... disease. I have now had the disease 4 timnes. can you ever be cured
17 Feb 2011
Yes, I am presently being treated for 1) Mycobacterium avium-intracellulare Complex along with an additional 'unknown/not identifiable mycobacterium. 'Cured' = negative sputum and shrinkage seen on CTScan of leisions. 18 month duration and remaining is 11 months prophalytic treatment. (Biaxin, Ethambuthol, Rifabutin).
25 Mar 2011
I was treated January 2010- October 2010 with Rifampin, Ethambutol and Azithromycin. Just last week I had a chest CT due to recurrent bronchial infections since November. Due to the cloudiness on the CT, they put me back on the course of treatment for 12 months. I am now on Clarithromycin instead of Azithromycin due to resistance. I was told that it is unlikely to be reinfected, but that the infection was never cured. The doc also said that it is common for it not to be cured with the first course of treatment. I am 39 years old and in very good health.
24 Jun 2011
I was diagnosed with MAI in late 2000. I had no symptoms and had just gone in for an annual PE and a routine chest x-ray was done. The x-ray showed two spots on my lung. I was referred to a pulmonologist who ordered a PET scan and lung biopsy. I was on Ethambutol, Rifampin and Zithromax for six months. I don't remember the doses and perhaps they were lower since the MAI was diagnosed so early but I didn't have any side-effects from the medication. My pulmonologist followed me for two years and then recommended that I just have my internist monitor the condition via an annual chest x-ray. My pulmonologist did not see any increase in the size of the lesions and he felt the MAI was in remission. However, he did warn me that the MAI could become active again so there doesn't appear to be a cure as such.
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Mycobacterium avium-intracellulare - I live in Miami,Florida & want to know if anyone here has this?
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3 answers • 24 Nov 2013