Prescribed medication for Fibromyalgia & Chronic Myofascial pain?
- 5 Aug 2013 by Emeraldgirl
- fibromyalgia, dosage, chronic, medication, chronic myofascial pain
I would like to get an idea of what prescribed medication (and dosage) people take for Fibromyalgia (FM) and Myofascial pain (MP). I am due to see my specialist with a view to come of Lyrica as it is non-effective and my weight gain is getting out of control. I have continued with it for 3 years (On maximum dose for 1 year). I know from a previous question that I posted and from reading other peoples Q & A that there is no miracle drug or drugs, but to get an idea of what other people take would be a great help, thank you.
5 Aug 2013
At this point I don't take much for it. Nothing has really helped, except I take gabapentin and effexor. The gabapentin helps take the edge off. The effexor helps my depression but I don't think it did much for the pain. I take 100mg 4times a day. The effexor is 150 a day. Everyone seems to take different things and at different doses. It takes a while to find out what will help.
7 Aug 2013
I've had it. 18 yrs. tried everything. Right now I'm on Valium (pain Dr said its strongest muscle relaxer, also helps sleep, Trazadone 50mg for sleep, Citalopram, propranolol 80mg for headaches, tried Lyrica, Cymbalta & Savella. None helped at all. I even tried Topamax Suppose to get to 250mg day. But at 100 mg my eyes were hurting SO bad I started having double vision, so I stopped.
The ONLY relief I get is Oxycodone 7.5/325mg.im only allowed 2 per day. It doesn't get rid of pain. But makes it bearable to sleep & function, to a point. For about 3 hrs. Calms my mind.
I've found nothing else that helps me. And I've been a guinea pig for almost 2 decades trying to get relief.
7 Aug 2013
I've tried just about everything and not found relief, well not much. Gabapentin was/is a nightmare, but I was on the highest dose prescribed, 3400mgs! I've since gone down to 600mgs and felt NO difference in pain levels. I too have both conditions plus something called spondylolisthesis in my back.
Very painful. I was so allergic to Lyrica that I got "cankles" or my ankles swelled up so badly that they looked like my calves! Funny, really.
I do take oxycodone a few times a day and it does take the edge off a bit, plus I've a myriad of muscle relaxers that I can switch around, that way I don't get dependent upon a single one. I've been going to a PM doctor, but she really isn't helping me. She does trigger point acupuncture and laser-acupuncture or something she calls "reeducation" of my muscles, which I don't quite understand but I'll try almost anything at this point.
Oh yes, gabapentin has me craving sugar so badly that I've gained weight. Ugh.
I suppose you must keep trying to find what works for you. I did try an acupuncturist who came highly recommended and she was fantastic, I had almost 24 hours of relief from my first session with her, it really was incredible but the sessions began not working. I walked in there a total skeptic and walked out believing that acupuncture has it's merits. But, like I said it did sort of wear off, for lack of a better term. Try everything you are offered by your doc, unless you know you will have a problem with it. We all have to fight our hardest to mitigate the pain a bit.
I just bought a book by Devin Starlanyl on amazon, Fibromyalgia and Chronic Myofascial Pain, A Survivors Manual, it's actually a good book, I really recommend it. There is a newish question By Sara, don't know if you know Sara, but she has recommended books by Dr. Clauw. He is supposed to be quite an expert! (But his books seem to be a bit expensive to me.)
I hope you find some relief, it's difficult to lead ones life in chronic pain, isn't it? Just keep fighting!
Best to you,
P.S. I tried Cymbalta and had an allergic reaction to that as well. Also tried Topamax which was really bad! I felt stoned and I also felt like I was freezing and couldn't tap into my own vocabulary on that stuff, I was "word hunting" for a month on Torpormax! Gabapentin has a similar effect on me, my memory is pretty bad and I hunt for words on it as well as Topamax.
(I get a kick out of calling it "Torpormax"!)
7 Aug 2013
I've had FMS for 25 years and used to have periods of remission when I actually though I'd been misdiagnosed. That hasn't happened in 10 years. I've been on most of the meds mentioned in other responses. Cymbalta and Savella were the WORST. Now I'm on nothing but Xanax when I have anxiety attacks because of pain,oxycodone when the pain is unbearable and valium when muscle spasms in my neck and back are intolerable. We've all heard the talking head MD's who don't have this condition and are afraid they'll get in trouble for prescribing "too much pain medication." I have an appointment with a new rheumatologist who I am hoping will prescribe LDN (low dose naltrexone) which I have researched and seems to be very effective for FMS but not well known since the big drug companies don't make any money from it. I'll let you know what happens.
No one knows what chronic pain is until they've experienced it for at least a month. Good luck. This is a great site for understanding and caring people. BRuthD
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