... it's so bad I have lost jobs and become incapacitated to some degree plus my husband and kids hide from me like scared rabbits I see what's happening but can control it because of pain
19 Sep 2013
I would say persistence. Keep making appointments, keep complaining! Make charts of when the pain starts, list the symptoms - have months and months of data to bring to appointments so you can tell them exactly what you are dealing with! Schedule your appointments during the bad times - let them see you at your worst so they'll believe you. Make consults with specialists - go to large teaching or regional hospitals where the "best of the best" practice medicine and see the rare, really bad cases. Take your charts, your medical records, test results - always keep a copy of everything. Organize it so the specialist can easily see: labwork, CT scans, doctor's notes, your charting, etc. Be your own advocate and do the legwork. Find out who is the best doctor - search for support groups for GYN problems, join them and ask: who do you go to? What helps you? Don't stay there and make friends - go to more groups and ask, ask, ask.
Research what they tell you - use the Internet. But try not to lean your charts - your records of symptoms - to any one diagnosis. You are looking to the experts for their diagnosis. Don't give up - you have a job: Getting well! It's worth the battle. - EJ23
20 Sep 2013
All good answers. The only thing I would add is to not to be afraid to ask for some strong pain relievers between now and when you get the proper diagnosis and/or treatment for whatever condition you may have. I have found Vicodin to be very helpful for pain, but you may require something else. Don't give up until you find some relief. You don't deserve to be in pain. As long as you take the medication only as needed and do not over do it I don't see any reason why they wouldn't prescribe it for you. My daughter gets 20 with 1 refill and goes through that 20 over the course of two months or so. She has Endometriosis as did I until complete hysterectomy. I unfortunately gave it to both of my girls.
19 Sep 2013
I suffer from horrible periods also. I have missed work over it. Laying on the couch , heating pad on high and crying. Birth control can help. I am trying to get pregnant so am looking into some other treatment options. Your pain could be caused by endometriosis. There is a minor surgery called laptoscopy that can help.Ask your doctor what treatment options are available. Bottom line though if he doesn't try to help you or his treatments are not helping you need to get another opinion. There is help available. They want to try the easiest thing first but be persistent. If something does not help then tell them it's not helping and we need to do something else. You have to take charge of your own health care. And find the right doctor. Best of luck to you!
19 Sep 2013
Iill and welcome to DC. You poor dear... I can empathize with you and remember those days all to well. Have you noticed unusual cravings just before your period starts??? For instance, I would drink more coffee than usual a few days before getting my period. I also played tennis and found that the more I played... the better I felt. Heating pads helped a lot, too, afterward - not just on my belly but also on my back .
What methods have you tried that worked?
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