I have severe chronic pain from an injury to my lower back that's getting worse. (They can't do another MRI because of wires & screws in my rotar cuff tendons from another fall.) Besides degenerative arthritis in there it is also deteriorating, spreading further up my spine (buldging?, can't remember, but it also has caused neuropathy in my legs & feet that throb so bad they wake me up during the night, along with pain from Fibromalagia in my arms, shoulders, hands, etc., & I'm allergic to Lyrica. On top of that I have severe osteoarthritis in my left foot, been broken, (suppose to be wearing a brace but it irritates my skin too much), also bad in my right knee and right hip. My general practitioner sent me to this neurologist and he did the nerve conduction tests on me & confirmed the increasing neuropathy (place on my spine too) down both legs & feet. He said my last MRI indicated a spine so bad it looked like a man's who had worked on cement for 30 yrs. He ordered a long panel of blood tests to rule out Lyme's, etc. and it came back with a CEA of 3.0. He sent me back to my general practitioner who ran another CEA & it came back 2.4 normal (a yr. later). (Thank God, because I've had thyroid cancer.) Now my neurologist has discontinued me as "stable" and is refusing to see me anymore (Obama Care?) and has refused to prescribe anymore Hydroco/apap 10-325 for me that was the only thing holding down the pain so I could function, walk, etc. I have not been abusing it as I have not even taken as much as I'm suppose to, often taking only 1/2 pill when I could. I am an ex surgical assistant and a Christian and I know better than getting "hooked" on narcotics, but now my regular doctor says he can't prescribe my pain meds to me because of a new Fla. law, only specialists can. He said he could if I had Rheumatoid Arthritis, but not what all I have wrong with me. I can't even get an appmt with him until I'm completely out of the "halves" I've broken the few remaining into. I am in terrible pain already all over my body trying to make these few halves last. I could almost feel like a normal 68 y.o. woman with those pills and now I'm suffering and fallen again on my ramp. Why did they pass such a horrible law that hurts people that need pain relief? What can I do? Is there a type of doctor who will fill my Rx?
10 Sep 2013
As much as I hate to NOT blame something on Obama, it is not due to "Obamacare" that your neurologist stopped seeing you. They are specialists and once you are stable, it is normal procedure for them to turn you back over to your PCP or GP. As others said, pain management is the way you'll have to go. It is shame people cant get help from their regular primary doctors but due to political involvement and bad media attention on those who abuse these meds, it has made it very hard for legit patients to get pain relief. I really wish that you would write your story and send it to your State Representative and your Congressman(woman), the Governer all the way up to the President. They need to know what their strict legislation is doing to "real" patients who just want pain relief.
They have gotten so much flack from parents of children who died from overdoses "to do something" that they have just made it harder for law abiding citizens to get pain relief. Kids are still abusing meds, they are just using other drugs like heroin. They (politicians) need to hear plenty of hollering from real legit law abiding pain patients like you!
7 Sep 2013
I'm so sorry to hear of all your troubles, you really must be in a lot of pain!
IF you can get a referral to a Pain Management Doctor, you may be able to get the medication you need. Ask your General Practitioner for a referral.
I do hope you will be prescribed the meds you need.
best wishes to you,
7 Sep 2013
Thanks to main steam media and a few bad Apples, it is getting harder and harder to get the Meds that some of us desperately need at times! You should see a pain management doc and in the mean time, follow the rules and play your doctor's game that he has to to play and get in to see him. Good luck, you're not alone, believe me!
7 Sep 2013
not to be redundant ,but there is a definite path you have to take in getting what you need for your medical needs. ask for a referral from your physician for a pain specialist and hopefully you will get some relief. I deal with neuralgia from seizures so I have some idea of the issue, not to belittle your pain. will pray for you!
7 Sep 2013
I'd bet this has to do with Florida being all over the news because of having a pain clinic on every corner and people traveling from nearby states to Florida to get their pain pills illegally. That shouldn't mean that people who really suffer from chronic pain, like yourself, should not be able to find treatment!
If I were you, and your general practitioner refuses to refer you to in management or rheumatologist, I would see about finding a different general practitioner. They probably would not prescribe the pain medication themselves either; however, they might give you a referral for pain management that you so badly need.
Good luck to you!
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