... refusing to cover my sympathetic nerve blocks so that I can start aggressive pt. So currently my only option is meds... I take my lyrica religiously, but it really doesn't seem to help with my pain. What options do I have, or what meds would you suggest? We've already tried tramodol and nucynta to no avail... I'm a mother of 2, I have a 2 year old little girl and a 7 month old boy. I'm only 25 and I want the chance to be a mommy to my babies without suffering with this debilitating pain that has almost defeated me
Reflex Sympathetic Dystrophy Syndrome - I'm new to crps. I was injured @ work and Workman's Comp is?
- Posted:
- 4 Feb 2012 by mamaknt25
- Topics:
- lyrica, reflex sympathetic dystrophy syndrome, nerves
Details:
Responses (4)
Missygirl734 Feb 2012
Hun I don't have the best answer but I'm sure someone will be along shortly to offer you a great opinion.
I did however want to respond to let you know I'm thinking of you. I'm dealing with chronic pain and I'm 38 with 8 kids and it is hard. You ate even younger and that breaks my heart.
I'm on lyrics for my nerve pain although I have adifferebt diagnosis as you. I do think my Lyrica help but I take other pain meds to go on long with them.
My opinion is to let the doctor know that it is not helping the pain and I'm sure he/she will add something to it. Most doctors like to start out slow in order to have you on the lowest doses and smallest amount of medicine possible so from my experience they take baby steps. Again I'm sure someone will be around to offer you more detailed advice but I thought I would put my 2 cents in!
Good luck to you and hang in there!!!
Missy
pattylj5 Feb 2012
Hi, I have RSD in my left hand/arm. I was also injured at wk 3 yrs ago. Workers comp is difficult to deal with. I have a great pain Dr and his office mgr is tough. The Dr appealed the denial for my nerveblocks and they did approve them (probably because of the office mgr's persistance). Also, get a lawyer, if they deny something he can fight for you. I have been through 6 nerve blocks (stellate Ganglion)-relief lasted 10 days then pain returned, Radio frequency ablation (which made things worse) , tons of pt and now I have a spinal cord stimulator. It works wonders but isn't a cure but a last resort. I am also on 300 mg of Lyrica, Flexoril for muscle spasms, mobic for bone pain, Cymbalta because most chronic pain patients are or will be depressed and it also helps the nerve pain. I also take vit D, vit c, fish oil, Krill oil (supposed to help with pain ?)and a good multivitamin.
5 Feb 2012
I was on neurontin for rsd neuropathic pain but it messed me up. I am now on a low dose of cymbalta and what a wonderful difference. I take tramadol at night. It only helps a little and for a short while. I have rsd from a fall injury. RSD spread. My whole body is now affected with the various rsd symptoms. I do mean my whole body from the top of my scalp to the tip of my toes.Have you tried Ibuprofen? I have found that 600 to 800mg's of Ibuprofen helps. I do take it along with the cymbalta and tramadol. I have three children, but they are older than your children. I will friend you an then we can talk in more detail. I will pray for your pain levels to go down. If you aren't getting enough sleep, your pain levels will be higher. Talk with you later. Blessings and prayers heading your way, Rollerskater
4 May 2012
I have RDS started in shoulder spread my whole body even inside within a few months of getting it. The best thing I have done was Ketamine infusions, they have made me walk again. They say to get the treatment as soon as possible, if possible. I also think nerve blocks only work for the lucky few, and do not work for that long. I had some the longest lasted a day! pretty crap for how expensive they are!! If you need help with Ketamine, I have friends that can help with that. Not trying to push it, just know how painful it can be and being young myself, I am lucky to not have kids I would not be able to look after them. Also I found warm water therapy called watsu help!! look it up. Take care gentle hugs...
Try to also get an attorney also.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Similar questions
Reflex Sympathetic Dystrophy Syndrome - I've just started taking Lyrica for RSD - SG Blocks have?
... ceased to be effective - how long can I expect it to take before I get some pain relief - generally?
6 answers • 6 Aug 2009 • 
Reflex Sympathetic Dystrophy Syndrome - Hi everyone ,i am new to this group and I'm hoping to become
... friends with others who have CRPS. i was diagnosed almost 8 yrs. ago now.i was wondering if any of you get the ketamine infusions (not the coma)? ...
4 answers • 18 Jan 2010 •
Reflex Sympathetic Dystrophy Syndrome - I have been diagnosis with CRPS (RSD). I have been having?
... trouble finding a doctor that could help me since my work comp stopped paying for thing's. No doctor will see me an on top of that I have ...
3 answers • 1 Oct 2011 • 1 star
Reflex Sympathetic Dystrophy Syndrome - Is myotonia a condition of RSD?
I have CRPS/RSD. My neurologist recently said he thinks I have some type of myotonia. I was wondering if symptoms of myotonia are also symptoms of ...
2 answers • 17 Jan 2012 •
Reflex Sympathetic Dystrophy Syndrome - Did anyone see Dr OZ with Paula Abdul talking about RDS for?
... about a minute? Ice is our enemy!! it makes our nerves go crazy!! I am so mad I thought she would talk about the pain more and yes eating good ...
5 answers • 4 days ago •
I have ulcers so I can't take nsaids BC they make them bleed. I'm wondering if there's a pain med strong enough to get me through the pt and the days of pain following since it doesn't seem like I'm going to be approved for the nerve blocks. I really want to get going on pt before I start to lose function...
Since you are new to the group, I thought I'd let you know I have friended you. If you friend me back, we can ask each other private questions. I am on another support group site as well as this one for rsd. It is only for rsd and nothing else. Many of us on that site have rsd as well as other health conditions that are impacted by the rsd. We do chat and share about them. W There are a ton of people who have had it for years and could be of great help to you. I understand about the ulcers. I am taking a perscription antacid so I can take the Ibuprofen as needed. When I first got rsd I was not on anything. Because of my stomach issues, I too didn't want to take Ibuprofen or tylenol so PT was very painful. Make sure PT does not put ice on your injured area as it can cause rsd to spread. Use heat instead. In the begining, I cried when doing many of the exercises for PT. But my PT told me I had to do it or I would not get better.
Expand this post...
I'm glad I did the exercises despite the pain. Contact your pain doctor again and have them work with workers comp to get the blocks. If he is a good pain doctor, he should be able to fight the fight with you. Workers comp is horrible to deal with. Keep in mind that the squeaky wheel gets the oil. You have to be squeaky. For most of us, it was a hard thing to learn to be squeaky. Also, feel free to "fire" a doctor if they are not working with you. You can find another doctor if need be. You are paying the doctor to help you, if they can't help you, move on. I know it is not an easy thing to do. I have rsd and possible myotonia and other health issues. I went to see a doctor that my PC doc thought would be helpful. It was a disaster to say the least. My PC doc and I both agreed never to go back to the other doc. My daughter, 14 yrs, was just diagnosed with a rare pediatric chronic pain condition. If I hadn't been strong enough at the hospital to say no, we are not going to see the neurologist we saw here when she is discharged from the ER, I don't think we would have gotten her diagnosis. The ER docs (More than 1) completely missed diagnosing her correctly. They were clueless as to reading the x-rays correctly. I know you are in a difficult place right now having to raise two little ones, are in pain and probably not sleeping well. I will continue to pray for you and your situation. Blessings, Rollerskater