Have PA, age 61, and after 9 months of methotrexate, and 5 of Remicade, I am worse. Went off all chemo drugs 6 months ago, and the psoriasis is out of control. never had that before. Don't want to go back on Metho, any ideas???
13 Mar 2011
The only thing I have read about is diet. Going gluten free and dairy free and no pork. I have not done it. There is low Doseage of antibiotic and Low Dose Naltrexone. There are yahoo groups for both of these. I haven't tried either yet. I am about to start Enbrell. Those are the things I have found doing research. I hope any of this helps.
10 Oct 2012
I live with multiple autoimmune illnesses. One of the most recent is PA. I have a rare form know as pustular psoriasis. I am on prednisone, methotrexate and Symponi.
No drug cleared my psoriasis. It wasn't until I went on a gluten-free diet that my skin cleared.
I've known for years that I most likely suffered with celiac disease. It runs in my family. My drs have informed me that autoimmune problems run high in undianosed or uncompliant celiacs.
If your symptoms are not controled by medications, please consider being tested for celiac disease. But DO NOT go gluten-free before testing. Otherwise you may end up testing false negative.
7 Sep 2011
63 years old. Had psoriasis for 50 of them. I could not take Embrell. It almost killed me. The psoriasis came back worse then I ever have had it, Remicade for sure took my sister in laws live. I am now trying stelara. I am scared of it but I was itching and flaking so bad I just had to try this. I am clear after 2 months . I have 1 more month to go before next shot. I am starting to see small specks of psoriasis. I need so for this to work and not kill me.
1 Apr 2011
Psoriatic arthritis can manifest itself with the different joint findings and symptoms and these symptoms can change over time. I think you need proper diet and a good doctor guidance also. The psoriatic patient should be requires not only a hand surgeon but also a hand therapist, rheumatologist and the patient’s primary care physician. In addition, there are many self-care strategies you have to use to manage your symptoms and feel better overall.
15 Mar 2011
My husband has had horrible psoriasis since 1979, & by coincidence the same time he became disabled due to back problems. He's had 10 back surgeries, about 20 on the abdomen , 2 neck, etc... Everytime he has surgery, or his pain is completly out of control, he has horrible flares. He has tried & did everything on earth to help, & nothing did until he started taking the Enbrel shots at home. His dermatologist (newest one) gave it to him, & it's been unbelieveable! He completely cleared of the psorasis. He also has the arthritic kind. He will aways have pain because of his many conditions, but the psorasis is under control. When he has a flare he starts the shots again until it's gone again. Works everytime. The only drawback is Enbrel & there is a new one also strickly for psoriasis, but I can't think of the name of it, does distroy your immune system while you are on it which can lead to a whole host of other problems.
My husband is diabetic, so when he has to take the shots, he has to be very vigilant about his health in general. Also they test you for tuberculosis before you can take these shots. Can be very dangerous if you have ever had it. Anyway, I guess my suggestion would be to talk to your Dermatologist about Enbrel shots to help you in your situation. Good luck to you, I know how miserable it can be.
15 Mar 2011
Hi: I can't add any info to this, but thought I would ask a question here, as my husband has psoriasis. Above, someone mentioned diet: no gluten, dairy, pork. I have never heard that before... has anyone found that it really makes a difference?? My husband can't tolerate strong meds, so does not want to got on them for this. I am trying to find him a more homeopathic approach, like diet and possible supplements??
From what I have read, psoriasis is an auto-immune disease, so I would think that flares could be triggered by additional stress--is that correct?? What about different weather conditions? Anything else you guys can add?
Thanking you in advance for your help on this!! Mary, the madhatter.
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