alana21... an assortment of pain medicines, including the highest allowed daily dose of Neurontin (3600 mg.) I have had chronic depression all my life and usually found relief in anti-depressants.
However, for the last 12 months that is not possible. The SSRIs and SSDRIs cause a horrible reaction and make my pain worse. I was using an EMSAN patch until I read that it is contraindicated to use an MAOI along with Fentanyl patches. Please; I'm desperate for an answer. I've asked numerous doctors and pharmacists and they just won't take the time to give me an answer. I hate having to tell complete strangers, like the pharmacist, how I honestly feel - that I really want to die - because I'm afraid they'll call the police or do something drastic. How descriptive to I have to be to get an answer? I realize that wanting to die is also "drastic," but I trust you will better understand what I mean, as this relates to chronic pain that is physical and now psychological.
Does anyone know of an anti-depressant that I can take that won't have this horrible effect on my pain?
Reflex Sympathetic Dystrophy Syndrome - Suicidal Depression. I have severe RSD in my feet and take?
- Posted:
- 7 Dec 2009 by alana21
- Topics:
- neurontin, depression, dysthymia, pain, reflex sympathetic dystrophy syndrome
Responses (12)
Psychmajor8 Dec 2009
this is individual specific... seriously call a doctor (i recomend a pharmacist personaly) and tell them your situation and say your starting to get suicidal thoughts because of this... they cant call the police unless its likely that you WILL hurt your self. if a doctor doesnt tell you anythign then threaten to report him to get his license suspeneded... he has a job to treat a patient
kimmie19 Dec 2009
There is a person on this web site that I recommend you talk to. He is very knowledgeable and will take time to give you a good straight forward answer. His name is Dave and he goes by mpvt. Please try to get in touch with him. My heart goes out to you. I know how horrible you must feel. I have felt that way myself a few times more than I care to admit. God Bless you... Kimmie1
barbles24139 Dec 2009
I have RSD/CRPS in both hands and wrist. I use cymbalta60mg which is the anti-depressant and anti-anxiety Avinza90mg (Sustained release morphine) and Morphine Sulphate 15mg imm every 4-6 hours for breakthrough pain I just started this regimine 4 weeks ago and I think it is working. I have tried almost everything out there but right now the cymbalta helps with the anxiety depression and pain. I wish you the best of luck with this and I will keep you in my prayers. I hope this helps a little. As I said I have tried lyrica neurontin percocet topamax fentyl patch kadian trileptal elavil AND so on. This has been the best after 5 years Good luck and God bless I agree with you no one understands the pain people have no idea what it is like to be in pain 24/7. I do understand I Know how bad you feel.
Barb
lmintz6611 Dec 2009
I am so very sorry to hear you are in so much confusion about your meds. Honey, I hope you have been able to get some answers from your dr or pharmacist. We have to trust our Drs. to take care of us and when they don't listen, we feel so betrayed. I have always taken meds for depression and now every med I take becomes a new nightmare, because of my full body RSD. I may not know how you feel but I am pretty sure I stay close to it. I think my friends here have answered your question. But I had to let you know I am out here with ya! I would like to be your friend. If nothing else we can make jokes about our situatiions! Just a thought. I really hope you are on the right track with your meds. It scares me so much when I am having problems with mine. I always feel like this big world is swallowing me up and I can't tell anyone because they will over react and make my life even worse. Anyway, I am here. Take Care and know you are not alone.
barbles2413
12 Dec 2009
Imintz66 I read your response and let me tell you I wuld like to join in with you as a friend. There are noy many out there who can even imagine the pain. I always get well maybe if you stop thinking about it you would forget about it. How do we get accross that if only it was that easy. I just started a new anti-depressant Cymbalta and I think it may be helping the pain a little. I also take Avinza long acting morphine and morphine sulphate for breakthrough. Pain Depression I know it could be alot worse but just to have somebody that realy knows the pain like you do is very helpful. I hope we can be friends as well as with alana. Gob Bless Barb
lmintz66
13 Dec 2009
I MEAN TO TELL YOU!!! you know my name and it is at yahoocom. I would love to be friends with you and alana. Thanks for asking and I'll see ya on the board! LOL!
