I live in Tennessee and right now I am so frustrated that I don't know what to do. I go to a pain management clinic (I have bi-lateral neuropathy in my feet and starting in my hands) and have been going there for over a year. We had just moved here from California and I had gone to pain management in CA as well and I brought a packet of information from my doctor (what I had, tests to confirm and she had been by doctor for 12 plus years) so that a new physician could see that 1) no I wasn't a drug addict, 2) yes I did have cronic pain, 3) therapies we had tried and 4) a number to call should they have additional questions. Since I do take a lot of narcotics, I wanted the new doctor to feel comfortable that I am reliable and follow his orders. The new pain management wanted to change my medication because they thought I was taking to many pills, but in order for them to get the dosage, they had to "up" the milligrams and I did not want to, but I said okay. So I start taking them and they made me so constipated that I thought I was going to have to go to the emergency room to get relief and I did this for about 3 to 4 months. At the next appointment I told them what was happening and that I don't assimilate drugs very well and the smaller the milligrams the better they work, so they put me back on what I was on. This has gone on for about a year and (my regular doc was on vacation and a lady was there) I see this lady and she immediately goes into fits about they can't prescribe that amount of drugs and that they needed to change the drugs, I explained tha she had done that before and what had happened and the head doctor came in and said he was so scared of the DEA and that he can't prescribe the amount of pills, (but they have been for over 9 months with no problems) and I say so what can we do and he said he would try to help me find another pain management doctor and so he does, but when the call to make the appointment, I ask them are they allowed to administer this quantity of medications and they say "NO" and so I did not make an appointment because I would be in the same boat, and so today I get a letter saying that he is dropping me. What can I do? Is there an appeal process? I just don't know what to do. I should say that in California we tried everything, medication, water therapy, physical therapy, even lidocaine pushes (which I still twitch from), so it is not like I have not tried everything they suggested, I did--I need help fast. Thanks.
15 Apr 2010
hi betty1113, when you made that phone call you should not have said what you needed to have perscribed. you got his letter saying they are dropping you. dont freak out.calm down.first make an appointment to see this do who just let you go.tell him to please work with you until you find another p/m clinic.look in your phone book for pain management they are in there.ask for an appointment don't tell them what you need. by doing that its like saying i want what i want. it don't work like that. keep that app and bring your pharmacy history of your meds and how long you have been on them. pharmacy will give you that stuff apon request. dress nice when you go to the new p/m doc and explain your problem and your meds you were on and tell them if they would like to change your meds you will comply with whatever they see fit. you never mentioned what you were on.tell me all of it and ill help you with a game plan... subzero58... pete
15 Apr 2010
Betty0113, I can understand why you are freaking but there are plenty of pain management centers around these days. In a way you might want to pick your doctor carefully because alot have a legitamate reason to be afraid of the DEA, they have been warned or know of colleages whos' practices have been closed. Some are almost too afraid. my p/m gives me six hundred 10 mgs. methadone pills every month and something for anxiety but he will not budge when it comes to any other narcotics for breakthrough pain. I live inFlorida and he used to work on the east coast and he was in a group of p/m doctors who treated my ex and they would give out everything. now he has moved his practice to the west coast of florida and he seems to be alot more careful ( my ex sent me to him.) I would do exactly as pete already said hear what your new dr. has to say w/out bringing up what you want first. I as sure it will work out. Good luck Fall Queen
16 Apr 2010
Well betty, i cant say im in the SAME boat, but i totally understand. see, i had shoulder surgery about 15 months ago, i was on 5/500 vics for 2 months prior to the surgery and 7/350 percs for quite a while after the surgery. Now, i totally understand that once i dont need pain killers the doc should take me off them, which he did. however (this is where i start to connect with you) i recently started vomiting blood, and caused myself a serious strain in one of my back muscles, its been a wrenching on my lower back and all the way up the spine. Ive been in and out of the ER/ hospital 3 times in the last 4 days for both the back and the vomit. Im NOT asking my doctor to give me pain meds for my stomach (obviously, because the APAP definitely not be good for my stomach), however since i was in the hospital with an IV already in me i wanted to know if i could get SOME kind of pain relief that had no APAP.
I wasnt asking for fentanyl or a morphine pump or anything to get 'faded' on, i just wanted something for pain. On the "1-10 scale" ive been between an 8 and a 10 (10 if ive had to lift my legs) since i started having back pain.
anyway, the doctor said no way to any kind of pain meds because he saw that less than 2 years ago i was on so many for so long that he was actually scared that he could get in trouble for mal-practice if he scripted me anything. This infuriated me, seeing as its been more than a year since ive ingested any pain killers! but there was no reasoning with him; i figure he would rather have a patient be in pain and feel bad about that than lose his license. So, in short, i feel your pain, doctors in the US are regulated unfairly and, in effect, patients that are in need of meds suffer.
Im sorry to hear that youve tried so many different things, since my first two suggestions after meds for you would have been water therapy and/ or lidocaine. the only thing i can say is try to stay in PT and look around for a pain mgmt clinic that will be more understanding of your situation.
Best of luck betty
18 Apr 2010
Hi betty0123; Betty keep your eyes open here and your typing hands ready here. Right now there are only 3 of us forming a protest group [White House Washington D.C. against these doctors who don't care if We live or die as long as they get paid , and drug companies... You might want to join us.
What can you do? You can... wave 10 $100 bills in his face... or... pray. ask your "Spirit Guide" for help. All spirits and animals have one :-) Sacosam
9 Feb 2012
It is very good that you have your medical and Opioid Rx records. I've been in pain management since 2000 and have had similar problems when I moved. #1 Congress is passing laws that is scaring off Doctors from pain management. The FDA recently made Pain Doctors to enroll a Risk Evaluation Mititgation Strategy (REMS) class. doctors basically give up their 20's to become a Doctor and don't want to risk losing their license. Visit congress.org or regulations.gov to voice your problem in receiving pharmacoterapy (opioids). #2 Ask your Primary Care Physician to refer you to a pain Doctor. #3 Don't give up. Keep going to pain Doctors until you find one that helps you, #4 Visit startingpainmanagement.com and livinginpain.org (up on Feb 12) for more help. #5 For constipation drinks 6-8 glasses a day and eat 3-4 cups of yogurt. Good luck and I hope you can control your pain.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
... worse with time. I was an active person that now has to be carried up the stairs-wheelchair at times and terrible pain everywhere! Mostly joints. ...
8 answers • 28 Oct 2009
I suffer from perpheral neuropathy & pain on my right from shoulder to my feet. I was on actiq for over ten tears & my pain Dr. discontinued ...
1 answer • 20 Feb 2010
... Treatment Group"? I have painful peripheral neuropathy from chemotherapy and have been using Gabapentin and Lyrica for four years. I used ...
18 answers • 8 Jun 2011
I have serious painful peripheral neuropathy for 6 years now. It's been getting worse. Non-diabetic but alcohol was to blame. I take ...
4 answers • 19 Jul 2012
Almost 4 yrs. with this and a list of medications a mile long. I've seen 13 doctors and in (Oct. Nov.& Dec.) I had 2 SCS (spinal cord ...
4 answers • 24 Feb 2014