it is in spine , brain, liver,lungs, spleen,both femurs,and bone marrow,adrenal gland,subcutaneous in abdomen, back, leg.Has had exactly 2 years. first tumor on head,calarks stage 4,sentinnel lymph node clean. Then tumors developed in neck,lymph nodes positive, 21 removed some negative, fully encapsulated,got 1 month radiation to left neck and head. 5 months later hip broke,metasticized to femur and marrow,pt/cts clean at that time,got 2 weeks femur radiation then 4 Yervoy treatments,BRAF negative, end of 2 1/2 months later speech and cognitive problems,large tumor and swelling in left brain, stereotactic radiation, new scans reveal in almost all parts of body, 3 weeks later scans show tumors all grew in spite of radiation and yervoy.Been on Temodar for almost 2 months, all blood # low, very weak, constant sleeping, getting new scan results tomorrow,terrified, any feedback will be appreciated, patient(husband)is only 55 years old. Loving wife and caregiver
My husband is in stage 4 melanoma,brain etc..do you think temodar will help,2nd month treatment?
- Posted:
- 26 Sep 2011 by fishtank555
- Topics:
- temodar, melanoma
Responses (4)
Marvell29 Sep 2011
Firstly I really sympathize with the situation your husband is in. It is extremely difficult to deal with this condition.
In terms of Temodar ... I don't know of anyone who has taken it but the link below has a few reviews which you may find useful.
litlmommag29 Sep 2011
Oh fishtank I am so sorry for what your going through I hope you have some help. I honestly can't answer about that specific medication pleas call the American cancer society the number is listed in every phone book. When my dad was going through his long cancer and we realized that it metastisized into his liver and stomach. His blood counts was already low b4 the radiation and chemo do to prior treatments for hep C. For 2 years he took interferon for hep c his platelets dropped to 19,000 his red and white was low as well after the 2 years they told him he was cured of the hep C. 3monthes later a chest x-ray revealed lung cancer. The rigal doctor told him he was stage 2 at that time put him on chemo and told him to talk to radiation dr to start on that the radiation dr said the cancer dr was wrong it was stage for. Honestly I didn't want him to continue treatments do to the blood counts in the first place. The American cancer society said that they would him a yr.
2 Dec 2011
Dear Fishtank555,
Please know you are not alone! My 63 year old husband has Stage IV Small Cell Lung Cancer, with brain mets. By the time we knew anything was wrong (manifested by a seizure in Sept. 2009), the cancer had spread to his lungs, adrenal gland, spine, and lymph nodes. The night they took the first CT scan they stopped counting tumors at 13, with 3 being life threatening. The dr. in the E.R. told us we needed to get our affairs in order immediately, within the next three weeks. So... that said... here we are 26 months later!!
22 Feb 2012
Hi
I am also a loving wife and caregiver of a 45 year old man with stage 4 melanoma. We are on year 5 since diagnosis. He has it in the lower spine and has moved its way up also has it in lungs and mesentary (sp) of stomache lining. His first round of treatment was radiation of lower spine and temador. It worked for a while - shrunk the spots in lungs but eventually he had a new accurance under his right lung that they could remove surgicaly. What i a learning from this disease that treatments will work for so long. He had neurosurgery in October and radiation but did not stop growth or diability. Started Zelboraf in Jan. This drug is harder to take than temodar. More side effects.
Good luck and please let me know how he does.
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Sorry to say my husband John passed away October 30,2011, we tried every treatment we could and he never rebounded at all even after receiving blood to get his #s up, I really miss him and I sometimes think about the last 2 years all we did was go to doctors and tests and treatments and surgeries. And radiation. He wanted a miracle and never got it, but he fought till the end because he wanted to beat this terrible illness , he was very brave man.
I am so sorry. He put up a very brave fight. I know what you mean by the last two yrs being nothing but cancer related. It has been that way for 5 yrs.
My thoughts and prayers are with you.