I went to bed with some gastrointestinal problems and solved them finally and my leg cramps got better. I did not take my pain meds at bedtime because I was feeling okay... just for information, I have 5 herniated discs (ya they found another one on the last MRI) and spinal stenosis, lumbar type. I went to bed and woke up around 6 AM screaming. My legs and lower back were in complete cramps... I took a double dose of pain meds, I know (bad girl) I will have to call my doctor, and my break through medication, and also two methocarbonal. This is barely working. The leg cramps start to get better when I stand, but this time they get worse when I sit or lay down... what the heck is going on? If the pain comes back that bad again I will have to go to the ER..and we all know how helpful they can be. I am wondering, is it possible to have a twisted intestine or some other weird thing that can cause pain that seems like it is a disc but not herniated disc? I did not lift anything or do anything out of the ordinary... I have never, ever been in pain like that. I have no words for it. It was outrageous and my husband got mad at me because I woke him up because I was screaming in the pain... now everything is all messed up. If anyone knows why this sudden cramping that starts in the lower back at L5 or there about, cramps through the butt ox muscles and then down one leg worse than the other but both legs severely affected please tell me. Also, please tell me what you would do if this happened to you... help! thank you so much Amanda!
12 Nov 2011
Hi Amanda. I feel for you cause I think I know the pain you describe. That is some pain I would not wish on anybody. I have had a hysterectomy at 22 (endometreosis) and I smashed my tail bone at 26. L-1 and L-5 crunch now. I am 43 now. One thing I have never forgotten is my pain doctor telling me even if I feel okay always take my meds. Especially at night and if the pill you skipped was an extended release pill thats probably the reason for the rude 6 am wake up. I have also wondered about something being twisted and maybe its not always my back that causes the pain. I know this sounds terrible but I am to scared to ask my doctor. Cause what if it is and there is another surgery. I have had 2 c-sections,2 partial hysterectomies in the same year,5 scar tissue removal and gall bladder removed surgery. I died for 45 seconds when I had the 2nd partial hysterectomy. Some day I will ask. The cramping in the back ,down the butt and legs could be a pinched nerve or nerves.
I use to have awful leg cramps and they would keep me down. My legs would give out even if I was walking. I get facet injections(8 in all)in my back every 3 months to keep that under control. I have a great pain doctor and I have been seeing him for almost 17 yrs now.
I hope you have lots of pain free days and wish you the best.
13 Nov 2011
Are you on chlorestal medication? The week of October 25, 2011, I woke up with my feet and toes twisted, cramps in lower legs, etc I was on Zocor-generic-a statin- I can't remember the name because it was so traumatic. It hit my kidneys, hurt to walk, made old injuries to hurt, etc. This stuff can be bad. It's just a possiblity-as I'm reaching into my experience. It can be really bad for people that are Chinese, hypothyroid, or diabetic. I was told that it didn't have hardly any side effects. My doctor listed it as seizures because of my feet.
13 Nov 2011
Oh my yes, I have had that happen just last week! The rreason for my bout of pain, & screaming for my husband to help was overdoing the day before (blowing leaves) & then dying at bedtime where I didn't move at all all night long. When I woke I literally could not move! The pain was excruiating. If you take meds to help you sleep this is very possible even if you didn't take your pain meds that nite, Staying in one position too long may feel good when you first lay down, but for too long is going to stiffen you up alot & then you can't move. After my husband got me out of bed with a lot of screaming going on, & I moved around & took pain pills I was ok with heating pad etc... So you are not alone girl, Just hang in there with the rest of us I guess.
Have they talked about any surgery for you stenosis? They won't touch mine because my nerve roots are embedded into scar tissue & I have a huge cyst in my spinal canal at L5, so they are afraid of making me worse (what could be worse) I sometimes look at people in wheelchairs & think "at least they are not in all the pain", but don't know if I would trade my freedoms I do have ya know? Just so you know you are not all alone out there...
13 Nov 2011
Amanda I know how you ladies feel I've woke up in the middle of the night screamining in pains my back legs even arms. When I don't wake my husband says I yell in my sleep. I feel so bad for you all its excrusiating. The drs say they don't know I've asked my dr for something stronger he gives me narcos and those other pills but they don't work. Try some thermal cares while teying to sllep they help me some maybe it'll help loosen the muscles and they work for 8 hrs at a time the generic aren't as good. But not suppose to sleep with a heating pad some times I sleep with my 10s unit on too. My dad use to tell me to eat a banana everyday increase potasium but it still happens to me I hope you can all get out of pain pain is the wrse part of all the illnesses. But sometimes the wheelchair is looking better to me. Hugs and prayers be with you all
14 Nov 2011
I have been there when I woke up as well, I do not envy you for that. It seems you've gotten some good advice. Never go to bed without taking your meds. It's a recipe for disaster. Even four hours in the exact same position could put you in screaming pain. Your pain is obviously associated with the sciatic nerve. It's generally agrivated by the L5 disc. Which with all the herniations you mentioned I would have to imagine that you have some degeneration as well. It does not take much for those discs to move. The slightest movement in your sleep can move a disc and press it against a nerve and that's all it takes for an unbearable amount of pain. What makes it worse is it can come at any time, for no reason. I do understand where your at.
14 Nov 2011
I know the feeling all too well, Amanda. It is unusual in stenosis for you to have more pain when you lay down,unless you were laying on your tummy. Usually it is worse when you stand or sit compressing the spine. Leaning forward helps because it opens those disc spaces. I have had to get up and gop sit in my rocker/recliner but I leave it in the rocker mode not the recliner then I heat up a moist heat pack and that helps my muscle spasms. Heat for me works the best. It eases those muscles out of that tight cramping. Try not tom double up your meds-you will only end up hurting yourself later. Sometimes massaghe helps those muscles to relax too so perhaps if your S.O. is nice they will rub your back muscles for you! Hang in there. Hopefully your pain Dr will switch you to a long acting drug that you can take once or twice a day. It makes it much nicer and you take it by the clock not by the intensity of the pain so it keeps you from getting into too much pain.
It is horrible that so many of us have to suffer so but at least we have each other because no one knows what this kind of pain is like unless they have went through it themselves.
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