Myasthenia Gravis - DOES ANYONE HAVE SERIOUS BALANCE ISSUES? I was diagnosed a couple years ago?

14 Dec 2009

i use too have balance issues before i was diagnosed but since i was diagnosed and have been on medications i dont seem too experience it i currently take pyridostigm 3 times a day cellcept 3 times a day and mestinon time release before bed

31 Jan 2010

I have balance issues also, I was diagnosed 1 month ago with Myastenia. I'm on mestinon 45mg 4 times a day. I loose my balance when I am trying to hurry with what ever I am doing, I fell a few times. I do have better balance when I take it slower. The first 2 Doctors I went to didn't think I had MG or anything else wrong with me. I went to the 3rd Dr. that finally diagnosed me with MG but initially he told me I didn't have MG. I didn't have the usual (double vision)... I had a script from my family Dr. to rule out MG and that was the only reason this Dr. followed through with an emg for myastenia. He was very surprised when he saw it was positive...

16 Jul 2010

Yes, I have had some balance issues, but I didn't know if they were related to MG. I also have taken the IVIG series and it seemed to help me for a while. I also take azathiaprine and it has done well for me. I still have some fatigue issues but most of the other symptoms are gone.

5 Nov 2011

Yes. I carry a cane when I'm out anywhere to keep balance. It would hurt if I fell down in the store as well as scare people. I'm a Snowflake so it may be different for you. Weakness, Balance, Eyelids closing, impared speach, focusing, spelling, mind lapses all go with MG. Don't be scared, go with what you have and be thankfull. I became a snowflake 8 yrs ago with cancer to boot. I'm still here an enjoy everyday I wake up.