I went to the Dr today and was told that I have to reduce my pain medication. My Dr tells me that all of the doctors are getting letters from the DEA and insurance companies that no one should be on medications that equal 200mg of morphine or more unless they have substantial spinal conditions-like a fracture. Apparently herniated discs and degeneration dont qualify. I have been on the same doses of medications for more than 3 years. I have always abided by the rules. I never ask for early refills. I knew this was going to start happening! This is politics plain and simple! Politicians are coming down hard on pain management. Since they cant win the war on illegal drugs, they are going to start fighting prescription drugs. The DEA has to justify it's existance somehow and we legit pain patients are a much easier target! I cant even begin to say how much this upset me. If you dont show MAJOR structural damage on your body, dont expect to get opioid pain meds. This comes right after a few months ago being pushed into considering SURGERY!! Now they are doing a complete about face and trying to tell me there is nothing substantial going on! Is that a crock of you-know-what?! They just cut my OxyContin by 60mg a day and my oxycodone by 30mg a day. Right as I have my family vacation coming this month and my sons wedding in August. I'm going to need help and support from my friends as I go through this-it is going to be hell!
30 May 2012
We have been going through this in Virginia for several years now. Whatever made the goverment think they are able to practice medicine is beyond me. I've called the DEA and told them they had no right to practice medicine, and wished that they all get severe chronic pain and no one would allow them anything other then tylenol. Doctors are much easier to attack, they leave a paper trail. That pharmacy registry of narcotic prescriptions are their instrument of keeping track. It really had nothing to do with watching for people who were doctor shopping. My pain management doctor lost his license 3 yrs ago because he wrote "too many narcotic" prescriptions. Of course he had a lot of patients and we were all chronic pain patients. And for the fibro patients, we get nothing, we're supposed to work because we aren't disabled in their minds, but we don't get anything for pain either.
The government doesn't understand chronic pain, or the treatment of it, but if they show victims in the war on drugs people pat them on the back. The media also needs a good smack for their attitude toward all this because they are the ones who get society behind the Pseudo doctors that work for the DEA. It is quite acceptable in Virginia, and soon more of the country, to treat people in chronic pain as if we were all addicted to illegal drugs, and were a blight on society. We are kicked out of ers because we are "drug seekers". We are berated in pharmacies by pharmacists as drug seekers if we want our scripts filled the day they are due... and its all socially acceptable thanks to the crap the media feeds people. Oh lord, now you've got me going, lolol
30 May 2012
This has been slowly coming, I was talking in my pain group about it a few weeks ago and for people with fibro and RSD and other disease's it has been a struggle the whole time. We have no broken bones just symptoms, it scare's me always has. This is why people turn to buying drugs off the streets the DEA are making more of a mess than any good. They will have more drugs on the streets than ever!
Also for your doctor to cut your med's is cruel because they should stand up for what they practice, and remember you have a problem a real one and most likely have for a long time. This is why I am thinking off getting the pain pump even though it's surgery.
30 May 2012
I have 4 herniated disks and 3 degenerative disks and never been perscribed that many or that much opiates. There calling that abuse and the dr is using them in accsess. Taking like 100mgs of.oxycontin and oxycodone of that amount is killing people nation wide. Pain meds are to make the pain managable not painless. Thats why drs. And ur dr is being questioned about this practice. And im sorry that u have been on this amount yes it is wrong rite from the start. And im very sympathetic and im sorry about this whole stinking mess. And yes i am in the medical field. So feel free to write back. I know its hard and wrong but i get these letters too.
30 May 2012
This whole scenario scares me to death. I saw my family doctor this morn and was in severe pain with my fibro involving my left arm. She asked me the last time Id seen my gastro Dr. She had to make sure Id not been prescribed anything for pain by him. She has a list from the pharmacies that I've used that shows every single time I've been prescribed a pain medication. She had cut me off completely 3 months ago because of her fear of the DEA coming down on her. She said that she had been prescribing pain med for me for almost a year and I should have been sent to a pain mgmt doctor a long time ago. Now Im in the process of going to a pain mgmt doctor. What do I have to look forward to? I can't work, I can't function because of all the pain, I don't know if I'll get my disability.
Politics has ruined everything in Va. I know, I live here too. The drug seekers have ruined it for those of us who truly need the help. The whole month of Jan, I had 5 major attacks with my paralyzed stomach. By the 3rd visit, I was treated like a drug seeker. I was treated differently each time I came into the ER. It was wrong, but what could I do? Now after reading all of this, Im worried about how I'll be treated when I see my pain mgmt doctor. I wonder how he will treat me. What do I have to look forward to?
