Have PA, age 61, and after 9 months of methotrexate, and 5 of Remicade, I am worse. Went off all chemo drugs 6 months ago, and the psoriasis is out of control. never had that before. Don't want to go back on Metho, any ideas???
Psoriatic Arthritis -what else can I try?
- Posted:
- 13 Mar 2011 by Grandma23
- Topics:
- remicade, psoriasis, psoriatic arthritis, methotrexate
Responses (8)
13 Mar 2011
The only thing I have read about is diet. Going gluten free and dairy free and no pork. I have not done it. There is low Doseage of antibiotic and Low Dose Naltrexone. There are yahoo groups for both of these. I haven't tried either yet. I am about to start Enbrell. Those are the things I have found doing research. I hope any of this helps.
God Bless,
Terrance
15 Mar 2011
My husband has had horrible psoriasis since 1979, & by coincidence the same time he became disabled due to back problems. He's had 10 back surgeries, about 20 on the abdomen , 2 neck, etc... Everytime he has surgery, or his pain is completly out of control, he has horrible flares. He has tried & did everything on earth to help, & nothing did until he started taking the Enbrel shots at home. His dermatologist (newest one) gave it to him, & it's been unbelieveable! He completely cleared of the psorasis. He also has the arthritic kind. He will aways have pain because of his many conditions, but the psorasis is under control. When he has a flare he starts the shots again until it's gone again. Works everytime. The only drawback is Enbrel & there is a new one also strickly for psoriasis, but I can't think of the name of it, does distroy your immune system while you are on it which can lead to a whole host of other problems.
I should have added, that at one time they gave my husband methotexate along with prednisone because a doctor thought he had Chrohns disease (which he didn't), but the combination of the two meds, cleared up his psoriasis! Kinda of neat for him, but prednisone over a long period of time, can cause it's own problems too. Just thought I'd add that since you said you have tried Methotrexate.
Glad that Enbrel did wonders to your husband condition. Re: immune system problem. The thing is that psoriasis as well as diabetes and a handful of a few others, is considered an autoimmune disease, so the meds have to suppress your immune system and this way, make the condition better. Most of psoriasis meds are immunosuppressants. I would stay away from taking steroids for a long time, as they can predispose you for osteoporosis, and you don't want to have that.
15 Mar 2011
Hi: I can't add any info to this, but thought I would ask a question here, as my husband has psoriasis. Above, someone mentioned diet: no gluten, dairy, pork. I have never heard that before... has anyone found that it really makes a difference?? My husband can't tolerate strong meds, so does not want to got on them for this. I am trying to find him a more homeopathic approach, like diet and possible supplements??
From what I have read, psoriasis is an auto-immune disease, so I would think that flares could be triggered by additional stress--is that correct?? What about different weather conditions? Anything else you guys can add?
Thanking you in advance for your help on this!! Mary, the madhatter.
Mary, as I said in my comment that my husbands always flares with surgery, or pain flares he says, yes it is the stress. Also that weather too hot, too humid, too cold etc... Sometimes there is no special reason. He would never try the diet thing. It's hard enough to get him to eat correctly for his diabetes. If you try it let me know how that works out, please? Mary63
Thanks, Mary, I will! Luckily, neither of us is on a diabetic diet, so we have more leeway. I HAVE tried to get us on the 'cleanest' diet I can (no pesticides, hormones, etc.), but my husband is of a different generation, and not as open to change. I have IBS, and have been trying to eliminate gluten and dairy for quite awhile now. I am not ALLERGIC to them, but rather 'sensitive' and these cause me upset. The dairy has been pretty easy for me, as I don't drink milk and don't really care for ice cream; however, the gluten is a lot harder, as it seems to be in everything!! Luckily, I am a protein preson and not a addicted to carbs!! :)
1 Apr 2011
Psoriatic arthritis can manifest itself with the different joint findings and symptoms and these symptoms can change over time. I think you need proper diet and a good doctor guidance also. The psoriatic patient should be requires not only a hand surgeon but also a hand therapist, rheumatologist and the patient’s primary care physician. In addition, there are many self-care strategies you have to use to manage your symptoms and feel better overall.
7 Sep 2011
63 years old. Had psoriasis for 50 of them. I could not take Embrell. It almost killed me. The psoriasis came back worse then I ever have had it, Remicade for sure took my sister in laws live. I am now trying stelara. I am scared of it but I was itching and flaking so bad I just had to try this. I am clear after 2 months . I have 1 more month to go before next shot. I am starting to see small specks of psoriasis. I need so for this to work and not kill me.
If I had just psoriasis I would try glycerin and witch hazel non alcohol before Enbrel or any others. I had psoriasis for at 35 Years before psoratic arthritis hit. Then I was all but bed ridden it was then a easy choice lay in bed most days and be incredible pain and wonder when I would be addicted to drugs. Or take some thing that might give me cancer.
10 Oct 2012
Hi..
I live with multiple autoimmune illnesses. One of the most recent is PA. I have a rare form know as pustular psoriasis. I am on prednisone, methotrexate and Symponi.
No drug cleared my psoriasis. It wasn't until I went on a gluten-free diet that my skin cleared.
I've known for years that I most likely suffered with celiac disease. It runs in my family. My drs have informed me that autoimmune problems run high in undianosed or uncompliant celiacs.
If your symptoms are not controled by medications, please consider being tested for celiac disease. But DO NOT go gluten-free before testing. Otherwise you may end up testing false negative.
Alyx
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I have had PSA for years now, and have never heard of antibiotics as a treatment for it. Yahoo must be having this incorrect. Antibiotics are normally prescribed for inflammations/infections, while PSA is an autoimmune disease. Besides, antibiotics are not harmless, best not to take them without a good reason. Ever heard of a certain-antibiotic-resistant infection? Ditto for diet lol; mine is virtually gluten-free, dairy free, and am eating chicken only no pork, although am not averse to pork, it's just that chicken costs less & cooks faster. It looks like Enbrel is my answer, hope not to develop side effects.