This isnt really a question. More of a comment or warning?

I've been going to a spinal doctor for a year now. I've had many different procedures done, and every imaging imaginable. I've spent thousands of dollars, but the only thing changing is the doctor's bank account. I'm in more pain now than when I started because of their reluctance to prescribe adequate pain relief medications.

The state of Washingtons new state law says no more than equal to 120mg of morphine a day!

Again I say this over and over again. How can ANYBODY tell you about your pain. There are junkies every where. But you want to control the people that are really in pain. I just don't get it. If I turn into an addict at least I will be pain free. I paid for the drugs and that is my option. I have RA and fibro. Right now I have to make a deceision between surgery on pay attention on
my right hip my left hip my left knee and the pain in my back. I can't afford surgery plus I have already had knee replacement gone wrong on my right knee. Now who can tell me I am not in pain. I'm 62 I have been in pain every day of my life since I was 51. Now the whoever want to control my pain meds. Something is wrong here. How can we protest maybe with our cans,walkers and wheelchairs and maybe walk on washington !!! We have got to do someting.

I have not heard this and this is horrible news as I'm on so many meds including 200 mcg fentanyl patches as well as the fentora spray, 200mcg. They can't back you down!!! I even went through a detox to start over and my baseline pain once the meds were out of my system left me debilitated. I couldn't walk, kept falling down stairs :(((( My doc saw me in his office on a Sunday to start adding meds again. I just had my third spinal surgery a year ago exactly and was taking 70 mg morphine every 2 hrs!!! I'm not on morphine anymore as it didn't help so I'm on the combo of Exalgo, dilaudid (short acting) and the fentanyl. My pain doctor gets so upset. He realizes these people (insurance companies and those making the laws) have no idea what chronic pain is like. It's true.

I am so sorry. We are in the same boat except our doctor is a jerk! You are in my prayers.

They have taking are Dr. patiat right away. use to be between you and your DR. know it's ohio law and insurance companys in the way ... sucks I'm in big pian sucks 48 yrs old have to work hard evry day or die

Thank you caregiver, I think that response was to me. I went through a handful of jerky doctors. I only got mine as a favor asked by my neurosurgeon. I feel for everyone that is treated poorly by their doctors. With all the misfortune I've had, I am fortunate to have my doctor that cares and is an advocate! He's on our side and he's dedicated time trying to educate other doctors out there that chronic pain is real... But that doesn't mean the laws will start coming here and ill be just as impacted. But again, until the pharmaceutical companies and insurance companies who have cornered this market, back off and respect patient care, we as individuals, peons on the street viewed as seekers and abusers are fighting a battle we will never win, especially with the DEA involvement. You are all in my prayers!

I well remember the time when people actually cared if someone hurt. Its all garbage spewed from the media and the government, nothing more. What really gets me is the swing in how we can be treated by society. Had we even suggested someone in pain was a drug seeker, we would no longer have a license, now its the thing to say. Keeping us in pain is not going to stop the drugs on the street, wait until they force us to the street, then the cartels can step up their production and imports. If I hear one more person tell me they don't want us to have them because of fear of diversion I'm going to spit. I've told them all, its so hard for us to get them, we sure as hell won't give them away. Tom's grandson told me he could get me oxycontin any time I wanted it, lolol... ask a dr the same thing and see what he says, lol.
Of course, I can't go to the streets, I need my license too much.

Hi Dzoo, what state do you live in?

I live in Arizona

There has got to be something that we can do I didn't realize how bad this was until I had to depend on my pain meds. I have arthritis ( there is no cure ) but if anyone has it you know it can be very painful. I have had one knee replacement gone wrong now I need the other knee done and both of my hips have arhtritis in them and my back ,, Can anyone tell me I am not in pain every day of my life I am miserable.. something has to be done. we can't control the weather so how can the DEA control our pain.. What do we have to get in our wheelchairs and canes and walker and walk to washington, although I don't have the strength but we've got to do something maybe we should all flood washington with letters or something !
Ms.E

I have RSD. I can't find a doctor in Fredericksburg, VA area who will subscribe subutex/bupromorphene for my RSD. Any help?
I have to travel to Florida four times a year just to keep up prescriptions.
Need Subutex Dr.in local area.

sarah777 so sorry I got your name wrong... Mary

So so true. If they could spend one day in our bodies, they may rethink this!

ajm, there isn't a pain dr in fredericksburg that will order any medication for pain. I used to go to va beach to one, but they took his license 3 yrs ago. Virginia is on a major witch hunt when it comes to pain management docs. There is a group in nova that will, but you need good insurance because you also have to agree to use their other modalities too. Plus you get to fight the mess on 95 while you're in pain. Watch yourself with getting your meds in florida and bringing them into va. You could run into a problem. Florida is having major problems with the dea right now, so I don't know how long you'll be able to get anything there either.

