I have chronic back pain for approx. 20 years. Have been seeing a pain management Dr. for 3 years now. Have done everything asked of me. I had an external pain pump about 2 months ago and had Prialt in it. I was sick with nausea, vomiting, dizziness and severe migraine. He told me there are many different medicines we can put in the pain pump so I went ahead and had the internal pain pump implanted about 1 month ago. The Dr. put Prialt in it again saying my symptons were just stress. I have a history of severe migraines and right after he put the Prialt in I had a severe migraine for 5 straight days and nights with no relief. I went to the pain Dr. and he took out the Prialt. He has been deciding what to put in and I went in today and he said the Prialt does not cause headaches, nausea, vomiting or diahrea. He said we are putting it back in or you can have the pump taken out. What is up? Does Prialt cause my migraine headaches or not? Why is he all of a sudden so adament about this Prialt? Is he getting a kick back from Medtronic for using it? It costs 3000.00 for 1 vial and he has already disposed of 2 of them. I have never had a problem with my dr. I have had random drug tests and med counts for 3 years and have never been short even 1 pill. Why all of a sudden would he want me on only this medication that made me have such horrible migraines and other symptoms. Does anybody believe the Prialt cause the migraines. He said because the migraine left the day after the Prialt was taken out the Prialt was not causing the migraines. Also have a mass at site of cath..Anybody help with my questions and/or concerns before I let him put this medicine in again... Thanks in advance !!
13 Jul 2013
It looks like your doc disagrees with the FDA info on the med. Here is the site that has the side effects of prialt. http://www.drugs.com/sfx/prialt-side-effects.html-Be sure you show him the area with the swelling. I would ask him why he's so insistant that that drug is used.
13 Jul 2013
you should talk to your primary dr. I have been to 3 different pain clinics and they al l want to just do injections or give you certain medications. I have tried a few different meds that gave me a lot of side effects and all they said was I never heard of that or other people get that too. they don't personalize care, they just give everyone the same things whether they work or not. sounds to me like you should switch pain clinics before you get in too deep because they will start putting things in your file that aren't true,(I tried to switch clinics and previous one put all kinds of lies like I was high risk and depressed and dr shopping.) now I just get meds from pc and injections from pain clinic. talk to pc. ask if they know any other pain clinics.
14 Jul 2013
My husband had the pain pump implanted a year ago and our lives have never been the same. Some people can not use the Prialt and he is one of them. The sad thing is that we had a hard time convincing our pain doctor that the Prialt was causing his problems even though that was the only thing that has changed in his meds. Even after a trip to the hospital by ambulance then transferred to a larger hospital for 3 days. The next time he was hospitalized 4 days in ICU and even on the ventilator for a day. The pain dr still did not believe it was the prialt. Thankfully he had one of his episodes in the pain dr office. He would go into a catatonic state for hours at a time. The
Prialt was removed and dialodid put in in January. This all took from July to January. Still in a lot of pain. On Tuesday they are changing the meds to a mixture of dialodid and a numbing agent.
This has been a complete nightmare for us. He can't drive anymore, can't stay awake, a lot of memory issues and there are times I can not leave him home alone. Again all of this has happened after Prialt. We have ruled out other causes. Has had many CTs of his brain and even had a PET scan of his brain. We are at a loss. He has degenerating discs. He has shrunk 4 inches. The discs are gone. No surgery can help, just control the pain. He can't even enjoy his grandbabies or go on vacations. Before the pain pump implant we would vacation 3 to 4 times a year.
Sorry for going on and on but I wanted to let you know what Prialt has done to our lives. The pain doctors don't want to believe the med is the problem. They need to ban that drug. Many lives have been changed and not for the better. I wish you a lot of luck with your doctor. Please keep me update.
15 Jul 2013
When you have a pain pump you pretty much marry the pain dr that put it in. It's very hard to change doctors. Check out a support group for those with pain pumps called Pumpsters - it's on Yahoo - they might be able to help. No one can tell you that anything is not a cause of YOUR migraines. Everyone is different, and migraines can be very specific as to what triggers them. Best wishes - EJ
24 Aug 2013
There is a phenomenal pm doc named yeshvant Navelgund. I have worked at the same hospital in wv at Wvu hospital as him and I am now his patient in Jefferson hills, pa. He has several partners thru his practice but he was my top choice in the tri state area. I have Chronic regional pain syndrome in nearly my entire body that makes my body scream daily. If one method doesn't work and you need another way he is the man I would look to for answers for help. So god bless in your healing journey an please just google him dr Navelgund is a caring family man who will be willing to help
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