DadsWatch...14 Dec 2009
Alana21... my heart just breaks hearing your story & I wish I could give you just 5 minutes of a pain free world. If you are any thing like me 5 minutes without pain would probably destroy you, who could we ever go back if we found out what life felt like without pain?? The last doctor gave me sam;es of Lexapro but I'm too scared to take it. Anti-depressants have a reverse affect on me... they make me very depressed & suiacidal. I keep trying to explain to them I am not normally depressed, I am just in pain... relieve the pain and the depression will go away... that seems fairly simple to me... but they just don't seem to get it or don't care... or just don't want to treat pain. I pray for all of us in pain everday, both physical & mental pain on this site, as I have met so many who suffer wihtout any end in site. Please keep searching for an answer to your problem, there has to be one out there somewhere and one day we will find it. God Bless & Good Health... Momma Nancy
tradergir...31 Dec 2009
Hi
I am Kim and I'm new to this site and I came across your letter, it caught my attention as I also have RSD in my Left Foot and Leg. Beleive me I know exactly how you feel, it's nice to finally come across someone who has the same thing, we share something in common, some days I used tell my husband I'd like to get an axe and chop my foot off because the pain was so bad, he knows I'd never do it but it allowed me to get across how much pain I was in.
meyati
9 Jun 2011
I begged a doctor to amputate the black fingers on my right hand because of RSD. I was going to commit suicide, but put it off to try one more pain therapy-which did work
24 Oct 2011
hello ; i have had rsd/crps for 7 years the pain is horrible. i take cymbalta for deppsion and oxycodone for pain. i have seen 10 doctors and went to the va to get help-sick of pain killers.they did blocks in my right leg where the crps is the pain went away for 4 days oh boy that was the cake.they were going to put in a stimulator. had that done works great. the only problem is some times i sweat alot. that is the symptom of rsd. try the cymbalta 60mg i have no deppsion because i was there where you are.get a hobby also
24 Oct 2011
Alan-again-can you get into a pain clinic that will use stellate ganglion shots? They have about 4 different types of meds. I don't take pain killers unless I hurt my RSD area. If they hadn't worked, I would have committed suicide because of the extreme pain and physical deterioration. I have a friend that has had surgery to repair the nerve damage-that works for her pretty good. They call RSD-the suicide disease for a reason. There are other ways to control RSD than daily meds. I know about the psych thing- I take 2 depressents for my stomach and I believe that they also control my RSD. I was lucky-they asked me if I was suicidal- I told them, "No, but if this does not work in 90 days, I will commit suicide. That is different than being suicidal." i could barely sleep for more than 3-4 hours.
24 Oct 2011
You might want to try Cymbalta.
I take 2400 mg of neurontin, 240 mg of Oxycontin, 4- 10/325 Loritab, and 60mg of Prozac a day. I do notice that I can not think very clearly and I am also suicidal which I believe when you are in this much pain it is hard not to be. No one understands how devastating this syndrome is. I had back surgery in 2007 and from then on I have suffered from RSD which is in my feet, calves and breast down to thighs. I had my whole family freaking out because of the suicidal thoughts. I really just wanted to die I thought it would be better for me and my family but after I seeing how my family reacted I decided that was too self centered and so I have tried to act more up-beat and happy. I think along with my drug cocktail this has helped. I hope you can find some form of meditation or pills that can help you.
Sincerely,
Cindy
27 Oct 2011
Sorry to hear of your frustration. I have rsd in both feet and legs, both hands and arms, parts of my back, as well as parts of my face, tongue and roof of my mouth. The rsd is affecting my immune system and my vision. I understand the intense pain. I hate rsd. Sometimes I tell my family that I just want to remove my legs and arms and set them aside for a while and put them back on when I'm ready. I cry a lot. Not only because of the pain, but also because of the lack of sleep and the loss of what my life used to be like. I tell my husband that if this is how the rest of my life is going to be then I don't want to live. As long as I can find a way to get out of the house and be around other people, I know I can live. My doctor was going to put me on something for depression, but had increased my night time gabapentin, switched my stomach meds and added 2 other medications all at the same time. Mean while, my neurologist wanted to increase my night time baclofen.
