A new pain medication recommended for me. Need approval but have been reading a lot about this medication. Mixed reviews. My pain levels are severe. I am on Fentanyl patch, Gabapentin, Skelaxin and have read a lot about this medication but I have also taken Tramadol in the past with little relief. Any advise. I am so tired of the pain and need some control. Just to bring the pain levels down to a tolerable level. Any advise?
Nucynta?
- Posted:
- 8 Sep 2011 by The Mad Man
- Topics:
- skelaxin, pain, fentanyl, gabapentin, breakthrough pain, nucynta, medication
Added 9 Sep 2011:
I haven't started on the new medications yet (Nucynta) but TODAY IS THE FIRST DAY I WOKE UP WITHOUT PAIN! (9-9-11) Got a good night sleep and feel pretty good. WOW!
Added 9 Sep 2011:
Here is a list of the medications I take. Something finally kicked in!
Fentanyl 50mcg (company name Apotex - patch is bigger and sticks better)
Gabapentin 400mg 3 pills 3 times a day. (been on that for years)
Metaxalone (Skelaxin) 800mg 1 tab 3x a day (just started)
Ranitidine HCL 150mg 1 tab 2x a day (years)
Rosuvastatin 1/2 tab at bedtime (years)
My brother in law gave me Zanix (actually it was for my caregiver since he has been under so much stress lately) but I took one pill at bedtime and got some solid sleep.
Today I woke up and my back is a little tight but nothing I can't handle.
This is the first time I have been pain free in about two months.
I started on the Fentanyl patch on 9/7/11. (Apotex brand)
I don't know what the magic here is but be glad to hear your feed back.
Added 14 Sep 2011:
Seems this is the latest medication on the market. Similar to Tramadol. My insurance won't cover this. Talked with my pm doctor and he says to try the Tramadol in place of the Nucynta. I can go to the manufacturers web site to get a coupon or some such nonsense but I am paying enough for medications. Doctor says to switch on and off between the Norco and the Tramadol but I am not going to play games with all these pills. If the pain patch doesn't work with the Norch then there is a problem. My pm doctor sent an e-mail to my surgeon so he is the next witch doctor I will be seeing (the one with the big ego). Stay tuned for more medical drama!
Answers (5)
8 Sep 2011
Hey there Mad Man. I haven't ever tried it so I read up on it too, & now know why because I also have scoliosis. Makes me wonder why that makes a difference. I'm sure someone takes it & will be along shortly to give you some advise about if it helps or not. Keep us informed if you get it on how it works for pain. All of us pain sufferers want to know of course. Good luck...
8 Sep 2011
Mad Man I have been looking a lot my current medicine is not really working as well as it did to start, I dread going through the change and then if a new medicine does not work well then you either have to return to what you are on or try something else, I have previously take fentanyl patches, (can't because of low body mass, they put me out) I have taken Dilaudid, I have not used Methadone but my doctor will only prescribe this if I were hospitalized (afraid of reaction) been on hydrocodone, the Gabapentin, Neurontin, and the SSRI's been on MS Contin had a difficult time with it, Oxycontin (old formula) but it made me very shakey and sweat, doctor will not prescribe new Oxycontin she said her old patients had so many problems with it not working she just won't, I have been on Robaxin, Skelexin, Opana extended release it is wearing out. if you have any suggestions you or anyone I am like you am open to suggestions,
9 Sep 2011
Hi mad man I hontestly never heard of that med but I have recently tried some meds that didn't help me at all now I have a pain management specialist he is definatly making my pain mre manageabe. Even though last night I cmplained of having to take so many scripts it is working I was just having a bad day yesterday so I thought id tell you my routine. I have lidoderm 5% patches I can put them on for up to 24hrs, a tens unit I can put on muscles for pain,hydrocodone/acetaminaphin 7.5-325 3's a day,mobic 15mg 1 in mrn after breakfast,lyrica 75mg 2x's a day,roboxin 500mg at night before bed these help as well as 4injecions in my lower back of cortizone he puts smething else in it for a nerve block ther than that b12 shots do to a very low blood test my neuro says cntributes to my pain,multivitamin and vit d and my avonex for my ms.
I forgot the cymbalta I take every night as well do look up the med on line as well like you said lots of companies do help so I hope they help it be affordable for you let us know how it does for u take care
I have the Lidoderm patch and have also had radio frequency procedures. The first one took not the second. Cortisone shots no longer last for me (1 week). The Lidoderm patch used to help but not now. I didn't like the Cymbalta but seriously the Fentanyl patch is calming down the nerve pain. So far so good with the patch. Today a friend gave me Zanix and I got some sleep for the first time in three days and I think it actually helped with the pain so I will ask my doc about the Zanix. So far the pain is manageable and I hope to get a good nigh sleep tonight. Thanks for the info. Keep me informed and I will do the same. Appreciate the feedback.
4 days ago
I have been on 100 mg of nucynta for over 1 year now. Its the greateat pill ever invented. It non habit forming non addictive. To me you dont have to go thru the rush like other pills. This one dont have it. The headachea dont last but about a week. Two days after starting this pill i was back fighting fires. Yes i am a fire fighter. Now i wear out the rookies and i am almost back to my old self. I would advise anyone interested in this pill talk to your dr. And go small dose then work up. If i miss a dose i dont have the shakes like with other pain meds. Fight with your insurance companies and they will pay. A 60 tablet script of 100mg pills is $250. But i would not let my insurance win. My doctor gave me ultram and vicadin and the percoset so i had my 3 fails so insurance would pay. Do as i did and you will get the best pill on the market. If your lookin for a high then this pill is not for you. It takes away pain not the brain. Any.question please feel free to email me and i will be more than
happy to talk to you about it.
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Thank you everyone for your support. I guess I am going to be the first time medicine ball but I don't mind and I can truthfully pass on any information I experience. I don't know what SSRI's are. I have had shots of Dilaudin, I have tried the Methadone and that was a horrible experience. I have tried all the other medication you mentioned and now I am on the patch which helps calm down the pain nerves. I just want the pain down to a tolerable level and so far the patch is helping. I am having a problem sleeping but that seems to be the worse of it all so far. Reading about this new medication kind of scares me. There are so much conflicting information from people that have tried it and one major problem seems to be headaches. I can deal with that but I am still awaiting approval of this drug from the insurance co. I can go to the web site for discount info if needed.
Expand this post...
My Fentanyl patches had to be approved by the insurance co., and since I was in so much pain, my caregiver paid the $200.00 out of pocket. This man takes great care of me and I am so thankful.
I cannot thank you all for the support you have given me mentally. I know we all have our own personal experiences with pain and doctors and I will do what ever I can to pass on helpful information to a wonderful group. Thank you all for you support.