... when my left eye kept closing. I have been on Pyridostigmine and they recently added Azathioprine with no better results. I just went through 5 days of IVIG week before last and that didn't help either. I just keep getting weaker but what has my doctors really confused is my extremely serious loss of balance. They keep saying there must be something else because weakness, not balance, is the issue with MG. Like I said - they say there must be something else going on but have yet done anything to even begin exploring what that might me. To be honest, I'm scared
31 Jan 2010
I have balance issues also, I was diagnosed 1 month ago with Myastenia. I'm on mestinon 45mg 4 times a day. I loose my balance when I am trying to hurry with what ever I am doing, I fell a few times. I do have better balance when I take it slower. The first 2 Doctors I went to didn't think I had MG or anything else wrong with me. I went to the 3rd Dr. that finally diagnosed me with MG but initially he told me I didn't have MG. I didn't have the usual (double vision)... I had a script from my family Dr. to rule out MG and that was the only reason this Dr. followed through with an emg for myastenia. He was very surprised when he saw it was positive...
16 Jul 2010
Yes, I have had some balance issues, but I didn't know if they were related to MG. I also have taken the IVIG series and it seemed to help me for a while. I also take azathiaprine and it has done well for me. I still have some fatigue issues but most of the other symptoms are gone.
5 Nov 2011
Yes. I carry a cane when I'm out anywhere to keep balance. It would hurt if I fell down in the store as well as scare people. I'm a Snowflake so it may be different for you. Weakness, Balance, Eyelids closing, impared speach, focusing, spelling, mind lapses all go with MG. Don't be scared, go with what you have and be thankfull. I became a snowflake 8 yrs ago with cancer to boot. I'm still here an enjoy everyday I wake up.
24 Aug 2013
I have MG and severe balance issues. I went to my eye doctor who specializes in neuro opthamology. He said my eyes are fine the only where are you to rid myself of double vision is to cure my MG. I'm taking pednisone; lyrica; cymbalta; aziothiaprine. Some days are better than others. If I close one eye my double vision goes away. Just make sure to keep a cane or walker with you. I pray you get releif
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
For 14 years husband has been taking nutritionals rated #1 in the world. Aprox 2 yrs ago he was diagnoised with Myasthenia Gravis - He has been ...
1 answer • 9 May 2010
Plz could some1 help me to find a genuine supplier of pyridostigmine bromide tablet (MESTINON 60mg)?
Myself sanjay nath 58yr from kolkata,india. I suffering from myasthenia gravis. I want get mestinon at my home. How could I get it?
1 answer • 26 Feb 2011
My dog is on mestinon, azathioprine & prednisone,she she has a gassy stomach,can I give her mylanta?
She has myasthenia gravis & mega esophagus. Just want to know if the mylanta will hurt her.
2 answers • 26 Mar 2011
2 answers • 25 Jul 2013
Firstofall, I thank you for spending your valuable time in reading this email. I am unmarried woman aged 33 years. I am suffering from congenital ...
2 answers • 17 Mar 2014