... Treatment Group"? I have painful peripheral neuropathy from chemotherapy and have been using Gabapentin and Lyrica for four years. I used Cymbalta but now have urination problems (can't urinate easily) so I discontinued it.
4 Oct 2011
I have peripheral neuropathy due to chemotherapy... at least thats what my oncologist said... my regular physician has been prescribing Gabentin for about three years now... I am now up to 1200 mg per day... I don't see that it does anything at all for and never have seen any change other than my pain keeps getting worse... my feet are pretty much numb and tingly halfway up my calves... I do feel it when I stub my toes, but otherwise the best way to describe my feet are that they mostly just feel like clubs... sometimes I walk like I've had a stroke because I can't feel my feet like I should... I have muscle pain (charley horses) all over my body all the time... I have to get up several times a night to walk them off, and during the day the same... I not only get the painful cramps in my legs and feet, I get them in my ribs, my sides, my lower stomache, all over my back, my neck, my fingers and hands, and my face...
I have difficulty walking a lot of the time, and it hurts to sit for long periods of time... I have been told that I should be getting disability but I applied last year and never got a reply... I believe its because I didn't send in any letters from my doctors...
I no longer have my oncologist because I don't have insurance and I can't afford him... I no longer have my ENT for the same reason... and my general physician is actually a PA and says that she is not allowed to write a letter on my behalf for disability... I have no idea where to go for help to get disability because I can't afford the high fee's of these doctors...
The Gabapentin hasn't done anything for me as far as I can tell... all I know is that my pain seems to keep getting worse...
5 Dec 2011
I am just starting my second bottle. I have diabetic neuropathy in my feet, legs and fingertips. I used to cry myself to sleep at night because the pain in my feet was so intense. I tried Neurontin but I really didn't want to add to the side affects that I was getting from my other meds so I decided to try Neuropathy Support Formula after researching for an alternative to medicines. After just 3 days use of this product the pain went away in my feet, legs and fingertips. Before I couldn't even wear shoes for very long because of the pain and had to put my feet up often and wear slippers at work. I have been taking this formula for 6 weeks now and have been noticing that my legs and fingertips are less numb and just today I was testing the feeling in my toes and have noticed more feeling in them as well. The company suggests taking it for at LEAST 3 months, 4 is best, to see results. I have no regrets using this product and have been suggesting it for others as well. Hope you give it a try and that it works well for you.
22 Jun 2012
Hey paindolly,I to have "very painful " peripheral neuropathy.I looked up that neuropathy support formula and all it is the B vitamins (b12,b6 b1 ) ands a few others you can get at any store (walgreens,GNC,cvs... ) but when you add it all up ($) it is alot more $ than the "formula " I hav'ent tried it but check the Mcg's on it.I was given vitamin B12 in a prescription form called FOLIC ACID a more stronger B12 which over time if taken every day can help repair "some" of the nerve damage not all complete.Go on line and bring up that formula and check the mcg and mgs and check the stores and do the math. I myself get the vitamins and other stuff thats in their formula at the stores I mentioned. I see their ads all over the internet saying :92% cure. D'out it. Hope this info will help. Respone to me and let me know status.I take Lyrica day and night ( can'nt sleep cause of the pain) and it helps alot but not near 100%.Even sleeping pills do'nt do it feel alittle better , Treeves1.
22 Jun 2012
Don't forget to add in the cost of the R-Alpha Lipoic Acid which is different than your average Alpha Lipoic Acid. R version can be hard to find and is more costly than regular ALA. I've done the research to dissect the formula and set out to buy each ingredient separately and I found it to be more costly than the Neuropathy Support Formula. You will be wasting your money and your health if you think regular ALA is going to the job of R-ALA. Read up on it before making a decision. Also, just about any health advocate will tell you that most formulas are much better and less costly than buying separately. I've been taking NSF for quite a while now and swear by it. More feeling is in my toes and fingers and I rarely have any pain now. I don't take any other medications for my neuropathy other than the NSF..not Neurontin, Lyrica or any other prescribed medicines and no other vitamins or minerals.
26 Jun 2012
Never heard of the stuff. If it were me,I would continue the Gabapentin, then purchase a vitamin;ALPHA-LIPORIC-ACID. You may buy it at any drug store, or at WALLEYWORLD. It helped me a lot, you may have to try two pills a day at first, to experiment, but this is the cheapest answer to my pain/nerve problems. RW
27 Aug 2012
The thing that needs to be checked is not the B vitamins, but the herbs they put in the formula. I checked on feverfew because I couldn't figure out why it was in the formula. Found that you're not supposed to take it more than 4 months. That stopped me from using it.
I'm wondering if those that say how great it is and it worked right away aren't here just to promote the product. Funny, I keep finding this type of thing when looking for neuropathy relief. Nothing but a drug will give you instant relief.
22 Oct 2012
I have neuropathy. Mine is not diabetic or genetic. I have been taking the formula for almost 5 months now. There are 4 extracts that I have researched. They all have good things. The comment on the feverfew was incorrect. Some report that long term studies haven't been done. Other parts of the world show it being used on a long term basis. I saw where the previous poster got the information and actually developed a conclusion on it as to where the actual information did not state that it shouldn't be taken for more than 4 months. Please search medicinal + feverfew and you should find the actual verbage.
