... This occurred after I had a brain hemorrhage. Does anyone have any tips to minimize the daly pain and frustration that comes with this?
New Daily Persistent Headache - I have had a headache 24 X 7 since 1993?
Added 31 Jan 2010:
I am on high blood pressure medicine and migraine medicine as well as a prophylaxis type medication this seems to help the intermittent migraines that I get as well as the daily headaches but it does not do anything for the daily headaches. I awake with them and have them everyday,
31 Jan 2010
are you on any medications? Since its causing distress on a daily basis its reason to be prescribed a medication (more than likely a migrain medication)
also im NOT recomending this since it does more harm than good, just telling you something they have been studying... LSD has been used in the treatment of Cluster headaches (if you have ever seen on its rediculously bad) so they have made a medication which doesnt give you the hallucination properties (not approved by FDA) which has shown relief from these headaches. also marijuana has been shown to help headache conditions with minimal side effects and bodily damage (if eaten its much healthier than smoking it)
31 Jan 2010
My mother-in-law use to get migrane headaches that would last a week at a time. She would throw up and get very ill. After much research and alot of misery, they determined that hers was caused by high blood pressure. I am sure you have had all of this checked out, but if not you might want bloodwork done up and see what the results show. I hope I helped a little. I cannot imagine being in that kind of pain 24/7 since 1993. Someone has to find a reason for this. Get second and third opinions if necessary. But please try to find out the root of the problem... you have my support kimmie1
1 Feb 2010
After more doctors than I can count & thousands of dollars in useless medican, (some worked for a while then stopped, others just a waste) I finally talked to my pharmacy. The best advice I ever recieved! The fact that my head felt like it was going to explode upon wakeing was a huge clue... he gave me 3 suggestions, (1) New pillow ... very important to have proper neck support & get a fresh pillow once a year. (2) Magnesium... many fibromyalgia paitents suffer from low magnesium so he suggested I take 400 mg a day & 1st week start w/600 mg to get in my system. (3) Dehydration... Godd chance I was not hydrated enough if the headachs occured upon wakeing, so drink lots of plain water or gatoraid etc daily.
This same day I was seeing my Neuro Doc who brushed off these suggestions (magnesium, bla bla..no no wont help) tried to give me a med I previously advided him I was not able to take due to terriable side effects, then advised me to take 1/2 of a 100 mg pill I already take that clearly states DO NOT CUT on the warning label. Long story short... I took the advice a a kind & caring young pharmacist and the last 8 days have been nearly headach free, blasting migraim in the a.m. tottaly gone, and the nagging daily ach is still there but tollerable. So at least give it a try, I also take Co Q-you 10 ..100 mg per day which helps your body in the natural production of energy,,not a stimulant, but a natual occuring agent need on his advice and I just feel better in general... so I pray you too find some help & your suffering becomes less each day... God Bless & Good Health, Momma Nancy
16 May 2010
You sound much like me!!! I have had Chronic Daily Headace for 20+ years and like you suffered from a subdural hematoma 5 years ago. My brain bleed occurred while I was in the hospital receiving my 6th or 7th session of D.H.E. (dihydroergotomine 45). They managed to save my life but I lost my job, husband, home, sportscar and my ability to walk, think, remember and I lost 1/4 of the periferal vision in both eyes. I have worked hard to get back most everything but the vision problem. Unfortunatly I was put on hard core opiods afterwords and almost o.d.ed several times. My new doc, supposidly the best in the nation at UCSF in California wants to try the D.H.E. again and I enter the hospital next week for 7-10 days. This should work to get me off the opiods and control the headaches but I'm scared to death. If you remind me I'll write you back after the hospitalization and let you know how it went. Ask your doc about it. melanie
16 May 2010
i have had a headache my entire life. my family jokes that i was born with a headache. i went to the most prestigious headache clinic in Chicago with no success. i had a cerebral aneurysm and three strokes. i have been on fentanyl,oxycontin and morphine. nothing helped my headaches. i decided to discontinue the narcotics since i spent most of every day drugged and still in pain. i am currently taking norco10/325 and that doesnt help.i wish i could offer advice but you are not alone. i am still trying to get to the point that i wake up without a headache. if you find a way to minimize the pain let me know good luck
17 May 2010
I am curious if they had to perform surgery anywhere and where on your head they did due to the prior swelling in your brain. The reason I ask this is because I suffer from Fibromyalgia and Chronic Myofascial Pain and just started to get migraines. Most of my pain is in the pelvic region because I had a bunch of surgeries in that area disturbing and messing up the surrounding myofascial muscles. I have never had migranes before but as my condition is worsening my pain is traveling up my back, neck and shoulder areas. After feeling around my neck, base of head and muscles around face, eyes and ears, I have found some major trigger points that are causing the migraines. I use a heating pad to relax the taught muscles and then massage, stretch and pull the muscles. Sometimes I will use a tennis or raquet ball to roll over the taught bands and break them up.
It initially hurts quite a bit as the muscles are tender but this seems to get rid of the migraine for a couple of weeks or more before I have to do it again. This maybe a completely different situation altogether, but one I wanted to throw into the mix, just in case. You never know what end ups working, and you generally either figure it out yourself or get an idea from someone else suffering rather than from your own physician.
26 Feb 2011
I have been dealing with headaches for the past 5 years. I was told i had psuedo tumor cerebri, chronic daily, etc. Botox, DHE, and every narcotic. I finally found a Dr in NYC and she put me on methadone for pan and it was the first time i was pain free. Now the headaches come and go, sometimes bad, but its not steady anymore. Its worth a shot..
26 Feb 2011
My husband has this same condition. Have they absolutely ruled this as a result of the hemmorage? And as a Migraine? What medicine are you on? My husband had a pituatary tumor that had grown around the optic nerve (which did not show on the 3D CT scan or MRI). They removed the tumor nasally. He has chrontic arthric pain in his neck, has had 2 neck surgeries with plates & screws (of which one screw is broken). I mention this as one doctor thought this was causing his headaches. He made an appointment with his eye doctor last week, (the best around this area, & an eye surgeon) & he was told they could not tell if the optic nerve was involved by just a dilated eye exam. He has to go back on 3-3-11 for a special test to see if the nerves of the eye are inflamed. This could be an indication in his particular situation that his tumor is back. I was just thinking since I don't know the name of the test, maybe you could friend me or ask me after the 3rd what the test is.
Maybe it could help you too to get on the right med or find out why these headaches are here in the first place. I'm surely not indicating you have a tumor or anything, it's just the first time anyone is going anywhere with this to find the cause. Wishing you the best, & feel free to contact me anytime. ..
14 Aug 2011
Thanks for all of the responses: I have gone back to my Neuro with a lot of your suggestions; tried botox would you believe I am allergic!!! So that was a bust.. Daily headaches still an issue with intermittent migraines, on topomax, celexa, vicodin when things get really bad and ambien to go to sleep when it gets awful. I do not want to be put on anything that will make me addicted. I want to be able to function, still doing bio feedback and behavioral conditioning, these help me stay above the pain but it sure would help if I could be without it. Thanks again for all of your suggestions...
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