Lost and worried now,
30 May 2012
I am so totally not surprised. In fact I expect it to get worse because the politicians have nothing better to do like cracking down on the illegal stuff. The deaths of two idols who were abusing drugs is the reason why and the one's of us who are legitimate and need help will not be able to get it.
30 May 2012
OMG, I know Florida has a major problem with pill mills, I was referred to one by my PCP up in north Florida, a pill mill was located in Gainesville, and the place sent employees out to surrounding counties recruiting patients. I asked about it, the nurse gave me the name, get this, Gainesville Wellness Center, and phone number. I called and was told by whoever answered the phone, I needed to live within 60 miles of this place, a Florida ID, recent xrays and/or MRI's, it cost $250.00 a visit, had to fill the scripts there on site, ad nauseum. I about pooped in my pants. Was pissed off and told everyone I knew it was simply a pill mill, would stay long enough to make an ungodly amount of money, then pick up stakes and move somewhere else, hopefully ahead of the DEA. I can't tell you how many pain docs than were supposed to be practicing in town to find, when I called, numbers were no longer in service.
That tells me a lot of the reason, at least in Florida, that the DEA is here. That and the 200% rise in drug related deaths since 2009. The whole situation sucks and our criminal governor keeps signing sh**y bills into effect, more regulations on physicians and their medical practice. Docs are losing their licenses, going to jail, paying massive fines... and these are the good guys. I guess I'm going to have a heart to heart with my new PM doc and find out his feelings, although he is a board certified anaesthesiologist, I'd like to get his feelings on what I can only call debauchery. I frikkin don't believe it. I would like all the DEA agents and government officials to feel excruciating pain for a month, then see what happens.
I am so angry, I think I'm going outside to scream a few really nasty words as loudly as I can, then my throat will be so sore I can't talk.
OMG, this is unbelievable.
31 May 2012
this is slightly off topic but points to what you said Dzoo about the cycles turning around 180 degrees with policy. They did the same thing to the mentally ill in the 70's and 80's, closed all the mental institutions and put those folks out on the street to be homeless and prey for the more aggressive homeless. I worked the city streets and deserts in this country for the homeless in many states and I know first hand that 75 % of them are mentally ill, then the vets and then the others. This was the reaction to too much hospitalization for the mentally ill, maddness. To go out at night and see women in their 60's and 70's staying awake all night so they don't get raped stays with me. always.They sleep under trucks for half hour at a time etc... I digress. The chronically pained have now become what we used to call in the field the "throwaways"...
31 May 2012
How many of us are on this site, that are in pain??? With all the grassroots sites starting on social media, why can't we start petitions to the media, the politicians, wherever we can? We have quite a few people on this site alone, and like I said, with the social media, we have to make a stance!! My PM cut me WAY down on meds, with the hope of starting me on a new med in two weeks time, but what if she doesn't? What if she does start me on a new med, but in a lower dosage than is necessary. Yes, I did use the walker at my son's wedding, and no, the activities didn't keep my mind off the pain. I SAT, getting up only for pictures. Up and down, up and down, I was crying by the end of the night. I hadn't even changed my meds yet. It was the old meds that I was on. It was also a buffet, so we had to go up and get our food. I barely visited with all the relatives from out of town...
they had to come to me, and I felt like a fool when I danced with my son (the only dance), as I was having him hold me up, we laughed about it, but I was really embarrassed. I can hardly "wait" to see the pics. I never realized that the kyphosis was so bad until someone took a picture of us walking down the aisle. Anyhow, back to the subject at hand... didn't congress pass a LAW several years ago saying that people had a RIGHT to have pain treated as any other illness,, and that people had a RIGHT to be treated equally. Hubby is looking this up for me tonight. Florida passed a similar law.
It's not the pill mills doing this,nor the pharmaceuticals. It's the insurance companies putting pressure on medical bills, and then blaming others (such as attorney's and car accidents), for the problems. I truly believe this. They have some of the biggest lobbyist groups in this country. Check it out yourselves if you don't believe me. They are the ones who are influencing the DEA! Just look at how big pharma can affect the FDA, and pass through meds that are dangerous to us. My hubby is in chronic pain from a car hitting him, and he can't even get Celebrex because they don't want to pay for it. Imagine, he doesn't want narcs., he wants CELEBREX, but he also has extremely bad GERD, so he can't take NSAID's. They won't pay!!! We are fighting this, and he fights insurance companies everyday for other people in chronic pain.