I wish they'd tell my grandson he doesn't have aspergers because it doesn't exist. What does the psych community have to gain by saying this. Surely the drug companies lose this way. As far as drug manufacturers pushing anti depressants on kids, where is this happening, because it clearly states in the info that these drugs aren't recommended for kids under 18.

Well then, obviously we don't have pain, if you only have pain if you can see it, lol... Let me knee one of those DEA agents, then tell him he doesn't have pain, it won't show on xray. Can you tell I'm as ticked about this problem as all you guys, and I've had longer to think about it. The drs really do loose alot, its very lucrative for the DEA to bust them. They ruin lives all over the place and could care less. When they took my drs license, they didn't care that all of us were now without pain doctors and therefore were going to be suffering withdrawals.

The other week I went to see my Pain Dr and he gave me clonidine, Thanks NOT! All the side effect that go with the pill just to allow your blood vessels to relax so the pain med's work better. It is rediculous and Psychologist Dr's push Tramadol, Lyrica, lithium, Seroquel, Trazodone and everything else that I could easily get pain relief from if I want to have more side effects, but I just want one med to do the job!! Also would like to function! Those med's did not sit with me well.
I am getting so mad thinking about it all, because I am going though withdraw from Celxa and wish I new the truth about these drug's before the Dr said it's OK you need it. I am going thew hell!! and I know withdraw causes more pain but I just want to scream!! I don't even know why I am talking, nothing makes sense right now! Sorry all for my ramble I am losing my mind!!

Well lets see, before I was prescribed methadone which cost me about $10 a month, I was on Lyrica, at $150 a month. And that wasn't the only cost, I gained weight, and totalled 2 cars. Never had one accident in my life before that, or after. I didn't really like the meth, so wasn't on very much of it, but the expensive stuff had some nasty side effects and didn't do much. I don't want to be pain free, I want to be able to function so need the pain decreased, contrary to the wonderful example of medical professional wants to think.

I'm so sorry and dismayed to read that so many pain patients are being met with such resistance. I'm lucky -- I have a good pain-management specialist, and I've been on a substantial dose of morphine for a decade. I don't know what I'd do without it. I'm afraid suicide might become an option.

If some of us resort to getting a Surgical pain pump, wont we have the SAME kind of trouble getting the pump filled with our Pain medication? Can you tell me?
Thanks... K

I don't know how they are dealing with that, since you can't divert that. Talk to your doc about it.

I think we all know about pain meds & how they work & about abuse. You are a new member, & have no idea what each of us suffer from day to day. Good for you not having to take pain meds, count your blessings, but click on a few of our profiles & read what the conditions are, & why we are on this site to begin with. Not to be rude, but you say you are in the medical field? Hope you aren't posting in my chart!

or mine!!!

I really doubt he does more then carry bedpans, note spelling.

:o)

Welcome to the site bennyntheejets. You made a interesting point. Thumbs up and thank you for your opinion. Most opinions/view points are appreciated by myself. Regards pledge

Theres nothing wrong with making ur goal to be pain free if possible. Truth is most people would settle for less than that, anything to make thier day functional. My pain puts me to tears and thats with my little 5mg pills thats suppose to take away my pancreatitis. You just dont know what its like until your the one in pain. I agree that many are over medicated, but that really is the minority compared to how many who are un-treated, or undertreated for pain. I could see if they were just looking into validation of whos taking meds with high milligrams to make sure they need that much, buts it seems that they are just scaring the doctor into not prescribing any opiods no matter what.

I have been over medicated before and took 6 weeks detoxing in prison no fun for me they thought it was. but last year was taking 8 to 10 oxycodones a day, yes that's alot to other but that let me work 60+ hours a week of hard iron work. I would be good with 4 30oxycodones + 2 or3 extended releif arethey aloud to write that in OHIO

My pain dr was in Virginia Beach. I'm in Fredericksburg.

Check your pq, Kaismama. I have answered you.

Peace,
Tee

I have 11 diseases & suffer MANY pains. I have been seeing pain management for 14 years now, all they want you to do is therapy! They are horrible I am sorry to tell you this.

I keep saying that in Nov-2012--I had part of my nose and lip removed for cancer. I had lidocaine during the surgery. I was sent home WITH NOTHING. Sherbet was the only pain killer I had.

Even if the politicians might care, they're too drunk on a legal substance to notice. Why can we walk into any store and buy alcohol, yet even with a drs say so, we can't get pain relief? Alcohol kills too, and not necessarily the one drinking.

