I have been taking Plaquenil for 15 years
for Lupus. For the first 5 years I took a dose of 200 mg daily. After that the dose increased to 400 mg. I am still taking that amount.4 years ago I had cataracts removed due to steroid treatment. At that time my eyes were otherwise healthy. Yesterday I had a thorough eye exam and was told I have some pigmentation on my right retina only. I also have Sjogrens Syndrome and this was blamed for the retinal damage and also for the pain behind my right eye. I was also told there may be fluid behind the eye so I have to have a scan of my eye in 2 weeks time. I would like to know if anyone has any knowledge of this as the thing I have found for pigmentation of retinas is malignancy. As you can imagine I am extremely worried.
I hope someone can help,
Jo