My daughter took tetracycline for acne in her late teens. She is 29 now and has been suffering from Interstitial cystitus. I recently saw an ad on tv about a class-action lawsuit for people like her and now can not locate it.
10 Jun 2011
Hello, I am a 26 year old who has been suffering from IC for over 10 years now. I took Tetracycline during my pre teen and teenage years and started showing IC symptoms at age 13. I have heard from another friend of mine who suffered from the disease for over 20 some years also took the drug, in her teens for acne. I wanted to know if you could email me the information at all you remember from the ad you saw on tv or post it here, because if there is a way i could make a claim on behalf of myself as well. Thank you. I will continue to research it and try and find it for us in the meantime. Well wishes.
21 Nov 2011
I was fascinated with your situation due to my previous teen acne years on antibiotics and diagnosed at 18 with ic now 22 and found more than just ic.
Plus my local support group are all at least 3 decades older. I was starting to wonder if more really did exist.
I will tell you as a very active medical student that it is possible -- however, I have yet to see any great trials supporting that theory. Though I would be very interested to know more about this as you saw on TV I have seen personal accounts and more raised questions that slowly seem to be more than a theory. Doctors hate to admit that stuff half of mine say autoimmune half say no way so eventually you learn to really manage an unknown disease you may need to go outside the box.
My best answer I can give you for your daughter is to basically do what you are doing questioning conventional treatment for an unconventiondangerous than not in most cases.
There is no known cause there are only known theories and temporary treatments.
The age though of your daughter and other aspects of the disease I do feel the need to pass on if you need ;)
Fatigue? Stimulants are domes first choices but with serious side effects instead ask about nuvigil.
Herbal teas were a lifesaver after all sleep meds failed
Caffeine free side effect free
Republic of Teas has a be we'll red tea line all caffeine free and healthy.
Valerian root helps sleep better and yummy in teas.
Gotu kola is an herb used for ic with its ulcer healing properties is also found in get charged teas.
I hope I helped but I would really like to hear more about that ad you saw. Many cases of younger ic patients go misdiagnosed as mentally ill in some way before diagnosis... only causing more problems. The age if with other symptoms suggests autoimmune for some.
Skin reactions are familiar with my case still cause unknown but with natural cleaners and detergents as well as skin care my skin used to be tough now its so sensitive but also irritated using boscia brand face products and aveno or essentially ALL NATURAL products I had to learn to switch to. What one doc told me is your body has.changed in potentially every way in some so what used to work may not work at all anymore... kinda like our bladders ;) hehe
I hope some of this helped.
Good luck with you and your daughters situation. Thank you for your contribution.
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