I am a researcher working with geneticists to try to find markers so that remicade, humira, cimzia will be more effective and minimize the "non-response" that occurs. Have you had to switch drugs? Can you please tell me about your current therapy, dose, costs for drugs, costs for infusion, how is it going for you? Are you self admin? where is the best place to get infused? I so appreciate all that you go through to be well.Thanks so much, Ellen
1 Aug 2010
I have had one 2-hour IV drip of Remicade (treatment every 2 weeks and meet with doctor after third treatment) for rheumatoid arthritis. I am to take Methotrexate also. I realize Remicade is fairly new and the results are positive, but reading about Methotrexate has scared me. As a new patient of RA, I'm concerned.
5 Apr 2012
Ellen, I don't know what cimzia therapy is, but I am on Humira pens and have taken it all together for 8 months. Once the initial fatigue disappeared, I was fine. I dislike the burning that comes with the injections, but it is a small thing. I tried Remicade for only 4 injections, and it had absolutely no effect on my Crohn's. Nothing significant anyway. Then I was taken off, and given Methotrexate for 2 years, which caused more problems than it solved. I changed my gastroenterologist and now am on Humira which I seem to handle okay with few infections and side effects like that. I am hoping it heals my very painful fissures which it is supposed to, but time will tell. I hope this helps.
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