We need to write our congressmen and women, state, and country. EVERY ONE of us has to do this. I will personally send them a copy of my MRI's and ask them to live a day in my shoes. This is an election year, when people can really be heard. We can't just sit by b@tch ing to each other. WE ALL HAVE TO DO GET TOGETHER AND DO SOMETHING! It's easy to find your "representatives" online and write and call them, and have every one you know do the same who is in pain. Remember, their names... REPRESENTATIVES. They represent us, and have a constitutional oath or threaten to have them unseated. We have just as much rights as someone who has cancer to be treated as humans, not as drug addicts, just because the cause of our pain is not (hopefully) life limiting! With looser laws and less and less 'government intrusion' more and more people are getting hurt at work, or by automobiles from texting etc. People want less government, and this is what happens. No one is watching the baby, and people are getting hurt, because these big companies don't have to pay out the monies to protect their workers, or insurance companies not wanting to cover car accidents. How many of you guys were hurt as a result of work or an accident? Who do you think pays for your pain? The insurance companies, and they are the biggest businesses in the country. Just look at any big downtown office buildings, and look at who owns the buildings? With the crashes at wall street, and poor investments of the 90's, the insurance companies are trying to make up their lost money. It costs them money to carry so many people on disability or pay for pain meds. The cost of disability is sky high, and insurance, along with the American people don't want to pay for it anymore, so they blame us. Let's do something, together!!
31 May 2012
So sorry Dzoo this has happened to you. I was really fearful when my brother moved from Tcson to Washinton state he would run into trouble getting his pain meds there, but so far so good. His condition has deteriorated to lymphoma tho', so it's understandable they are going to try to keep him comfortable. I was hoping to ask my pain doc when I see her in June for an increase on my pain meds of oxycodone 15mg. They mail me the ones in between visits every 3 months. Well, my May script came in the mail as usual, but also included Junes. Hmmm. Makes me wonder why they would have done this, & maybe you have hit on something . It's pretty obvious I have an appt. on the 21st of June as they give you your appointment when you are there for the last visit. I tucked it away in our fire proof box just in case.
If the house burns down, I doubt I'd get another script! I had my husband make an appointment with my pain doctor as he was still going to the one I used to go to, & all they would prescribe him was methadone also. He hates it too, & it doesn't control his pain. My pain doctor saw him last week, & told him the only thing they could do for him was a morphine pump in his spine. Well, first of all he's not suppose to have surgery because of his rate of infection, & he told them that. My doctor who has always been compassonite told me on my very first visit, that my other pain clinic could have given me vicodan(at that time), but didn't want to adhere to the new rules of testing etc... They still do not do urine testing or anything, but all they prescribe is methadone. They are all anestesiologists too. So is my current doc. It better not be the battle I am begining to think it's going to be. I am barely able to function at 15mg. of oxycodone. I do have the MRI's to back up my claims of the mess my spine is in, & may be getting a new one soon because I am having a new problem in a diferent area. It's pathetic to think with all of Garys problems they won't give him medication to live out his days in some comfort. A morphine pump to the spine is just going to help his spinal pain. Isn't going to help all the other pain he has all over his body. Yikes! If this is becoming a truth here too, we will both be in wheelchairs before too long. Won't be able to drive or anything! That scares the you know what out of me! We don't have anyone to help us out. I hope & pray this is not the case. I would love to go see my brother before he dies, but can't drive that far for sure, & if they take my pain meds away, the whole idea would be futile anyway. No one has that right, & I will fight it to the bitter end. Count me in. My congressman will have a letter on his desk by morning! (whatever good it will do) I have a nephew that is a DEA agent, but his job is to curb trafficking from Columbia of heroin so I don't put the blame on him what so ever. Not all are bad you know. It's the big wigs that are running all of this. You can bet on that.
1 Jun 2012
The gov won't admit their "war on drugs" has been a complete failure.
I mean, heck! Obviously there aren't fewer dope dealers, dope users, back-alley dealings, drug violence, etc.
It was a stupid idea to begin with (catchy name, though, huh?).
They are now forced to keep up the pretense, simply to avoid embarrassment.
Now (and for quite a long time) this has become a war against doctors and sick people. Plain & simple...
We suffer. Docs are (rightly) terrified of losing everything they've spent their entire lives working for AND getting branded a "dope doctor" if they dare try to alleviate (or even manage) the suffering of the ill - especially the chronically ill.
We & the docs pay the price, while the illegal dope trade flourishes...
All because the government won't admit their utter stupidity.
Even good docs who want to help sick people are terrified to help us...
The shame of it is, every time they arrest a good doc (& steal all his property) the govs pat themselves on the back & claim "victory".
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