Long story short, when I stopped taking the formula, my pain surged back within days. I am not experiencing side effects. It seems to also help with arthritis.
6 Jan 2013
I've used Neuropathy Support Formula for six months along with their Nerve Repair Optimizer. I have moderate PN of unknown cause. I've had it for 20+ years. I'm discontinuing the NSF and NRO for lack of results. There seemed to be a small improvement in the first five days, but nothing more as time went on.
I started with a fully refundable 3 month trial. But with the product came a sheet advising that results might take 4-5 months. Right away I felt baited and switched. Nevertheless, given the potential benefits, I had to try this and give it a full trial.
So after three months and minimal results, I purchased another three months' supply. I saw no improvement at all in the second three months. (And I can get a refund on my second order only.) Your mileage may vary, but that's my experience with Neuropathy Support Formula and Nerve Repair Optimizer.
22 Jan 2013
I have used it for four months. Got great results after just one week, but after four months I was amazed. It was like I was normal again. I then went off of it because of unrelated surgeries, (had to go off all pills during that month). I didn't seem to need the pills for another month or so after that, but since my neuropathy problem is on going, recreating the nerve damage (eating the coating off the nerves), so I have recently gone back on the formula as the symtoms were slowly returning.
It isn't baiting as to why they say it takes four months. It really seems to take that long to repair the damaged nerves. Did for me.
Anyway, it is worth the cost to me. :) It gives me back quality of life and I am VERY greatful for that.
But check with your Doc to make sure there isn't anything in it that might not mix well with your meds. What's good for me might not be good for you.
28 Mar 2013
I am a 66 yr old who began developing Neuropathy pain a yr ago. My doc has tried several tests to identify the source with no success. My neurologist believe it to be results a a knee replacement or the fact that have developed Parkinsons. Either way I needed help. I tried prescriptions but they bothered my thinking and how I felt and with little success. I have been on tramadol 50 mg and it helps for a short time. I also came across Neuropathy Support Formula and have taken it for 6 months. The pain and burning has worsened during this time. So I'm going off NSF to see if it gets worse quickly or stays the same. I've also used Diabetic Neuropathy foot cream with some success (Magnilife) carries it, just google it. But I now am using (not a joke) a lotion called "Two Old Goats" also on line. I've purchased 4 bottles and was so excited with the results, the burning intensity goes away for 3-4 hrs.
I've given 2 bottles away to family members , my mom and daughter in law. I've used one bottle and it lasted about a month. Cost is 17.95 plus shipping 4.95.
13 Apr 2013
Hi, I ordered it for my husband who is diabetic. They recommend 4 months, so that person who said 5 days is prob spam. He's been on it for app 3 mos and today I noticed his feet were actually warm, not cold and brownish like before. We're hoping he's turning the corner. He has no feeling in his feet, yet they hurt. I sure hope this is the alternative answer we've been looking for. Hope this helps.
25 Apr 2013
I have had peripheral neuropathy for 5 years, due to pressure on a nerve in lumbar region of my back. A fusion (L2-L5) did not relieve the initial numbness, and I have been on Gabapentin ever since.The pain, numbness, and burning have been getting worse, despite taking 600 mg. 6-7X/day. My neurologist has been trying different vitamins (B6, B12, R-Alpha Lipoic Acid. CoQ10,) individually, with no improvement. Incidentally, the R version of Alpha Lipoic Acid is more readily absorbed. I'm considering taking NSF and am interested in others' experience with this product.
21 May 2013
I have diabetic peripheral neuropathy. The pain was so bad that I had to cover my feet with Vaseline and thick socks to walk. I tried alpha-lipoic acid, and, after 2 months, the pain went away, leaving only some tingling and numbness. Just to make sure it was the ALA, I stopped taking it. After a week, the pain was back, so I started taking it again. After another 2 months, the pain was finally gone again. I'll never stop taking it!
Although I've never taken NSF, the primary ingredient is ALA, and it is very effective but only after 2-4 months. The other ingredients may give some more immediate relief.
22 May 2013
I am just starting my eighth bottle. I have PN in my feet and lower legs. I have slowly taken myself off of gabapentin and cut my cymbalta to 30mg since starting the formula. It seems to help with all the tingling and burning but I still have problems with severe shooting pains in my big toes. I usually have these shooting pains every other day. I take lyrica and hydrocodone for these pains. What a mess. Anyway, I would recommend the Neuropathy Support Formula. Good Luck!
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
. I take 3200mg gabapentin, 1600 lyrica cymbalta, pentoxifylli, alpha-lipoic acid, hydrocodone and papaverine..all for my feet. What's up with ...
5 answers • 9 Jun 2012
Second time for this question. I take 600 mg of Lyrica, 3200mg of Gabapentin, 60mg of Cymbalta, 4 capsules of Neuropathy Formula? 10 to 20mg ...
1 answer • 1 Apr 2013
... Neuropathy? I was diagnosed with Small Fiber Neuropathy three years ago and have a closet full of drugs that didn't work. Gabapentin did ...
1 answer • 16 Nov 2013
2 answers • 3 May 2014
... work? The first day on Lyrica, without gabapentin, that night my feet were on fire, like they were before I ever tried any medications. I thought ...
5 answers • 18 May 2014