PMR is Polymaliga Rheumatica, pain in the joints and muscles. I am now on Prednisone and tapering wondering if there are others with this problem.
Anonymous Prednisone - Anyone out there have PMR?
- Posted:
- 25 Aug 2009 by Anonymous
- Topics:
- pain, prednisone
Details:
Responses (14)
suzanne663 Sep 2009
You will probably get a better response in the drugs.com forum...
PMRtired18 Oct 2009
I was diagnosed with PMR about 5 years ago, been on prednisone since that time. Now starting to think the diagnosis is wrong because the only symptom I am having periodically is legs start to ache, tighten up and get stiff. There is no pattern or paticular time for the pain. I have no pain or stiffness in the hip area at all.
fellini
Sacosam
21 May 2010
Hi fellini [like your handle] I read you loud and clear. I'm looking for the same thing, only I think i've found one. My Doc. reluctantly let out the name of an alternative, but PMR has temporarily knocked out my short term memory and it'll be 3 weeks 'till My next appt. Put some pressure on your Doc. to give you an alternative, and then POST IT, as will I as soon as I get it. Sacosam
StangHer
9 Jul 2010
My mother has PMR and her doctor has her on Prednisone. She is now losing bone mass due to the prednisone. She and I both would like to hear of an alternative medication to take. Please post it if anyone out there knows or has heard of an alternative. She has been on Prednisone for more than a year.
sandy war...18 May 2010
Anon,
I detoxed off the Prednisone 3 weeks ago and still have pain in joints and muscles. Not counting many other side effects - moon face, anemia, increased appetite, insomnia, anxiety, huge stomach, weakness, cramps from lack of potassium (even tho I'm taking a supplement). My doc said to take 2000 mg of Vit D daily for the aches and pains and I started that about a week ago but so far no help. Maybe it takes a couple of weeks.
fellini
19 May 2010
I made an appointment with another doctor to get a second opinion regarding medication options. I feel worse than terrible, but, I just don't think I can take Prednisone again. I took it for a different reason when I was younger. I am going through post tramatic syndrome just thinking about taking that medication again.
Sacosam
19 Aug 2010
Hi; Me again... IV'E SAID IT BEFORE AND I'LL KEEP SAYIN' IT 'TILL IT GETS THRU YOU PEOPLES THICK SKULLS... "WHOLE MILK... WHOLE MILK... WHOLE MILK... [I drink 2or 3 GALLONS a week, and my skeleton (ALL) is perfect]. IF FOR SOME REASON YOU CAN'T OR WON'T DRINK WHOLE MILK [you won't get fat] GET SOME LIQUID CALCIUM BUT MAKE SURE IT HAS ADEQUITE (sp?) MAGNESIUM IN IT. ALSO, POST MY FRIEND "MASO 4169" AND FOR CHRISTS SAKE, ADMIT THAT YOU HAVE THE ONLY KNOWN "OLD FARTS DISEASE [POLYMYALGIA RHEUMATICA] PMR AND YOU NEED HELP. for what it's worth, i'm 71. Before PMR hit Me, I could swim a mile "UPRIVER" [you see more that way!] and I could bench press 100lbs.+ 10 times. when this "malady" is gone i'm gonna get back in shape. There ain't nothin' wrong with bein' old except when you let yourself get oughta' shape, you look and feel pretty stupid. You don't hafta hide ! ! ! "GET ON THE GOOD FOOT"!!!
SACOSAM
Sacosam19 May 2010
Hi anonymous: Good luck. I went down to 1 1/2 and thought I was gonn'a die. I'm at 2 now and staying there. They're are other drugs out there but all i've done SO FAR, is find that out. Help Me out ok? Get on your DR's butt as He/She knows about them but wont tell you. WHY? ? ? You find out anything posative, POST IT! If I find out anything posative, i'll POST IT! P.M.R. has to be among the 10 sorriest of diseases. You have read some of the bad stuff above but outside the pain, let Me give you one more sorry situation: POLYMYALGIA RHEUMATICA has eaten 60 lbs. of MUSCLE... not Fat... MUSCLE , from My body. I was [at 70-71 yrs.old] an athelete who could 10 rep. bench 200 lbs. , and swim a mile without breathing hard. I weighed 220lbs. +/_... I now weigh 162. I can still stand , I won't try to swim ,
20 May 2010
Hello anonymous; I have PMR [8 mos.] so I'm not really "Hip" to this disease! Anyway, for what it's worth ,quoting the wonderful loser "ELMER FUDD"... "be vewy vewy caweful "! LOL. I started at 20mg. [4mos.] then tapered to 7.5mg in 17 weeks. Not only did I have to start over at 20mg.,but I also got hit first in the neck & shoulders , then elbows, wrists & hands , with the worst shots of pain [especially my thumbs & fingers] that I've ever felt , and should anyone have any ideas as to how best to deal with this , no matter how crazy they may sound bring 'em on... PLEASE ! Also , how does one cure "SAUSAGE FINGERS"! (:->) as all 4 fingers on both hands are swollen to where I can only partially close my hand... and all this , according to my N. P. [whom I believe is "nummer than a pounded thumb"!] is due to the fact that I tapered too fast! so , as Elmer says " be vewy vewy Caweful"! Sacosam I am !