It's all a few small people in a gov.hoping for a higher position
by acting like "The Gestapo"

you are so right , The street cost is so high, and I'm in a little town now its running over with herion. Crazy The Goverment Is All About The Illegal Drugs,They get the uder ground drugs here then bust you and make the money over and over again.

The thing is, this will never effect them because they have $$ and already probably takes drugs not prescribed. I am mad and have know this for a long time! Those drug mills are everywhere and make a ton of $$ and that's all that matters.

Betcha they're packing their noses as we type.
Go figure, let's piss test them all, see what we find out...

SoMuchPain is absolutely correct. It will never affect them or anyone in Congress stirring up this s&*t!! If you are wealthy enough to BUY your Drs, it wont affect you so much! I agree that there are definite problems in this country. I know areas in Phoenix where pills are used like currency. Lowlife people who can qualify for AHCCCS (AZ Medicaid and I'm NOT saying everyone who is on Medicaid is like this but I know many who are) can get tons of pain meds prescribed to them and pay 2-3 dollars for them and turn around and sell them on the street and pay all their bills with plenty of cash left over! Rich kids get pills off the streets too. It is quite a problem in the high schools but they are not getting those pills from Drs! Diversion is a big problem. I agree that something needs to be done. I wish to God I never had to take another pain pill. If they could give me something non-opioid that would work, I'd be all for it. Just wait and see how much the suicide rates rise in the next few years!

I was thinking about that. I don't think they even realize people kill themselves because they can't stand the pain anymore.

Would't it be nice to be able to tell them they need to do a drug test, but they would just buy them off to! I hate to think about the people that will die from this, it should be illegal to pull you off med's without a months warning and a slow taper. But that would make to much sense!

What you are talking about is an illegal anomoly. People here, on this thread have legitemate reasons for this medication but cant get them in part to places like that and an overzealous D - E - A. We are not drug abusers, we are sick, really sick.
good luck

laura do u still live in Gainesville? i just moved here and was looking for a good PM dr. i broke my neck and have c3-c6 fused. i cant find anyone who will see me here.

So true Dzoo, I am only 50 miles from DC, and would love to go sit on the capital steps with a sign, but I just hurt too damn much.

Right! They cant see it. A person with chronic pain "seems" ok-they dont "look" like they are in pain! They cant point to an xray or an MRI and say-there is the problem, in some cases. That is a thing about MRI's that is BS. One persons MRI might look terrible but yet they dont suffer in any pain and another one may look close to normal and they are in horrible pain. Drs know this but they have to PROVE this to folks with no medical training who are deciding who should and who should not get pain medications. Stupid people who abuse their medications, snorting and shooting them, taking them to get high, etc. are MORE important than legit pain patients. We have to protect those people at the expense of people with pain who take their medications correctly to control their pain and try to live a productive life. I will fight this! It probably wont get me anywhere but I'm still going to fight it.

I do not know what will come of us. I'm here with disintegrated (not degenerated) discs L5, 4, 3, 2, 1, S1 and Spinal Stenosis. It took 2 years to find the Dr I have who says "Doctors don't like patients like you because the can't fix you!"

Once he retires I'll be back to being labeled as a drug seeking abuser. All the abuse out there has hurt our chances of getting HELP with our chronic pain, the press, the futile "Drug War" and on and on have all contributed to making life for us hell squared.

Yep, you are exactly right! I had a wondeful pain Dr a few years ago. She moved to California to take care of her mother. she gave up her pain practice to go back to just doing anesthesia or I would have probably driven several hours to keep seeing her! Once she left AZ, I havent found anyone as sympathetic since! I have heard of multiple people who have gone through situations like yours. Once they lose a sympathetic Dr they get labelled as "drug seekers" Apparently disc herniations and degenerative changes arent good enough to prove you have pain. Others can be like you and say they dont have much pain therefore that invalidates your claim! Does that make any kind of sense?

They cant fix you and so they surely dont want to have to maintain you! You just get passed on to the next uncaring person.

Just have to hope the abusers stop messing it up for the real patients.

You know, I think we need to teach the the government the first principle of pain management "you can't judge another's pain".

Well, first we'd have to teach them how to live in our world in general, for they do not. They live in their own world, and believe me, when they have pain, they can get the pain meds.

Each should do their own petition as this site is controlled for anonymosity. To do this together is a dangerous thing to do. Write to your congressman & get your friends that understand your pain, & family to sign it too. We don't need our personal info spread on face book or anywhere else unless we so choose to do so. This site is world wide, & personally I don't like the idea that anyone can look up my info at anytime, & anywhere... Mary

I said anonymosity??? Meant anonymous or however you spell it! I guess you got my meaning. We need to petition the site for a spell check... Mary

Good point Mary.