I am a researcher working with geneticists to try to find markers so that remicade, humira, cimzia will be more effective and minimize the "non-response" that occurs. Have you had to switch drugs? Can you please tell me about your current therapy, dose, costs for drugs, costs for infusion, how is it going for you? Are you self admin? where is the best place to get infused? I so appreciate all that you go through to be well.Thanks so much, Ellen
1 Aug 2010
I have had one 2-hour IV drip of Remicade (treatment every 2 weeks and meet with doctor after third treatment) for rheumatoid arthritis. I am to take Methotrexate also. I realize Remicade is fairly new and the results are positive, but reading about Methotrexate has scared me. As a new patient of RA, I'm concerned.
5 Apr 2012
Ellen, I don't know what cimzia therapy is, but I am on Humira pens and have taken it all together for 8 months. Once the initial fatigue disappeared, I was fine. I dislike the burning that comes with the injections, but it is a small thing. I tried Remicade for only 4 injections, and it had absolutely no effect on my Crohn's. Nothing significant anyway. Then I was taken off, and given Methotrexate for 2 years, which caused more problems than it solved. I changed my gastroenterologist and now am on Humira which I seem to handle okay with few infections and side effects like that. I am hoping it heals my very painful fissures which it is supposed to, but time will tell. I hope this helps.
7 days ago
I have been on all three medications. Humira didn't work for me. Self injections at home. Remicade was a god send for me. I got it every 6 weeks and had 6 viles injected into the fluid bag. I found that my insurance coveraged in patient hospital at 50 copay... So instead of going to outpatient Infusions place i went to the hospital and it was cheaper. The medication was tlby far the best ever for me. My skin cleared up within a few days of my Infusions... My crohns didn't act up and my RA was completely controlled. Only down side was the amount of time spent in there 2-3 hours. Which ment time off work.
Now because of time I asked to switch and went to Cimzia. 3 months in... My body hurts my skin isnt cleared my lyph nodes are now swollen frequent headaches and my left lower leg is numb. Now I can not say that these are because of this meds... So for that reason I'm sticking with it. Cimzia cost wise is amazing. With their saving program I pay absolutely nothing for this drug. The program is awesome and they are on top of their game. Best drug.company to deal with (I've been on stellara, enbral) they sent me sharps container free free mailing back of sharps container when filled... They ship fast and well before you need it. Too bad the drug itself isn't as wonderful
7 days ago
Tried Humira first - caused rheumatoid arthritis (aaack - not supposed to happen).
Next tried Entyvio (3 infusions) - Crohn's was not in remission and continued to worsen significantly (CT scans).
Now on Remicade (2 infusions so far) - not sure yet, maybe getting better, not getting worse. Also on Prednisone.
No idea about costs - covered by insurance. Self-administered Humira; Entyvio and Remicade are IV.
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