lmintz66... spinal cath for delivery of my Prialt. Do any of you have experience with this medication? or med delivery system. My pump is a SynchroMed II. It was installed in May 09
Reflex Sympathetic Dystrophy Syndrome - I have full body RSD and currently have a pump implant and?
- Posted:
- 18 Nov 2009 by lmintz66
- Topics:
- prialt, pain, reflex sympathetic dystrophy syndrome, delivery
Details:
Responses (3)
kimmie1
Lifewrsd23 Oct 2010
Yes. I have been diagnosed with full body rsd since March 2001. I have had spinal cath i.e.interthecal pump since Sept. 2003. Dilaudid was medication used on me first, but just 5 months ago the medication lost it's ability to work well. They added Prialt three weeks ago. After 12 days I could feel effect. What a relief to have the extreme burn fade abit again... My pump is by medtronics. I am worried because I may be having some side affects. Sleeplessness, nausea, vomiting (just once starting this evening) dizziness. If this persists tomorrow I will call doctor on call. I hope it will pass. I don't want to go back to the extreme pain I just got out of. So worried.
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Don't be sorry kimmie1. No one seems to know anything about my method of treatment. You guys all keep up with me. Might just change my name to labrat1! LOL! Just kidding! We gotta laugh sometimes or we will cry ourselves into a hole too deep to crawl out of, really quick!
Your correct about that. I am interested in how this works for you. Sorry it took so long to respond. I had another bout with pancreatitis and was in the hospital for five days and in a large amout of pain since and its been almost three weeks. I am getting better but I swear, I will never drink alcohol again. Sorry to get off on me. Please keep me posted on your condition..Kimmie
Kimmee1 I certaily hope you are getting over your bout of pancreatitis and feeling much better soon! I was upset that my Pm switched my pain meds from Oxycodone 10 @6hrs. then to morphine sulfate 15mg /12hrs( go figure!) then to the extended release morphine 30mg /12hrs.. and now Methadone 5mg/4times a day! All within a three week period! I have to take bendaryl with it because it makes my RSD burn hotter than ever! So what's the purpose. Right! ?Sometimes I wonder about drs.! Methadone is the end of the rd for me, I hope! I can't make him understand I am sensitive to opioid meds, even though I listed codeine first on my allergy list!
Good luck girl. I think we need to find ya something to keep ya busy so you don't have those attacks again! Glad to hear you are home and Thanks a million for writing me!
No problem. I also take methadone. I have been on it for five years. I started out 10mgs 4x daily, I actually got down to ten mgs a day by myself. Then being the addict that I am, I got back up to 40 a day then 60 and now that I have the pancreas thing going on the dr put me on 120mgs a day. Wow. Talk about have to tapper down again. After I get done with all this pain bull, I have to tapper back down. All I want to do is go to bed at 8:30pm and sleep to 8:30 or longer in the am. I stay awake all day but if I get to comfortable I will fall asleep. I don't won't to sleep my life away. I wish you luck with the methadone, just try not to abuse it the way I did and if you want to get off of it, the sooner the better. Don't let the years go by like I did because it makes it harder. I don't try to dictate, just let folks know my story.
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I will probably not be able or let me just be honest, I don't really want to get off of my pain meds, I have chronic back pain and other problems I really don't feel good enough to talk about right now, but I will stay in touch with you if you need someone to talk to as we all do. I know I can never have enough friends. Good luck to you and please keep me infomed of your health problems too. Kimmie
Hi Kimmie1! The last time we talked you weren't feeling to well and neither was I! I certainly hope things are better for you. Thank You so very much for your honesty. No one knows how much a little honesty really helps sometimes! I can't take any pain meds like I am supposed to anymore because I am allergic to them! My drs. won't listen because no one wants to admit not hearing me before I got in this much pain.. not a problem, just hear me now, right? UGH! Have you been doing ok? How's the pancreas? Laughter IS the best medicine...
Your right about laughter being the best medicine. I am still on the pain merry go round. The docs tell me (I have three) that I could be this way for at least a month or two. Great! Then in 3 months I have to have the mass on my left kidney rechecked to make sure its not growing. Getting older is the pitts. At least it's not cancer. Yeah! How are you? I hope much better. Boy, they really screwed with your meds alot. You probably didn't know if you where coming or going. Well gotta run.. take care kimmie1
Wow Kimmie1, Sorry to hear you have so much going on friend. Hang in there honey and much luck in soo many ways. Keep me updated with how you are. I don't really know how to use this to send you an email so I will continue to look for you here. I will be here more often now, so I will always come here for your comments. Don't know if I can help but I will listen, LOL! Take Care Friend. Lisa
Hey there you can email me at kjayroe@consolidatednet don't forget the dot net. Just joking. I know you could have figured that out... Thanks for caring ..Hope to talk to you soon. kimmie1
I wish you could help me! LOL!