Hi; I have RSD in my left knee/leg. I have the feeling of icy cold running through my veins and arteries and the feeling of insects crawling through my veins and arteries. Could this be full body RSD? What medications to take to stop these feelings that are driving me crazy and make me feel sad and desperate? Thanks for your information
17 Aug 2011
Hi, I have RSD as well (left foot/lower leg all the time and right foot/lower leg when it wants to chime in) and among all of the other symptoms, experience painful cold symptoms and other "weird" cool symptoms, but only at the sites of where my RSD is located and not exactly like you're describing. But I don't want you to worry and think you are now getting full body RSD. From what I have read, I think that IF one's RSD is going to spread (and it can, but even if it does, that does not mean it will go full body), it tends to either jump from one limb to another and/or work its way from an extremity inwards towards the trunk (i.e. hand-->arm-->shoulder-->chest or foot-->lower leg-->upper leg-->hip, ect). This does not happen to everyone! It could start anywhere that an injury occurs and stay in that spot. Mine started in my left foot, went to my right and spread up to both of my lower legs as I was not diagnosed for 13 months.
It's been 18 months since the initial onset of sympoms and it has not spread further, but I feel some referred pain in my hip. Are you feeling these cold and insect in your veins feelings throughout your whole body or only in your left knee/leg? What kind of Dr to you see to manage your RSD pain? What medications are you currently taking? I am taking Lyrica, Tompomax, and percocet- and could not live without my electric heating pads both at home and at work (that really helps with the pain!! even the burning pain not associated with cold). I totally understand the feelings that all of the symptoms are making you feel, sorry you are feeling this way- I hope that someone can answer your question better that I could asap... hang in there- there are a lot of great people on this site that will be along to help you that have been living with RSD for many years and are very knowlegable. -Shannon (also born in 1974 ;) )
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