I am allergic to sulfa and I was given Humira for arthritis. I got sores all over my mouth and throat and also on both legs just above the ankles. I no longer take the arthritis drug but still have the sores, the only thing I have found that helps is predisone. I would like to know if anyone knows how much of this is safe?
9 Jun 2012
Hello. The prednisone will help reduce your symptoms. Long term use like I have been on for over seven years, is always in the process of reducing as much as possible. I too have sulfa allergies. Different disease.
Mouth sores develop with autoimmune diseases and medications that reduce your immune system. You need to take four to six folic acid tablets per day. Folic acid is not covered by most insurance. However get a script from your doctor and take toTarget or other big discount stores. It is cheaper through the pharmacy and they cost about ten dollars per month. This is for maintenance. My Rheumy started me on these. I adjust the dose depending upon how I am doing.
Be sure you see your doc for the sores. Thrush is very common with these meds as is strep infections. Be sure to brush your tongue, drink lots of water. Be sure to brush your teeth well.
Once you see the doc for the sores you can get the folic acid script. It is available over the counter as well. Costco store brand and Nature Made have the highest ratings for purity for supplements.
As for safe dose of prednisone. You take whatever they prescribe. I have been on sixty mg per day down to fifteen and back. Most RA patients start at forty and reduce down over a month. Don't let people scare you or the literature confuse you. Believe me when I say your Rhuemy knows what is needed, will keep you on it no longer than needed. They know it's ins and outs and don't prescribe this lightly. They are testing for response to your disease. They will use other meds to take the place of prednisone. This is much easier to do once your system is less inflamed. Hang in there. You will be ok. Side effects are mostly flushing. Considering the pain of RA this is doable. Stay in touch. Would be happy to talk with you anytime. Karen
9 Jun 2012
Hello mebissell... I have a good friend who has lupus and she has been taking Prednisone for over 13 years! Although she does have side effects, like swelling, etc. this drug is a lifeline for her!! Please don't let anyone's comments on here scare you away from a drug that is helping you! Be well and God Bless :)
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