rollerska...... know if hypothyroidism is an unrelated condtion to rsd or a condition that possibly predisposes one to rsd. As a child, when it would rain, my legs would get very cold and hurt. I would cry and try to warm them. As I got older, the pain levels increased and I found that taking motrin and warming my legs helped. Now I have rsd and cold is my enemy. So is being too hot, but not to the same degree as being too cold. My thyroid levels have been jumping all over the place the last few years. The thyroid test over the last two or three years have showed hypothyroid but the doctors said they don't treat it at that level yet. My new pc doc just started me on levothroxin about 10 days ago. I have more energy, but cold is still my enemy. Has anyone being treated for hypothyroidism had any improvement with rsd symptoms? Thanks.
Reflex Sympathetic Dystrophy Syndrome - Does anyone with rsd also have hypothyroidism? Does anyone?
- Posted:
- 27 Oct 2011 by rollerskater
- Topics:
- reflex sympathetic dystrophy syndrome, hypothyroidism
Responses (2)
meyati27 Oct 2011
Hi, you've raised ome interesting questions. For me the hypothyroid started first. I didn't have the leg pains, and I was on a track team. I do remember sitting in Southern California in front of a heater, wearing a sweater in the summer before air conditioning. It took until the late 1980s before mine was caught. It does bounce around, but takes time to move-like 11 years to go from really low to high. I think that many doctors don't care that much about thyroid until it causes other physical problems. My RSD was caused by sloppy surgery when I was in my 50s. It's in the upper right quadrant, where is your RSD? I'm glad that you're having more energy from the thyroid hormone suppliment. I do agree that aches, pains, depression, being tired, weak go with a thyroid disorder. There are 2 types of RSD, the one caused by a specific event-a fall, surgery, car wreck, etc. Others develop RSD without knowing exactly what caused it.
epusleyaa...19 Jul 2012
Rollerskater, OW! I am so very sorry that another person has something like this. I have had RSD for nigh on to thirty years. It started in my knee and progressed from there. I also have had hypoyhyroidism, but mine was after the fun began. Seventeen years after the onset of RSD my heart stopped. I was revived with electricity and adrenilin. I was later put on an anti-arrhythmia med that turned out to be very toxic to me. My thyroid was in peril. I had to seriously reevaluate the importance of one organ over another. My heart won (kids) and I had to let my thyroid go. Ufda! Now I have an implanted defibriator, no longer need the toxic med. Yea progress! But, my thyroid is dead and I also must take Levothyroxin.
My skin is on fire. I've found that LIDODERM Lidocaine Patches are great, except that you can only wear three at a time.
I have to go for now, we have to buy an RSD friendly car.
E.P.A.
meyati
19 Jul 2012
Have you tried CoQ 10 for the burning skin. I got that- periphial neuropathy- and CoQ 10 has helped it greatly. I was talking to my doctor-and some other patients are saying that CoQ 10 is helping them with the burning skin going away. Several other doctors in his clinic had some patients say the same thing-we all have it from different reasons- It takes a few months of taking it regularly. I got curious- stopped taking the CoQ 10 when I ran out of pills and money, and it slowly came back-then it slowly receded when I got some money and bought more CoQ 10. my quality of life is going up.
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My rsd is in both feet and legs going up to parts of my back. It is also in both hads and arms as well as parts of my face, tongue, roof of my mouth, throat and affects my vision. RSD is also affecting my immune system. It all started when I was the back stage parent for my daughters play. A child forgot part of their costume and I went to retrieve it. The play was being held in a church that was located in a shopping center, so in order to get to the dressings rooms, one had to first exit back stage into a parking lot then go around a corner to one of the entraces to the mall and then through a kitchen and hallway. I was running (quite fast I may add) thru the kitchen with those lovely Bass sandles that were like heavy flip flops when my heel slipped off the shoe, and I lost my balance, then my other heel slipped off that shoe and meanwhile I was still running. This occured several times before I heard a "crack" sound and I hit the floor.
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I had what the doc said was a balarina break in my left foot, bi-lateral ankle sprains, a deep cut in my right knee as well as injury to both wrists and my left arm and shoulder. The hospital set the foot wrong. Then on a monday, an orthopedist specialist put a splint on it incorrectly. Finally about a week later, I saw a different orthopedist who set the foot correctly and put it in a cast. Now back to the hospital setting the foot wrong in a soft cast. The next day I stood up only to discover that the tip of my toe all the way up as far as I could see turned blue within seconds. Then the other leg began turning blue. The only way to maintain color was to prop the leg with the cast up. I also had excruciating pain. I was told I should not be having that kind of pain with this type of injury. And so the saga continues... What I don't get is that the majority of children and adults who get rsd are in a stage of life where hormone changes are occuring. This is a well known fact. I believe that doctors aren't looking at blood work for various hormone levels. Not only that, I believe, for women at least, that the range for various hormone test are incorrect. I recently saw a book, authored by a doctor, that indicates he believes there is too big a gap of what should be normal T3, T4 etc... ranges for women. Personally, I believe he is on the right track. If the thyroid and or pitutary glands aren't working properly, then so much in our body goes awry.
Thank you for sharing this with me. I saw on another post, where you talked about vibrations bothering your RSD. I'll tell you right now, don't go swimming for a few hours and then drive 300-400 miles. The muscles are too relaxed to support the nerves, and the next day, it's like you were beat with 10 lb sledge hammers. I think that you have an interesting theory of what contributes to so many cases of RSD. In about 4 months, my fingers were turning black and flopping. My forearm and hand was atrophied. The pain clinic said that they didn't realize it, but mine was going deep, and I would have been on a ventilator, as my ability to breathe improved from the treatment. I still have difficulty swallowing when I'm weak from the flu or something. My hormones were stable, but I was extremely stressed. I think that I had too much adreniline from my anger. So, that would fit in with your hormone theory. I had a break near my wrist-a closed fracture.
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I went into the family doctor as my wrist was swollen and tender. She diagnosed it as carpal tunnel syndrome, and sent me to physical therapy. I went about 4 weeks, but it got worse. My husband got me in the AF, where X-Rays showed that it was broken. It was put in a soft cast and had time to heal-quicker than what the orthopedists expected. It just needed help. That was B4 RSD. I have extreme opinions that all doctors should have to lay bricks, work as a laborer or load trucks at a feed store before they get a medical license. The 4 best doctors that I had did physical labor before they were doctors-one was a vet student that had to load hay, unload hay, and general work at a dairy farm, as part of his course work, but he made the mistake of saving a cops life at the university. He was sued, and ordered to be a doctor. His education was free-court order. I had 2 that plastered and carried hods with stucco or bricks, besides laying bricks to get through pre-med. The last one was very rich, but he spent time as a working man to see what it was like.