I have CRPS/RSD. My neurologist recently said he thinks I have some type of myotonia. I was wondering if symptoms of myotonia are also symptoms of RSD. I get severe muscles contractions and muscle weakness. When I get cold my muscles freeze up and make it impossible to function. I am unable to function until my muscles are warmed up by heat of some kind. When the muscles freeze up it's like being paralized. The colder I get the more muscles in my body freeze up or contract and the harder they contract. It is also very painful. I have intense sweating and muscle contractions when I am asleep at night. The contractions are painful and wake me up. Due to the strong muscle contrations, I am struggling to keep my range of motion in my joints. Is this typical for rsd patients? Thanks!
Reflex Sympathetic Dystrophy Syndrome - Is myotonia a condition of RSD?
- Posted:
- 17 Jan 2012 by rollerskater
- Topics:
- cymbalta, neurontin, pain, reflex sympathetic dystrophy syndrome, fibromyalgia, gabapentin, tramadol, hypothyroidism, muscle, burning
Responses (2)
18 Jan 2012
Some of the things you talk about are like my RSD, but I don't know that much about it. I think that all RSD patients have a type of arturitis because the nerve endings cause the muscles to atrophy around joints. For me, it's the right side of my neck-some doctors say my shoulder. I took a swimming class, and the instructor was all over me for not fully extending my right arm.
My RSD is atypical and I obviously have an upper right quadrant damage. When I've talked to other RSD patients-in person-the conversation is more about how it happened, what did we ever do to end up like this-pros and cons of morphine pumps and other pain management strageties-so I can't help you with the other questions.
I hope that you find relief-I really do. It sounds like you have a doctor that's on top of things- hang in there with him/her.
27 Jan 2012
This makes it easier for me to look at your symptoms while answering your question-what's the same or different betwee us.
Nope. I'm not on statins.
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Meyati, great to hear from you. Which muscle symptoms that I described do you not have? Rollerskater