... pacemaker as I suffer with Bradycardia with vasavagol syncope I notice I am very dizzy in the morning but I also blackout a lot at night which does not seem right as most people with POTS only get the symptoms when standing? am I correct in this assumption?
Postural Orthostatic Tachycardia Syndrome - I have been diagnosed with POTS and I also have a?
- Posted:
- 21 Oct 2009 by stinkypiglet
- Topics:
- syncope, tachyarrhythmia, bradyarrhythmia, postural orthostatic tachycardia syndrome
Details:
Answers (2)
Marvell
Coco_AZ14 Dec 2011
I have been diagnosed with POTS failing all 5 of the tests including vasavagol syncope. Are you taking any Midrodine or compression hose? I found that if I put them on in the morning before getting out of bed and having the blood pool in my feet, it really helps. Also taking the Midrodine 15 min before getting out of bed helps my daughter who also has POTS. I have to fly for my work and the change in elevation cause extreme POTS symptoms. I take the Midrodine with the compression hose.and I take 1 liter of hydration IV therapy (I know not all persons can get that) and salt. I can't take the florinef. I still get adrelanine surges, but it helps with the extreme fatigue and the vomiting on the plane and after. I have to keep working to keep my insurance for Dr. Goodman at the Mayo Clinic so I push on.
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Yes, quite often when sitting up or it seems to be that once i have blacked out once (when sitting) I can carry on blacking out (up to 20 x) even when lying down. This is over a period of about an hour or so.
You can definitely feel faint when sitting up (from a lying down position) but I can't explain your blackouts while lying down.
Hi,
My Orthostatic Specialist had a couple of suggestions for problems in the morning- (maybe this is the norm?- I have the hardest time in the mornings too)
Anyway, she said to do some leg lifts in bed before getting up to get the blood pumping. She also suggested having a glass of water and a salt tab before getting up.
Personally, I have noticed that if I put on compression clothing it will help also. A little- nothing makes life wonderful but it's more managable with these tips.
- There is a certain type of syncope that can occur in bed I just read about it. I'm pretty sure it's the type that occurs in conjunction with cardiac syncope and considering all that's going on with your heart, it makes sense. I'll come back and paste the page that another gal here shared with me. (I don't have it handy just now)
Blessings,
prism
Here it is:
http://emedicine.medscape.com/article/811669-overview