After 4 successful years on prograf due to a kidney transplant, am I doomed if I have to make the switch to generic tacrolimus? I have been told by my transplant team the generic has not been sufficiently tested, and do not switch! What's the deal??
17 Apr 2010
Well, this isn't much of an answer, but I am switching to generic today--just took my first dose. I adore Prograf, have for 6 years, but since I just rejected my liver and we'll have to monitor it so close, it's a fine time to try the generic on for size. I don't really wanna switch, but it might be a fine change. My father reminded me that it's the same chemicals, just marketed by different people as he reassured me about new side effects. I guess I'll have more to report to the my transplant brothers and sisters in the coming weeks. (Ps--take care of that kidney!)
19 May 2010
I was forced to change over to the generic for prograf because my insurance does not pay for the name band. I am 5 1/2 years post liver transplant. I change over to the generic brand the 1st of January. Since March I have had elevated liver fuctions. My doctor did a biopsy last week and I have a liver rejection. I am now on the brand name prograf with higher doses to get the rejection in control. I had my blood drawn almost weekly. Thank goodness my Dr was following me closely. I think there has not been enough testing on the generic to be perscribing it to patients. Now I am going through the side effects of being on high doses of prograf.
24 Oct 2011
I had a liver transplant three and a half years ago, I have been taking this generic for over a year and praise God I have not had any problems with it at all. I am monitored closely, monthly blood draws by Mayo Clinic. I am one of the lucky ones. I waited over two years for my new liver, after being very sick for over five years.
8 Jan 2013
Hey guys & gals. I received my liver transplant back in 1990 for PSC. Back then prograf was called FK506. It was experimental at the time. When the generic was available, I was switched. I get my blood work done ever 2 months and I have not noticed any difference. However, it would be wise to become educated concerning your blood work and your trends.
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I started to develop bursitis 30 to sixty days after using Tacrolimus.The symtoms were stiff muscle , joints and tenderness in the joints
1 answer • 22 Apr 2010
I'm a kidney transplant patient (May 10) and my latest labwork shows my Prograf level at 3 times the normal limit. I have retested but worried ...
1 answer • 9 Mar 2011
... of tarcolimus ? I've many and am struggling with these issues and I just wanted to know if I'm alone in these experiences ?
3 answers • 7 Dec 2012