in your nose when you are going to be in germy situations. try to breathe thru your nose and keep your hands clean and away from your face. That was many years ago and with this advice, I did not have another respiratory infection.
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If you do get any type of infection, act quickly to treat it and you will be fine. Many people go on a round of strong antibiotic/antifungal at the beginning to make sure that there is not a very small infection hiding in wait for your immune system to slow a little. Do everything you can to not miss any doses, My difficulties are because of this. I hope this has been helpful. Answers like talk to your doctor really are no help at all and they should just not bother. I will not see my doctor for months and am looking for opinions and info to add to my list of questions for when I will see my doc and that answer- talk to your doctor is just soooo irritating and condecending it makes me want to scream.