its always bad but the past couple of days has been debilitating and I dont know what to do I'm about to go out of my mind... going to a new Dr. next week and I have to pray he does something to give me some relief... If this is indeed from shingles 2 yrs ago this is no joke and all of you out there please get the shingles shot as soon as u can..I think its for people over the age of 60 but ask your Dr as I apparently got this when I was 48.. I dont want to see anyone go through the pain and agony I go through every day..shine
16 Jul 2012
Don't know when your next doctor appt is with the head of Pain Management. I hope it is very soon. A lot of times, there is a long wait to get into those clinics. It could well be the next drug that you try that could help your pain.
Most people I think have no idea how horrible the pain is from the post herpetic complication like you have from your shingles.
I would far rather have suffered tremendously from severe migraines 24/7 from a stroke. I have needed at least 12 hours of sleep a night, or the migraines get even worse. I'm hardly able to do anything. I've had many many visits to the ER when I was vomiting for hours from the pain. But from what I know about shingles, the pain never subsides, just keeps coming. I would rather have the migraines than shingles. So I do really feel for you.
16 Jul 2012
You mention the shingles vaccine. It used to be recommended by the FDA for people 60 years and older. Now the FDA has changed that to people 50 years and older.
As soon as I found out, I got the vaccine at 59 years old. It used to cost $300 in our area (cheaper probably elsewhere), but now through ObamaCare, all vaccines and preventative care such as mammograms are now free. The risks of the injection are very minimal and the risk of getting shingles is very high.
Even if you have had shingles, you can still receive the shingles vaccine to help prevent future occurrences of the disease.
20% of people will contract shingles in their lifetime
50% of those age 80 and up will have developed shingles
40% of shingles patients over age 60 develop postherpetic neuralgia.
There are 1 million cases of shingles that occur in the U.S. each year
For people ages 60 to 69, it lowers the chances of getting shingles by about two-thirds. And if you do get it, it may not be as severe.
I know how disastrous the pain is from watching my mother's boyfriend suffer miserably with it for the last 6 years--never to get it cured due to his age. He got the post-herpetic complication. I can't think of anything worse to get.
15 Jul 2012
I'm very glad you've a doctor's appointment next week, but in the interim the pain can drive ya nutty. balbanese has a good idea by staying occupied, yet if you cannot get to sleep, maybe your doc could call in something for you until you get to see her/him.
would you please describe your pain? is it a burning sensation, or tingly pins and needles, or something else entirely? adding more description of the pain may help you get answers to your question.
hope it gets better, and fast,
15 Jul 2012
Dear 'shine, I'm so sorry to hear about your suffering. I know before I got pain meds I was absolutely miserable. I am very grateful that I found an understanding doctor who knew that the pain was more of a threat to my sobriety than the medication and relief would be. I almost threw away 4 years sobriety because I was so desperate for relief. Fortunately, I prayed to God and sat in front of my computer thinking, "I'm going to give this 5 minutes and then I'm going to the liquor store." Well that was all it took. In that five minutes God led me to a memorial site for my mom that I didn't even know existed.
I spent the rest of the night exploring the site, sponsoring the site and perusing the hundreds of pages of virtual flowers, banners and dedications that I could decorate the site with! By the time I was done, the liquor store was long closed and my pain was at least tolerable! I went to bed and woke up so grateful and filled with a renewed faith in the power of prayer! Now, I am not a Bible thumper nor do I try to push my beliefs on others and I am now on pain meds (Thank God), but I do have a loving and forgiving Higher Power that I choose to call God and I now know that I am never alone! It was a pretty amazing night really and all I had to do was be willing and open-minded! Anyway, prayer or meditation may help you and I know my Higher Power is going to hear from me about you! Other things I can think of would be: Have you tried a warm or cold bath? Are there any topicals that you think may ease it a little (Icy Hot, Aspercreme, etc.)? It sounds like it is past the point of those cremes helping but even if they can get you through til your appt. Sometimes it helps me to try to get lost in a novel or a movie but other times it is so bad I can't concentrate on either. Sleep meds would probably be a good idea if you can get them even the OTC ones with pain reliever (Advil or Tylenol PM). I know most of these things are not going to help much but if we can just get you through til your appt. I hope at least some of this post helps you, I will be keeping you in my thoughts and prayers. Hang in there and keep the faith that this too shall pass! Let me know how you are doing and keep in touch if you can. Love, Lisa Z.
15 Jul 2012
I would advise reading about shingles to start. This is a very hard and annoying, hurtful and painful thing to go through. Read up on what causes shingles and educate yourself on what can be done. I know a friend who had side effects from radiation and he developed shingles. All they could give him was Tylenol 3 which I really don't think helped. I don't remember how long it took for this to subside but I am sure they have drugs out there to help and vitamins I am sure should help. Do some research, and ask more than one doctor. Ask about topical medication or anything that can help the burning sensation. I don't know any other advise I can offer but please ask around to get more information about this pain and how to get help controlling it. Best of luck...
15 Jul 2012
Back when I was a young lass of 26, I became very ill from a necrotic spider bite, called the brown recluse. The doctor gave me a huge dose of penicillin. This bite causes gang green (sp?). Anyhow, about three weeks later I had a nasty rash I thought might be poison ivy. Turned out to be shingles. He gave me a huge dose of immuno globulin. It calmed down in two weeks.
I have no idea what they treat with these days. I still get occasional itch and sharp pains in the worse spot. Am now 62.
I get very angry with moms who won't give their kids the vaccination and hold chicken pox parties for their toddlers. It is crazy thinking. It is still very common around here to do this. We need more education for this debilitating disease.
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