judipe
9 Apr 2012
responding to the last few post, i can relate in every way, just last night(4-7-12) i was at my moms and for the first time i told her that i just want to go to sleep and not wake up. i am so physically tired emotionally drained and so hopeless and feel so very much alone. for me to get through each day is so hard. i just stay in bed everyday. theres nothing for me to look forward to anymore. i cry so much. i wish i had someone to understand or just hold me and not let go. i'm scared because i know i have these drugs that i could ouverdose and then no more pain, sadness, i wouldn't have to deal with anything anymore. i don't know how i manage to get through each day but somehow i do, so if anyone can relate i can. i know its hard just try to hang in there and have faith. here i should take my own advice. judi
alana21
9 Apr 2012
JUDIPE,
For some reason this website wouldn't let me reply directly to you; I hope you see this anyway.
Please don't kill yourself. My favorite sister killed herself last Christmas, something I've seriously considered (and tried) since I was five years old.
My thoughts and opinions on suicide, up to that point, on how other people would be affected by my death didn't even come close to how my sister's death affected me. Just a horrible, aching, all-day-every-day emptiness that I wouldn't wish on anyone.
I wanted to try to answer some of your questions but it has gotten late and it's been a long day. I will come back here, though, if not tomorrow, then the next day.
I'm glad you found "us."
alana
12 Apr 2012
I take cymbalta because it is an anti depressant and helps with the pain, there are several others that help. I would really talk to your pain doc about them. Yeah I know what you mean about wanting to die but not meaning you are thinking of suicide. I hope you find an answer soon.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Similar questions
Reflex Sympathetic Dystrophy Syndrome - I've just started taking Lyrica for RSD - SG Blocks have?
... ceased to be effective - how long can I expect it to take before I get some pain relief - generally?
6 answers • 6 Aug 2009 • 
New to RSD?
I am new to RSD (reflex sympathetic dystrophy syndrome). I was diagnosed in October/2010 but have had the pain for 4 months now. I have been trying ...
8 answers • 19 Nov 2010 • 1 star
Reflex Sympathetic Dystrophy Syndrome - Does anyone with rsd also have hypothyroidism? Does anyone?
... know if hypothyroidism is an unrelated condtion to rsd or a condition that possibly predisposes one to rsd. As a child, when it would rain, my ...
1 answer • 27 Oct 2011 •
I am on 300mcg's of Fentanyl and want to cut back. I have RSD. How do I cut back? On for 9 yrs?
I have RSD Reflex Sympathetic Dystrophy and have tried everything. Nothing worked. Fentanyl was a last resort and it is the only thing that helped ...
3 answers • 23 Feb 2012 •
Trying to do this right.. :)?
Hi everyone, I am very new here but have been reading a lot of your posts which have been so helpful. I have been on pain meds since 19 yrs old when ...
3 answers • 23 Mar 2012 •
Psychmajor and kimmie1, thank you for your kind responses. I don't have the energy today to investigate further, following your compassionate advice. Tommorrow is another day; hoefully I won't be in bed like today, just wasting the day. Oh, I hate this so much; most of all I hate how I feel about myself when I just "give up" like today. Your kind words give me the strength to get up and go on... tomorrow. Thanks again.
No problem at all. That's what this web site is all about. People helping people. Knowing that someone cares and I do. I wish for one day everybody with pain could get a break and just feel normal. Like a child full of energy and naive. Not a care in the world. I bet you will have a better day tomorrow. God Bless..I Care.. Kimmie1
iam so sorry you are going through this as we all are here too.iam new to this site and dont have alot to offer except i know what your going through.i too cry almost everyday,i dont want to live like this anymore.i have no insurance and the doc sent me to pain mgt center but to walk through the doors was 300.00 bucks i said you might as well take me off your list cuz i cant pay that.so i take norontin and flexaril.i have rsd fibro copd,i feel ya i will pray for you sweetie as for us all kelly