StangHer
19 Aug 2010
I was reading on the internet today that Medical Marijuana has helped with the pain an inflamation of Polymyalgia. I know you can't believe everything you read on the internet, so I wondering if anyone has actually tried it. I know for a fact that the medical marijuana(mm) won't cause the bone loss that that predisone crap causes and I also know for sure that mm has pain relieving effects along with anti Inflammatory benefits. Maybe MM is the answer to our prayers. What do you think?
Sacosam
20 Aug 2010
Hi "Stangher" kind of an odd handle you got there. Just a short post for now. I posted a longer post a few days ago, but I think I screwed up. Did you recieve it. If not, please let me know and i will re-write and send another post to you. I firmly believe that information is he best [and only] real weapon we have to fight this horribly painful disease, because nobody, not even the medical establishment seems to know anything about it... and Prednisone sucks! Sacosam I AM!
gojenny-o
Avatai13 Sep 2010
My mother has it! She is on prednisone, too. I really feel for my mother, it has really taken a toll on her. She still get on up when she can. It has at the time being messes with her toes, but I can say she is doing a lil better than she had(she still have some ways to go)! She is 77yrs young(lol), before she had this(pmr) she was like a whirlwind doing everything! She had gained weight at first(preds),now she has lost it all. If anyone find out about it please, please post it. I would deeply appreciate it. Take care & God Bless all of U!!
14 Sep 2010
I discovered that for 7 years I was on prednisone for nothing!!! I did not have PMR as originally diagnosed. I went to a new rheumatologist who didn't believe I had PMR in the first place when I told him I ws diagnosed with PMR when I was 50 yers old, legs hurt whether I took prednisone or not and I noticed they actually hurt moe when I did. I took myself off prednisone and he told me that was the best thing I could have ever done for myself. He immediately told me that he suspected that the previous doctors could have done a few tests to confirm the diagnosis. Bottom line was that he did x-rays and 12 different blood tests and they confirmed what he originally thought - I had bone spurs on the tips of 3 vertebrae in my neck that were pressing on my nerves. This what was causing the pain and x-rays showed that the correct amount of space that is normally between the vertebrae is not there for 4 of my neck vertebrae.
DHpaint24 Jul 2011
I've been on prednisone now for 12 days. Weening down from 30 mg for 5 days, 20 mg for 5 days & now 10 mg for 5 days. It really helped alot! Now that I'm down to my last couple days I'm worried my symptoms will come back. I'm already feeling a little achiness next to my knee caps. I'm seeing a rheumatoligist next week. I've been lucky to not have had any side affects from the prednisone so far. I'm 54 this is a horrible thing to have. I feel like such a different body right now that its gone. But from what I've read it last from 1 - 3 years. So maybe I'm not done with it.
endlessPred16 Feb 2012
Hi. Predisone is effective as a pain killer. As you taper underlying aches and pains show. Don't be surprised if you wake up some morning looking for the proverbial truck that hit you. You gotta work it out with your doc. I read so much about how people want off fast. Well if it is keeping you from a far worse condition, ya gotta go with it. If it is for a set time, hang in there cause you can get through it. For chronic use there are meds that can help reduce the dose needed. I wish you a happy solution.
chucker7810 May 2012
I am 51 y/o diagnosed with PMR a yr and a half ago and have been on Prednisone ever since. I take 12.5 mgs a day and have no pain from the PMR. BUT I have developed Osteoperosis for which I now must take Foxamax weekly, which can have nasty side effects and now the prednisone has given me diabetes for which I must take glucophage which has bad side effects. I would love to get off the prednisone. Has anyone tried the herbal remedys?
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Hi PMRtired; I'm familier with that. I don't know your previous symptoms, but it sounds like good ol' Prednisone is or has sucked the potassium out of your legs. Run this by your Doc. then get some LIQUID [not pills] Potassium. You're 'P' tank is way , way , low and it's going to take several tankfulls to stop the pain & stiffness. "AYUHP"! H -Hmmmmm , a thought !!! I wonder if REMOVING potassium would help "stiffen" up uummm! Oh never Mind ! ! !
Sacosam
sacosam~ That's funny~ LOL>>, little bit of humor never hurts~
Hi; Me again, ask maso 4169, but I believe you, your diagnosis is WRONG. As far as I know PMR pain should be HIPS and ABOVE. I get occasional knee pain too, but I was diagnosed with knee Arthritis 15 or 20 years ago,but I was just too stubborn to believe 'em back then. I believe 'em now! ! Sacosam P.S. WHOLE MILK... WHOLE MILK ! !